Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Can somebody please catch a train down and see me for a real hug :(

210 replies

coff33pot · 07/09/2012 09:43

I need a real body. I am heartbroken and destroyed.

OP posts:
coff33pot · 10/09/2012 20:06

been and bawled my eyes out to docs and apart from nothing constructive to say apart from wait till tomorrow morning and see what they say. Then asking me how much sleep I am getting to which I said about 3 hours between dd and ds he said to not increase my anti ds because it will cause agitation and won't help for 3 weeks anyway and offered me diazapam to which my reply was are you deaf or mad. I have to be able to wake up for both ds and dd right now and my sleep pattern isn't going to help. Told me I need to eat healthy and rest how ironic....

just spent 45ins locked in surgery loo bawling my eyes out because if I didn't I wouldn't have been able to drive home and of course I can't cry there.

Said he never heard of ritalin being used as a substitute but then he isn't a proff. more diazapam for dd.

OP posts:
NoHaudinMaWheest · 10/09/2012 20:15

Oh Coff not another useless professional. You need that like a hole in the head. I hope tonight is bearable and you get some sense tomorrow morning. More hugs.

PipinJo · 10/09/2012 20:16

This reply has been deleted

Message withdrawn at poster's request.

WetAugust · 10/09/2012 20:26

Coff - are you taking DD with you when you visit the GPs or just going alone?

One idea is to complain to PALS that you are being advised to break the law and supply your DD with illegal drugs as the services in your area are failing to acknowledge the urgency of the situation and that if you don't get immediate referral you'll go public with their advice (not that you would but telling them you will should spur them into action).

fatbottomedmavis · 10/09/2012 20:28

This reply has been deleted

Message withdrawn at poster's request.

mariamma · 10/09/2012 22:50

Coff, I feel really unsure about you following the advice to just keep supplying your dd with cocaine. She's suicidal and dangerously underweight with a possible heart problem. Cocaine highs and lows are rapid and unpredictable. To me this is most likely to be fiction, or else your dd has drawn an inexperienced counsellor into good cop/ bad cop (with you as bad cop, obviously).

PipinJo · 10/09/2012 23:47

This reply has been deleted

Message withdrawn at poster's request.

coff33pot · 11/09/2012 01:19

I won't do it regardless both principal and lack of money so I can't be persuaded even if I am pushed to the limit.

Dd did work for me and has always supported herself with her wages till last year when this started obviously.

Wet I have gone with dd on appointments nd gone in with GP with her and the first night she was with me al along even when I was on phone. Tonite I went by myself to collect some more diazapam for her and I grabbed one more chance t trying to make another doctor do something.

her GP herself told me she can't condone it but she mustn't stop taking it. GP tonite said the proff know what they are saying and to trust them.

it is dd that has told me what the addaction woman has said and she said at the appointment tomorrow can you tell my mum this and she said yes so I will have it from the horses mouth tomorrow anyway.

Dd is right in that the ed one is important as she is taking this stuff to suppress eating and the trauma side and I am angry because all they have to do is arrange the meds either by going somewhere every day if necessary or me monitoring till she gets ed. these ppl were allegedly supposed to be working as a team ffs. Behind my back or not this is what they promises her weeks ago.

up till this point in her life I can on my children's lives say she has never stolen money from me. not do much as a sweet from a jar. She has been a pain of a teen just like any other but she had one flaw and that was she had to blurt it out and tell me which pissed the other teens off.

so this is new but it also shows me how desperate she is . The one where they want to send her has a long waiting list. This is just an assessment to get her on the list quick so dd has confirmed when I got home. And for them to talk and "explain " to me.aybe the ed clinic will come up trumps quicker I will yell for that tomorrow x

I would love to meet up fatbottomed I got dd appointment in morn and ds med check at CAMHS then Wednesday I have clicker training in afternoon till end of school it starts at 1 ish so I coul meet in morn after ds at school or after school with ds. Pm me your mobile and I will ring but I warn you I look a bit scatty and worse for wear at the moment :)

OP posts:
fatbottomedmavis · 11/09/2012 08:27

This reply has been deleted

Message withdrawn at poster's request.

Eliza22 · 11/09/2012 09:43

Am adding my virtual hugs. Not the same, I know xx

coff33pot · 11/09/2012 10:12

thanks Eliza needed and accepted gratefully leaving in ten mins for her appointment x

OP posts:
alison222 · 11/09/2012 10:30

fingers crossed for some more constructive help today xxx

coff33pot · 11/09/2012 10:53

well we are here and she gone in on her own for a sec then the woman is going to calle in. The woman is so cheerful smiley and happy. WTF is there to smile about :(

OP posts:
Badvoc · 11/09/2012 11:09

Sending love coff x

StarlightMcKenzie · 11/09/2012 11:35

Hoping this appointment actually gets you somewhere. What a bloody waste of all our taxes so far.

imogengladhart · 11/09/2012 12:17

This reply has been deleted

Message withdrawn at poster's request.

zzzzz · 11/09/2012 12:26

This reply has been deleted

Message withdrawn at poster's request.

Penneyanne · 11/09/2012 12:53

Thinking of you Coff33 and hoping you finally get some support today.Sending lots of hugs and best wishes to you both.

coff33pot · 11/09/2012 13:13

no is the answer she can put her name down and it's a six month waiting list. I have a child here screaming if they don't help her she is going to beg or steal for it rather than eat and she doesn't want to take it anymore but needs the es place to admit her to stop her starving :(

been onto mh team demanding they hurry referral and waiting for a call. Told to ring a certain GP who can prescribe something as linked to CAD? She has rang him here in car telling him she wants to get better but he said he has to go back to the first fucking GP who just told her not to stop as he isn't linked with these people.

I am close to hitting someone right now this is fucking tearing us al to pieces. she even offered me 1 to 1 to deal with the drug side to chat it over! I don't want a fucking chat I want them to listen to dd!

OP posts:
coff33pot · 11/09/2012 13:14

Oh and I was made aware how dangerous it is for her to stop and do I realise that she has to carry on till referral date arrives for her admission. ds was telling the truth but they don't have answers other than these thugs take time

OP posts:
StarlightMcKenzie · 11/09/2012 13:16

PALS next?

StarlightMcKenzie · 11/09/2012 13:17

So she's expected to break the law for her own health?

StarlightMcKenzie · 11/09/2012 13:21

Coff, would you be willing to put this or a link onto the main board?

Thumbelina46 · 11/09/2012 13:29

Thats not a bad idea actually Star-there will be a lot of traffic there later! It certainly wont do any harm Coff33-be interesting to see what everyone else thinks of this ludicrous situationShock.Hang in there pet!

imogengladhart · 11/09/2012 13:46

This reply has been deleted

Message withdrawn at poster's request.