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AMA

PIP assessor here

165 replies

Fsj88 · 16/10/2026 21:53

Good evening

I’ve been encouraged to sign up to Mumsnet by a friend who has suggested that some people might find it useful to be able to ask a PIP assessor questions.

If there’s anything you think I can help you with, please ask away

OP posts:
Fsj88 · 18/10/2026 09:48

SupernaturalAddict · 17/10/2026 22:22

My son is in the process of going from dla to pip (he's had high rate care and mobility since he was three). I've just read your post on supporting documents and too many not being helpful. He has severe autism and learning disability plus other diagnosis that go along with them. His ehcp alone is over 30 pages and I sent ot, salt, social care, paed, ed psych, safeguarding docs etc as well. I took it as read that he would get enhanced on both as requires 1:1 support at all times inside and 2:1 support outside and it is well documented that he needs substantial support with all activities of daily living. Should I be worried now that I've sent too much?

No absolutely don’t worry. We’re used to handling large amounts of evidence. Just bear in mind your assessor might be working some unpaid overtime that day 😂

OP posts:
lifeturnsonadime · 18/10/2026 09:50

I've asked this already but you didn't answer; is your performance in any way assessed on the number of claims you reject/ accept? Do you have targets based on numbers of claims accepted/ rejected?

Fsj88 · 18/10/2026 09:54

Noras · 17/10/2026 19:23

Take my son

He had a complex medical history form birth but now attends university with 50 hours PA support per week. 10 hours university funded and 40 hours social services.

Before university he went to life skills. He had complex needs with ASD and severe receptive SLi on 1 percentile but most noticeably pragmatic / semantic on 0.75, executive functioning on 2 and 4 , working memory on similar and ASD. He has motors coordination 0.5 percentile ( so impacts cutting skills and general kitchen safety)

He has been reviewed several times be social care and has a package worth some 45,000 to 50,000 per annum. His ASD report states he will struggle with ADL.

yet he will be reviewed in 2030 and I will have to spend hours completing the form - I tend to say aww diary for each question and run a diary.

In reality what can you add to the social care report when the largest expense is social care and pip expenses pales in comparison. To me it’s a bizarre duplication of assessments. We go on holiday and 24/7 care moves in which is telling and expensive.

So why can’t pip just merge with social care for one report rather than repeat reports. At least they see him in person for an hour or so at home and have dynamic access to care records as well as all the medical reports - OT SAlT paed life skills college and care reports - what do you add to the process ?

Because for the process to be consistent and fair everyone needs to be assessed under the same structured criteria and their functional ability needs to be considered under the scope of each activity. The system would be absolute chaos otherwise

OP posts:
Zippidydoodah · 18/10/2026 09:58

See, so many severely physically disadvantaged people who are deserving and needing of pip are declined it, yet the 16 yo I know who has adhd (went/goes to mainstream school/college; has a part time job ffs) gets it and MOBILITY….why? Please, I need to understand this.

Fsj88 · 18/10/2026 09:58

whereonthestair · 17/10/2026 12:17

Thanks, that’s helpful but clearly part of the reasoning the system doesn’t work and why it needs a complete overhaul. Some cases are complex, and we answered honestly but when my son has the face to face assessment so many of his answers were it depends, and even his EHCP says in terms he will not accept his hard things are and understate the level of his difficulties.

Do cases get assigned to the right person? Or is it random. My son would suit a physio, or similar. A nurse is unlikely to understand what his condition means unless they have worked with people like him.

With no disrespect intended at all, more consideration was given to my son’s para swimming classification than his PIP (he’s complex there too) but that had a paediatric neuro consultant doing the assessment..

Is more time given to the mandatory reconsideration?

I am in a very peculiar place where I’m as sure as I can be we will succeed at tribunal but trying desperately to avoid getting there. Absolutely no-one who knows my son thinks he shouldn’t get high and high for what is quite complex CP, but it’s entirely physical

Edited

In an ideal world a mental health professional assessing mental health cases, for example, would be preferable but there are rarely ever cases which claim for one condition in isolation. Claimant usually have a combination of wide varying conditions such as mental health and musculoskeletal, so in practise it would never work.

Sorry just edited to add I don’t have much knowledge of the inner workings of the mandatory consideration process as this doesn’t form part of my role

OP posts:
Fsj88 · 18/10/2026 10:03

lifeturnsonadime · 18/10/2026 09:50

I've asked this already but you didn't answer; is your performance in any way assessed on the number of claims you reject/ accept? Do you have targets based on numbers of claims accepted/ rejected?

Sorry, I’m just catching up on posts.

No absolutely not. I don’t know where this rumour ever originated as I’ve heard it so many times.

