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Is anyone in London free on the 11th July and wants to do a good deed?

19 replies

Balula · 08/07/2019 18:04

We're looking for people to attend this protest and represent all the people who have died that could have benefitted from this drug. It's an hour of your time at the most.

Is anyone in London free on the 11th July and wants to do a good deed?
OP posts:
Zoobluebabypink · 08/07/2019 18:05

I don’t get it

Balula · 08/07/2019 18:16

Sorry I should have explained,

People with Cystic Fibrosis are being denied a drug that could greatly slow the decline of their disease. This is due to a pricing row between the pharmaceutical company and NHS England.
In the 3 years since it was approved over 250 people have died.
We are trying to get 250 bodies to represent hose people to highlight the fact that whilst these rows continue people are dying.

My son is very sick with Cystic Fibrosis, this drug could change our lives.

OP posts:
Sparklyring · 08/07/2019 20:35

@Balula I wish I was, we lost my best at 21 to CF xx

Balula · 08/07/2019 20:40

Thanks for giving the thread a bump. Sorry for your loss, CF is a cruel disease. x

OP posts:
miggeldysthepres · 08/07/2019 20:45

I'm too far away op but if I was London I would help you- thank you

WatcherOfTheNight · 08/07/2019 20:59

Bump

TurrettOnLine · 08/07/2019 21:14

Bump

StealthNinjaMum · 08/07/2019 21:16

I'm sorry I have plans on that day but i'll bump your thread. Good luck.

TroubleWithNargles · 08/07/2019 21:19

I will be too far away, but best of luck with your endeavours.

Zoobluebabypink · 08/07/2019 21:22

Sorry OP, I’m too far away too but best of luck

Sparklyring · 10/07/2019 07:06

Bumping

LittleFairywren · 10/07/2019 07:40

Bump.

BewitchedBotheredandBewildered · 10/07/2019 16:03

Another bump

LordProfFekkoThePenguinPhD · 10/07/2019 16:06

sorry Im at a conference but bumping

AngeloMysterioso · 10/07/2019 16:15

I’m in London- will do my best.

Fairylightsandwine · 10/07/2019 17:22

This reply has been deleted

Message withdrawn at poster's request.

Tooner · 10/07/2019 17:32

Bumping, I really hope 'The powers that be' take note and quite rightly change their mind

Kalim8 · 10/07/2019 19:03

Bump

Alliumlove · 10/07/2019 19:05

I’ll be at work, but bumping. Good luck OP. This situation makes me sick.

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