Keziah, City, Choc et al support thread

[Keziahhopes]

Hi - found us a new home. Just didn't like the title of my old thread - and have found your support so helpful but would also like this thread to be less egocentric .

Choc -hope cbt assessment goes well.

City - how are you doing?

My physio exercises are helping me, but don't see stroke consultant until beginning of July. Still not had OT assessment, but dont' think will need it by then - just been horrible for dh to do everything for me since Easter. Now more independend - just had my first shower by myself!!

I'm so sorry not to have posted- read your post on the day Keziah and have
been sending best vibes . , but very sleepy ( am lucky is really helpingand stupidly behind with the messages I really , really want to reply to .

Hope you're both OK in this dispiriting weather , which makes me think
of youboth . Hope anxiety eased down Kand your walk with friend sounds gorgeous .

Very impressed to see ds has worked out how to delay having to stop having all this fun - what a pain for you and Dh during Operation Sleep < imagines little chap peeking and giggling >
.
Thinking of you and your DM - absolutely hell ish posiion for you . MIL same abut not challenging hcps or carers and for years totally refused to allow others to . Could it , as with MIL, involve over reliance on your DF's opinion ? Very difficult as illness so affects cognitive reasoning , ablity to assert self etc -
I'm sure you've been trying this , but if your DF won't challenge the hospital and is quite angry at you if you suggest it - apologies if not so - , although it is not right to try to override wishes , would we never ignore our Dh's decision not to call for help in rumbling medical crisis? I know what fun it has been trying to call for help for DM i& MIL n emergency has been , and Dh was once too ill to know needed hospital ... but much easier as NOK to both last 2 . Argh , one time MIL could have died & I still didn't dare defy FIL ... .Sorry if am making it worse - there is nothingyou won't have tried , and they're so lucky to have you .

Am a bit happier this week after meeting up with DM , but really anxious about organisational problems & greatl ack of ability to express myself - a v long running part of the condition for me & means takes forever to write anything with real sentiment . I'm sure we all get that with depression/ anxiety / meds anyway .
How are you doing , Choc ? Been sendig positive vibes to you & dd all week but hope you're not flat out in delayed reaction to everything . I have been so useless at posting atm ...

but -we are all going to get time in garden this summer !We're going to have calm and revitalising times to recover from what has been massive courage and achievement by you two , and lots of progress here
< sends cybergarden fairies to sprinkle sleeping dust on baby D >
Peaceful night to us all , and sorry again xxx

Yes, Yes to time in the garden!!

And watching tennis and Olympics

Hi - I am just hoping the fact dm's referral is not quick that it means it is not too serious. I can't hurry it up, I know that ... I got her getting referred. NHS waits etc. I know I catastrophise everything, and am trying to balance that with wanting the best for dm and not wanting to worry her. Also try to get her to do the best for her health - she doesn't do healthy things etc. Think just need peace about it. She isn't talking to me on the phone right now as I told her to look after herself more (smoking etc!) but will see her in a few weeks.

Right - lots of tennis time this weekend = nice!

Dreadful sinus infection again. Will see consultant in few weeks, when no doubt I will be better! Good to review treatment though.

Did you find out if a local Rainbows group or whatever for dd to join? If she is into God right now do any of the local churches have free holiday clubs running this summer holidays to help with things to occupy her?

I am a bit better after a real wobble 2 weeks ago. That is good, phew!

Keziah good to hear your wobble has receded. Things sound pretty worrying with your dm. If she deteriorates whilst waiting to see the consultant will that not mean being seen sooner? As you say perhaps slow referral means it's not too serious. I hope that is the case.

future I was relieved to read that you're a bit happier after dm visit as I was worried beforehand. Sounds like you've been through the mill. Just wished I'd been around more for support - thank goodness Keziah was up to the job.

I've been trying to post for a few days now but I'm still falling asleep. It's so strange - like I've necked a zopiclone or something. One minute I'm reading or typing and then the next (well seems like the next) I'm waking up confused wondering why the lights are on, why I'm still in my day clothes despite it being 3am etc. I've had respite today as dd was at dm's so hopefully a bit more refreshed than usual especially after impressive lie in this morning .

I haven't looked into Rainbows yet Keziah. The summer holiday club idea is a good one. Thanks for the suggestion. Although I don't suppose we'll get a summer. All this rain is utterly depressing. It doesn't feel real! Is it too much to ask for us all to get in the garden this coming week?!

Sending warm wishes for the week ahead. I will try hard to be around a bit more. Hope you get some relief from the sinus infection K.

