I have ME/CFS and have been struggling to carry on working for more than 10 years. Some years have been better than others, this year probably one of the better ones.
At my worst, I have been fully dependent on DH. Apart from my 15 hours max of work in the week, I wasn’t able to do anything at all. No cooking, no cleaning the house. Not even reading for pleasure (let alone going out for a walk etc…).
Now I am not as exhausted so I can cook a meal from time to time. I can put the washing out to dry wo it feeling like I’m climbing Mount Everest. But yes still restricted.
I’m at the point where I am tired. Tired to be pushing through. Tired to constantly be making an effort ‘to be normal’ or ‘to participate’. I’m dreaming to stop working. We would loose the money I’m making, between £400 and £700 a month. Nit great but manageable.
I just feel like a failure for wanting to give up though…
How does it sound to you?