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AMA

My son was diagnosed with cancer last year AMA

8 replies

0Lottie7 · 31/07/2026 13:39

Hi all.
My little boy was diagnosed with acute lymphoblastic leukaemia in March 2025 when he was 3, just 12 days before his 4th birthday. He's 5 now and doing really well thankfully, but it's been the hardest year of our lives.
I thought I'd do an AMA because if it helps even one family push for answers then it's worth it. One of the reasons I wanted to post is because looking back, he didn't really have the symptoms people expect when they hear childhood cancer, which is probably why it took longer than it should have.
I'm not saying every ache or illness is cancer because obviously it isn't, but I do think parents know when something just isn't right.
Happy to answer anything if I can. Obviously I can only talk about our experience, but if it raises a bit of awareness for childhood cancer then that's a good thing.

OP posts:
FeetupTvon · 31/07/2026 13:41

I don’t have a question but just wanted to send my love to you and your precious little boy, I’m so pleased its all over for you xx

RecyclingSal · 31/07/2026 14:16

I'm so glad your darling boy is doing better, OP. What a horrible shock that must've been.

Please can I ask, what were his symptoms? Did you find it difficult to get a diagnosis?

Sending love 💐

Zapx · 31/07/2026 14:52

Wow, so pleased to hear he is doing better. How long did you know something was wrong before you started getting taken seriously?

0Lottie7 · 31/07/2026 16:41

He'd always been such a healthy little boy. Even when he started nursery, which everyone says is bug central, he hardly ever caught anything.

Then one day he came home with what seemed like the start of a cold and it just seemed to drag on for ages. I took him to the GP and was told it was viral and these things can linger, which is fair enough because most of the time they do.

One evening though he was really out of breath which frightened me so I rang 111 and they advised A&E. They listened to his chest, said it was probably viral and prescribed an inhaler. Looking back I don't feel they properly checked him but at the time you trust what you're being told.

The cold did eventually get better but I still felt something wasn't right. He was pale all the time, still got out of breath much more easily than he used to and he seemed to get tired so quickly. He was also having a lot more tantrums than normal which we just put down to him being nearly 4.

The difficult bit was that he still had days where he'd run around and play quite happily when he had the energy, he still ate well and he never had the unusual bruising or lots of the symptoms you always hear about. That's partly why I think people weren't too worried.

It did take a while to get anyone to really take us seriously. I remember asking if they could do a blood test because I couldn't get past how pale he looked. The GP actually said he wasn't "extremely pale" so didn't think it was needed. He wasn't ghost white, but he was definitely pale for him and I knew he'd changed.

I don't blame every doctor we saw because childhood cancer is thankfully rare, but I do wish someone had listened to my concerns a bit sooner.

@RecyclingSal@Zapx

OP posts:
wishfulthinking25 · 31/07/2026 16:49

Wow, what a strong woman you are and what a strong little boy he is. I am so glad he is doing well.

RelievedNoYouTubeMum · 31/07/2026 16:53

Oh OP. So good to hear he is on the mend.

How did you cope? I just can’t imagine how terrifying this was

Kirbert2 · 31/07/2026 16:54

No questions but my son was diagnosed with cancer exactly a year before your son - March 2024. He also had blood cancer but non hodgkins lymphoma. My son was diagnosed just a few months after his 8th birthday and has now been in remission for 2 years in September.

Big hugs to you xx

RecyclingSal · 31/07/2026 21:02

He sounds like an amazing little boy! Were your work accommodating with time off to look after him / take him to appointments?

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