Grrr.... now have nasty infection, high temperature - going hot to freezing, on more medications. Feel yuk! And meant to have a staycation this week - the sofa is the furthest I have got. so want to feel better, not worse - might not post for a while as energy to get computer on is hard. Dh looking after ds, but not the week we had planned.

Oh yuck Keziah . That sounds horrendous though I'm relieved that dh is looking after ds. There is nothing worse than feeling sh*t and having to look after a baby. Get through the infection then maybe re-plan your staycation (btw I love this expression!). Remember to drink lots of fluids - fight those bugs! Hope you feel better soon.

Hope you're not suffering as well future. Sending hugs to you both xx

Oh ((((((Keziah ))))) , I know you were really looking forward to Dh's time off . Sounds awful- every positive thought , and thanks for saying you might not be around . You must have been extra rundown by huge efforts with wakeful baby son < cyberaunties ask ds to play peekaboo >

((((((Choc)))))at this fatigue - please do keep a diary - I know v difficult whaen so tired a lot of the time ) . Dr city does want to keep an eye out for any physical issues apart from the vitamin deficiency - btw , have you had any alternative formulation to try ? < nosey >Have you had any dry weather at all to make life more enjoyable ? Please don't say rain stopped only while you were in group ! ( you may have been too tired to go ) .

So sorry to not have been around for days 7 not to have replied to your reply , Keziah, thanks - pc froze again & had painless migraine which I was dozing off - thought would be back quicker & will dictate posts to Dh to send from work if happen again < spouse looks terrified >

Oh misery Keziah , having your DM not speak for a while to try to put you off your ( very restrained , by the sounds of it ) urgings to try to stop such a worrying habit as smoking ... not comparable , but my DM took up smoking again in her 6os and would chain smoke till she shook to try to calm down- but finally gave up a couple of years ago . She still has no understanding of why not good to be smoking in your 7os... do you two find your Mum , aunties all say " so many scare stories we don't know what to believe , so "everything in moderation and lots of wine " ?

Your Mum is so lucky with everything you do , & yes it may be very good sign that condition not considered urgent , and agree with Choc that DM's doctor can ask for referral to be changed to urgent if becomes obvious it's necessary < fingers crossed not >

Thank you both so much for support & heartfelt wish for peace whatever happens . I know how elusive that can be these situations - some Mn threads very helpful with that . I dostill need to find much more specific counselling for DM ,who doesn't want GP to know / refer(I know).

Right , Dh needs making a fuss of as evil decisive meeting at work today & he tries so hard to not bring the stress home < looks up at cleaning / laundry / dinner mountains & twitches nose hopefully >

< hopes baby son and Daddy enjoy time together whilst Mummy rests & nasty medications work quickly>

< waves to Choc and Kiah and sends healing and rain- stopping vibes > xxx

- I meant Keziah there !

Good to "see" you future. I'm not sure I know what a painfree migraine is!

... do you two find your Mum , aunties all say " so many scare stories we don't know what to believe , so "everything in moderation and lots of wine " ?

No future that sounds like me My mum lurches from fad to fad, especially when it's about health, food and exercise, lol!!
Rain definitely sucks -was weeding in the rain earlier. That said rain is the least of my worries. Spent another few hours at a&e (at this rate I'll be on first name basis with all the staff!). No harm - just a fever due to probable viral infection (I think I over-reacted because she slipped down the stairs before going to bed then woke up around 5am boiling hot & complaining of feeling ill and I put 2 & 2 together and got 5 thinking the two were related. Hospital doc says it's just coincidence but she was lovely not making me feel like I'd wasted their time.) So am very sleepy having lost a good chunk of sleep last night. I'm hopeful for a rapid recovery and peaceful weekend. Think dd on the mend already as has started being lippy again . Hope your infection Keziah is waning (or at least not getting any worse). Healing vibes all round

Feeling better - will post more later x

Oh nooooooo(((((((Choc ))))))), thank gods dd not harmed by fall - hope she'sll soon be rid of feverish virus . Of course the a&e staff weren't surprised you were vigilant when that had just happened < awards whole hoard of medals for courage > How on earth do you keep calm & reassuring for dc when feeling so worried .