We are regularly audited and we have performance targets but they’re based on the quality of our information gathering and report quality

OP posts:
lollygiggler · 18/10/2026 10:08

My daughter has a chronic illness. Sometimes she needs a wheelchair to go out, sometimes she’s too exhausted to even go out the door, but sometimes she’s absolutely fine and goes off to dance classes. I would say on average 90% of the day she is okay if she is careful and paces herself but every day there is that 10% where she cannot do the thing she wanted to do out of sheer exhaustion. (This is an over simplification as there are some days she is unable to leave the house at all)

I understand the threshold of “more often than not” but don’t know how this applies here. It impacts her every single day, but only 90% of the time.

Fsj88 · 18/10/2026 10:09

Herwhodoes · 17/10/2026 12:19

So I've arthritis in hips, & foot, fused spine from L5 & dislocated knee approx 10 years ago so cant Berlin or squat down. Have to walk up up & down steps one at a time, have difficulty walking on rough terrain or distances. Need help with some household stuff. What evidence would I need to claim please? Under Consulrant for foot & awaiting steroid jabs, but just told by docs to take painkillers for hip & back. Ive had to purchase different footwear as cant bend foot & instep has dropped. Have difficulty getting in & out of vehicles too. Thanks

Edited

There’s nothing you ‘have to’ submit but documents that would be useful could include a factual report from your GP, consultant letter, any physio/occupational therapy/ occupational health reports, repeat prescription. Just as an adage don’t focus too much on your problems walking on rough terrain in your application as it isn’t considered. Distance however, is

OP posts:
lifeturnsonadime · 18/10/2026 10:13

Fsj88 · 18/10/2026 10:03

Sorry, I’m just catching up on posts.

No absolutely not. I don’t know where this rumour ever originated as I’ve heard it so many times.

We are regularly audited and we have performance targets but they’re based on the quality of our information gathering and report quality

Edited

The reason people believe this is because some claims, which clearly meet criteria, are rejected.

I have a child who has been awarded 0 points across the board for care needs.

One example:

She is unable to safely prepare a simple meal, this was evidenced in an OT report, this is due to hand / wrist stability as well as mental health and executive functioning issues. 0 points awarded because she is able to spread nutella on a slice of pre-sliced bread!

There is no reason for the assessor to have got this so wrong, unless they are assessed by the number of claims accepted/ rejected, is there?

needastrongone · 18/10/2026 10:27

Thanks for this useful thread. I have just submitted DH’s paper based review forms. He had a TAC stroke in 2023 and was awarded higher rate for both daily living and mobility without question, after a years stay in hospital and a brilliant summary report from the rehab team there, which included all disciplines including neuro psych.

The NHS have been brilliant since and we have had an extended period of community care with an end of support report as part of a wealth of evidence. I’ve two questions because I’m scaring myself to death reading these threads and social media. I’m pretty sure he qualifies for the full rate for both still, due to the level of support he needs but would a Rookwood driving test (badly failed, score 16) demonstrate the lack of cognitive ability to journey plan. (It’s a non driving assessment to evidence cognitive skill ability to drive). Theres other evidence too because he can’t write, process, sequence etc either.

Ref mobility - he can walk over 200m (maybe once a week) but extremely slowly, with stick, a leg brace, and one of us being with him as he has left sided inattention and veers to the right so is dangerous, he needs to rest afterwards in bed but I encourage him to keep trying to doing this to preserve what little he has. Extreme foot drop so a trip hazard. We’ve evidence from consultant, and private neuro physio (paid for by his PIP) to support. But will they focus on distance?

I get a bit upset reading the negativity re pip - he’d trade every bit of support to go back to his old life.

SupernaturalAddict · 18/10/2026 10:46

Fsj88 · 18/10/2026 09:48

No absolutely don’t worry. We’re used to handling large amounts of evidence. Just bear in mind your assessor might be working some unpaid overtime that day 😂

Thank you for the reply. It seems unfair that it works this way. I wasn't aware that each case only has a limited amount of time. I did ref quotes from documents and gave page numbers for them for each question to hopefully make it easier/ quicker.

MrsAnon6 · 18/10/2026 10:52

I had an assessment a year ago as I applied due to restrictions I have due to poor mental health. I explained to the assessor how I struggle to go out, eat/cook food and maintain my home and that I needed support with this and she appeared be empathetic of this. However, she scored me zero points which was a real shock. What could be the reason for this?

whereonthestair · 18/10/2026 11:21

Fsj88 · 18/10/2026 10:09

There’s nothing you ‘have to’ submit but documents that would be useful could include a factual report from your GP, consultant letter, any physio/occupational therapy/ occupational health reports, repeat prescription. Just as an adage don’t focus too much on your problems walking on rough terrain in your application as it isn’t considered. Distance however, is

The law says the mobility assessment should be on the type of surface normally encountered by a pedestrian outside. It went to the upper tribunal so its binding case law. And another reason legal training would be helpful. It’s not distance on any surface.

