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Please help - Mast Cell Activation Syndrome (MCAS)

103 replies

allergyupset · 19/08/2021 14:50

Can anyone please recommend a female doctor in London who can diagnose Mast Cell Activation Syndrome? Preferably a private doctor as my GP won't refer me to anyone. (I've been advised by a few people online that you should never specifically mention MCAS to your GP as a lot of doctors don't accept it).

I saw a doctor a couple of months ago who said she wanted to test me for it, I've had problems for years and suddenly it all makes sense, but for complicated reasons I'm unable to see her again. I'm not going to discuss why so please don't ask.

For anyone who doesn't know, there are very few doctors who actually deal with it and it's very hard to get diagnosed, so please, no "Have you tried seeing a dermatologist?" comments, I've already been there a million times so that's why I'm looking for an exact recommendation.

I'm looking for a female doctor and this isn't negotiable.

OP posts:
Namechange600 · 11/05/2023 23:44

Yes I do

Chas23 · 20/09/2023 15:54

Hi, how long did you have to use the antihistamine, did you recover fully? I read that once you quit the antihistamine, problem comes back again, im wondering if it could be a cure or just temporary relief from symptoms as long as you are on it? Thanks.

allergyupset · 20/09/2023 16:22

That’s not how antihistamines work. It just masks the symptoms to reduce allergic reactions. It can’t cure anything.

OP posts:
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