YAAAAAAAAAAAAAAAAAAAAAYY at you feeling better, Keziah !!!!! Very relieved as sounds v painul & as though yu've been laid flat < helplessly puts out pot of soothig herbal tea > Hope energy returns soon - lease don't push yourself before ready ( idiotic thing to say to mother of an infant )

Phew , been much quieter week here , DM doing OK & great kindnesses from friends but lots of home things to do , inspection coming up and I'm asleeeeeeep all the time
Dh time off next week and I hope he won't spend it doing house & garden chores like last year -will hope for nice quiet week

< tuts at Choc and pinches cake , in moderation of course > Oh no , I hope your DM isn't too out there with fads , and not urging same on you . Am quite hardcore about good diet etc , just can't practise it[grein]

Yes , the loss of almost all pain from migraines has been a miraculou ssymptom of my h condition for about 8 years- just amazing & hope holds .. Sorry yours
very much aren't painless- there are good posts in Health about it

Wishing you a nice weekend to help you forget nasty days of illness , Keziah
Hope all have some dry weather today- get well soon Choc's dd --and
less lip to your Mum young lady --xxx

Choc sorry you had another trip to a+e - these children do worry us! Glad all is ok for you all.

Well, am feeling much better but cross not been able to do what I had looked forward to. Few frustrating symptoms still here, but avoided iv antiobiotics so that is good! Feeding ds been hard, had to go back to mixed feeding with bottles and I am still doing that - not sure how milk supply affected right now. Dipped low mentally as well, often for me the two things are linked - so got meeting next week to hopefully go over that and so on. Feeling behind with jobs etc. Got family event to finish organising. Rain not helping, as sunshine makes me feel better and can't spend time in garden easily with rain!

hope lovely time with dh future and a mix of catching up on jobs and time doing what you both wish for!

Ah sounds like Friday the 13th hasn't been a horror at all . Glad you're on the mend Keziah (phew about avoiding iv antibiotics) and that your DM is doing ok future. Dd much better but I kept her off school for another day I really didn't want to as she hasn't been sleeping well. I don't know how I manage to stay calm at all future. I think adrenalin but afterwards is usually when I get wobbly. Will be watching out for it over next few days as mood tends to plummet.

Sounds like we're all busy organising and/or trying to reign in the chaos . I managed to get out in the garden today (in the sun, not in the rain like yesterday!) so that's been nice break. Fingers crossed for some sun coming your ways.

future I'm pleased to hear that you're sleeping loads. Your body obviously telling you it needs it. The chores canwait and I truly hope that you and dh manage to ignore them during his time off next week. It'd be good for you two to chill out after all the recent stresses. Good luck with the organising Keziah. So very impressed you manage to do all this (andthat ds is a long time away from having to worry you too much )

< waves to Choc & Keziah >
Phew , was worried you'd have to have IV anti -bs K and hospital not very baby friendly - how traumatic for you to have that worry ( and I didn't realised you were still exclusively bf - sorry not possible when ill , but great achievement < patronising >.

Thank you for lovely wishes for dh & me Choc & hope dd feels better &
you don't get huge crash in mood after the events of ythe week . Yaaaaay time outdoors

Keziah , just incredible what you are doing -hope event will be brilliant but it doesn't have to be , to be amazingly special < probably not thinking of the correct event >

sending good vibes , & extra sleeping dust for the dc xxx

PS trying to reign in the chaos is so right, Choc

future event is a baby event - though lots can't come! Just ordered a beautiful clay dough top for the cake I need to make. Making it on the theme of ds's middle name :-) so lots of animals!! Never made a big cake before - might be interesting!

Ds is refusing to nap today - great!! Time to try again.... Went round lovely gardens of a historic building today before rain came!

Yes, I managed at 3mths to stop all bottles -was so proud of self. He is down to 1 bottle a day now. I really thought I would need iv drugs also, but thankfully lots of oral antibiotics and bed rest worked. going to see consultant about my infections in a few weeks, perhaps change my prophylactic.

Hope lovely last week of school for your dd choc. Hope those wobbles stay away.

Aaaaaaah I thought that would be the special occasion , Keziah the cake topper sounds gorgeous ! Love the theme !!! Good grief at you making the cake yourself < awe>.
Sorry some guests can't be there , a shame , but I notice people are mamnag
oing far fewer special occasions now time are hard plus of of course it's the summer holidays but what day could be more memorable than that of your miracle baby

Just amazed you 've achieved the bfing I would be more than proud if were me - I bet I wouldn't even have tried tbh , much as I would have wanted to - must have been v tiring but so good for baby son .