Fsj88 · 18/10/2026 11:22

DiligentDandelion · 17/10/2026 13:14

Thanks for doing this thread. I was confused by the response to my PIP. I scored 0 across the board and have resubmitted. One thing that confused me was the response to my claim re mental health. I have chronic pain which impacts mobility. I also have post traumatic stress which means I am unable to currently (and for the last year) go out unaccompanied. This is related to frightening episodes of immobility outside my home and resultant subsequent episodes of hospitalisation. I explained this in section 11 on doing journeys. The assessor seemed flabbergasted (and frankly a bit rude) when I explained this, and that I had submitted accompanying evidence in the form of a detailed letter from the psychologist who specialises in pain. The psychologist now works privately but for many years worked in an nhs pain clinic.

The response to my application mentioned I had not sought help for my mental health from my GP, or been seen by a community mental health team, or had therapy. I did have therapy, with the apsychologist, and as a psychotherapist myself, I’m very aware the chances of getting help in the nhs beyond a handful of sessions from a counsellor, or SSRI drugs are scant. Extensive help tends to go to those with major psychiatric diagnoses and even then help is hard to come by. For this reason and also the lengthy wait for the pain clinic, I sought help and paid for ten sessions with the most relevant professional for dealing with my issue. Does this simply mean that any mental health issues will be discounted unless someone has a major psychiatric diagnosis?

Edited

I’m sorry to hear of your difficulties. Under planning and following journeys what you describe, pain and immobility resulting from psychiatric disorders would not be considered. It might be of note to some people that neither is feeling too unmotivated to go out. Activity 11 considers ‘overwhelming psychological distress’, the threshold of which is high and the symptoms you describe, although distressing, are not consistent with what we would need to see to be able to score. Your pain and immobility should however, have been considered under activity 12, though would need to be present on the majority of days to score.

In answer to the second part of your question, diagnosis alone doesn’t determine outcome

OP posts:
Rootsinmydreamland · 18/10/2026 11:39

I wanted to give an alternative viewpoint for all of the posters on here horrified at the idea that somebody could claim PIP without providing medical evidence.
I was born without eyes and with multiple joint deformities. While I can't say if documentation was provided when I first claimed adult DLA, as it was then, because I was a teenager at the time and my parents would have handled the application, I do recall what happened during my assessment around a decade ago, when I was transitioned from DLA to PIP.
While I submitted the required form, I am pretty confident that I did not submit any supporting documents, though I gave the DWP permission to contact my GP for verification if I remember correctly. I had a face-to-face assessment, though it was quite brief as the assessor was able to verify, from across the room, that my wrist, elbow and finger joints were visibly misshapen and I offered to remove my prosthetic eyes for her, which she declined. This was apparently sufficient information to back up what I had claimed on my form. She still had to go through some questions with me, though it seemed to be in a perfunctory manner, though she did seem a bit embarrassed about having to ask me if I could drive.
As a result of my claim I was awarded the higher rate of both components and have not had a reassessment since, probably on the basis that my condition is highly unlikely to have improved.
I know that some posters on here would like more regular reassessments to be made for all claimants but, in a case like mine, it would seem like an inefficient use of time and money. However, if the DWP want to pop round once a month to check I haven't miraculously sprouted eyeballs in the intervening period I am more than willing.

mumumental · 18/10/2026 13:00

Fsj88 · 18/10/2026 09:44

No, you don’t

No, but “it strongly increases your chances of a successful award”. (Turn2Us).

MildlyUnimpressed · 18/10/2026 13:56

Fsj88 · 18/10/2026 09:44

No, you don’t

There’s an important distinction between not needing to have supporting documents in order to start a PIP claim and saying that evidence isn’t needed.
DWP guidance encourages claimants to provide relevant supporting evidence they already have. Assessors are expected to consider the claimant’s account, any supporting evidence and the other information available when advising on the claim.
You don’t need to delay claiming to obtain evidence, and you shouldn’t assume you need to pay for a GP report. But relevant evidence can help explain how your condition affects your daily living and mobility, and further information may be needed to reach a properly informed decision.
So please don’t interpret “you can claim without evidence” as “evidence doesn’t matter”.

Fsj88 · 18/10/2026 19:46

MildlyUnimpressed · 18/10/2026 13:56

There’s an important distinction between not needing to have supporting documents in order to start a PIP claim and saying that evidence isn’t needed.
DWP guidance encourages claimants to provide relevant supporting evidence they already have. Assessors are expected to consider the claimant’s account, any supporting evidence and the other information available when advising on the claim.
You don’t need to delay claiming to obtain evidence, and you shouldn’t assume you need to pay for a GP report. But relevant evidence can help explain how your condition affects your daily living and mobility, and further information may be needed to reach a properly informed decision.
So please don’t interpret “you can claim without evidence” as “evidence doesn’t matter”.

Submitting is useful but isn’t a requirement

OP posts:
Fsj88 · 18/10/2026 19:49

Highfivemum · 17/10/2026 13:59

My adoptive mum had a 30 percent industrial injuries award previously and last year had a stroke. She applied and hasn’t been asked to go for an interview. She panics all the time and thinks it will be rejected and believe me she needs it but only evidence she sent was her stroke papers and award papers. Has she been rejected. It has been three months now it is there a real delay. It is a shame with delays as a lot of people will panic

There are huge delays currently. We’re inundated with new claims. I’m still assessing people who applied in June. If she calls the DWP existing claims line an advisor will be able to tell you where in the process the application is

OP posts:
Fsj88 · 18/10/2026 19:54

Therescathairinmybath · 17/10/2026 14:25

Do assessors get into trouble if they approve too many claims?

I was lucky when I made my initial claim as my assessor was familiar with my type of illness. Do you have to do research (google?) for conditions you know nothing about? Do you believe that a fair assessment can be made by someone who isn’t an expert?

No we don’t work to any such targets.

If a condition is unfamiliar to us we do the same as we would treating a patient in clinical practise - refer to reputable sources (we actually have a bank of knowledge documents created specifically for us), speak to colleagues and the like. We prepare for assessments beforehand and have time to do this unlike in clinical practise where you’re more likely to be put on the spot!

OP posts:
Fsj88 · 18/10/2026 20:04

MildlyUnimpressed · 17/10/2026 15:27

You suggest that if a claimant and their companion give inconsistent accounts, the assessment is likely to be discontinued, and that the claimant needs to demonstrate good insight. Where exactly is that requirement in the PIP assessment guidance? A companion may be needed precisely because the claimant has difficulty recognising, understanding or communicating the extent of their own needs. Someone with autism, ADHD, a learning disability or cognitive difficulties may minimise their difficulties or give answers that don’t reflect what happens in everyday life. Differences between accounts should be explored and considered in context; they shouldn’t automatically be treated as a reason to discontinue an assessment. Surely the purpose of having a companion there is, in part, to help the assessor understand the claimant’s actual functional difficulties?

www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-1-the-assessment-process?

Having a companion can be invaluable for the the claimant as well as the assessor at assessment. A companion is welcome to contribute throughout and give surplus information and additional context to anything reported by the claimant.

for example…

claimant - ‘I change my clothes once a week’
companion - ‘yes and my husband and I prompt him daily but this prompting can lead to him becoming distressed and we have to withdraw. Prompting is usually successful once a week because on the other days he’s just too low in mood’

An assessment that couldn’t continue would look something like…

claimant - ‘I get dressed every day. I’m fine and I wish everyone would just get off my back’
companion - ‘no, that’s isn’t true, six days a week when we visit you’re still in your pyjamas at midday ’ etc

If information is conflicting then it isn’t reliable. The claimant needs to be formally assessed as requiring an appointee and the appointee needs to be approved as appropriate. This process is conducted by the DWP. In this instance the claimant can still attend the assessment and contribute but the weight of the evidence provided by the appointee will be greater than that of the claimant if they continue to give mismatched information.

I hope that helps clear it up

OP posts:
Fsj88 · 18/10/2026 20:08

NotCaesarAugustus · 17/10/2026 17:50

What is activity 1?

Where can I find a list of activities? (link please)

Do the activities change ever?

I can see that someone else has helpfully sent you a link.

No they don’t change, though may do following review that’s being undertaken (Timms review). We’ll have to wait and see what comes of that

OP posts:
Fsj88 · 18/10/2026 20:12

FunPreventionOfficer · 17/10/2026 19:04

Two and a half years ago I received a full award for 10 years. I know it’s a long way off but as it stands currently what should I expect when reassessment time comes around.

You’ll be sent an AR2 form which isn’t too dissimilar to the PIP2 form it’s likely you completed prior to your assessment. It takes you through each of the activities, asks what your current needs are and whether they’ve changed since the previous assessment. You’ll then be invited to another assessment (unless they decide to assess you as part of a paper based review, in which case you won’t need a telephone/ face to face assessment). As things stand many people’s awards are being extended because there are so many new claims being submitted we can’t meet the demand. Though of course this may be different by the time your review comes around

OP posts:
Fsj88 · 18/10/2026 20:13

Ragnarok26 · 17/10/2026 18:01

Are you a registered health professional and is your registration still in date?

Yes and yes. You have to have a current registration to be an assessor

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Lolalovesroses · 18/10/2026 20:15

place marking

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