Relieved to hear your consultant will be reviewing preventatives - you must be nervous about the germiness of having ds mixing with lots of other little ones dc
Hope ds sleeping better soon- sounds as though operation sleep is bearing fruit
How is dd feeling , Choc ? Hope shes sleeping normally now , & you've ahd a decent rest . Above all I hope you won't have had too much of a crash in mood as you might expect

Yum , historic gardens is one of my most craved-for outings- open air and gracious views
.
Ooooh , is the weather going to be drying out a bit now ?-We want some nice loafy outdoor time - recently a light drizzle has seemed blissful compared to steely downpours ...lovely weekend allxxx

FINgewrs crossed for that anmd Keziah's cake

Wow Keziah!! < more awe from Choc >. I'm speechless about you making big cake (I'd be incredibly anxiouw). Having not done a christening I can only imagine that christenings are like weddings! It's amazing you can manage all this. And bfing too. Like future I hadn't realised you were still bfing. That's a huge achievement in itself even without the complications. Isn't there some scarily low figure of how many mothers want to bf but haven't been able to continue?

Dd much better thank you (still far too much being naughty though). Went out for the first time in 4 days - well except for the a&e trip - as she was climbing the walls. Bike ride, football, tennis and gymnastics did the trick. She was asleep within minutes of hitting her pillow . Oooh was it the sleeping dust future ? Hope ds can't sense something 'big' is going to happen and refusing to sleep Keziah. I'd say dd is sleeping normally now but this also means she's sleeping less hours so haven't had much chance to rest (though she did watch Charlie & Lola dvd without me this morning and let me have a lie in).

Hope we all have a good week ahead. A little more sun and little less rain would help, lol!!!

Had tough week - dm went into hospital at weekend, 2hrs drive to hospital, then back again. Go again tomorrow. Awaiting test results to see if anything more serious than what we know already .... so guess what ds decided to not have any nap time today, wanted extra feeds... am shattered.

(((((((Keziah))))))) sending loads of love and prayers .
Sorry baby ds had no naps at all , dear god what a hard time . The only comfort while you wait might be that they are so much more thorough with inpatients .
Please don't try to make that journey at the moment if you can help it - will take a while to get over that infection -if you feel you have to , can you do anything radical to try to rest more ? Wish e could hellp

Sorry not posted , bad stuff with DM but trying not to do anything hasty ... I think positive developments may be underway but also she may be much more unwell with mh problems & memory problems than we'd thought until this year to lovely cyberfriends for support

ningChoc at all the activities dd managed once got outdoors, and hope you got a bit of rest when she was back at school . I think the weather is improving !!

< sprinkles cooling , calming sleeping dust >

Oh no , so sorry to get that wrong Keziah - was shocked at difficult time you are having . Amazing you've already been to see your DM , and worried how hard going tomorrow is on you .
< sends mental images of calming places visited at weekend - sun-filled country churches and deep , clear water >
< awards self medl for prtentiousness >

Important medical tests not done today due to "availability" - grrr... so no more news. Dm is in increasing pain. In hospital, but nothing done and she not making a fuss. Will go Fri and weekend.

Had better day as saw people, had useful therapy session. Next few days are going to be harder, waiting for test results.

[thanksa] to Keziah - so very sorry about tests no being done today What a horrible wait - so sorry your DM in increasing pain and I know how shocking it is when a relative is just not speaking up to staff- I'm sure you have been trying to change that but sending lots of love and prayers

Brilliant you achieved so much today ... the other morning I actually woke up with a startl as had reamt I'd forgotten to say good luck for your next session , which you'd menttioned ( but I didn't manage to as events overtook me )

< waves to Choc > Hope you're feeling not too crashed after last week and have caught up with a bit of restand that dd is not so naughty

< passes round giant bucket for slugs and snails who need rehoming >

Oh Keziah really sorry to hear DM in hospital again . So, so stressful < feel utterly useless here in front of pc >. Just can't seem to think of the right things to say. Is she already on max painrelief (or is it because of her reluctance to speak up to staff that she's suffering worse?). Good timing for your session though. Really hope this helps to keep things ok for you at this hard time.

Omg future and your DM too . So many family health issues on our thread at the moment. Praying for the positive developments to materialise.

And no, I'm not crashed and haven't caught up on sleep. I shoved dd back to school yesterday (she's still not eating normally and looks skinnier) - went to one group today which was lovely after the intensity of dd last few days. I'm actually feeling rather good at the moment < choc touches wood quick! >. Hoping it lasts a while longer.

< Welcomes bucket with open arms - I don't have many slugs but snails are out in force. Oh and any ideas for getting rid of funghi/mushrooms from my lawn? I've never seen anything like it in my decade here! Yuck! >

Sending warm wishes to you both. future hope you are able to enjoy time with dh on his week off. xx