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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think I’m autistic, aren’t I?

65 replies

Youcanonlyask · 24/12/2023 22:23

Siblings diagnosed, one child diagnosed. Always been ‘quirky’ grew up in terrible household so always assumed my maladjustment and awkwardness was down to that. Always been introverted, gifted at art and certain things but so socially awkward that I never really persevered at them, always just hovered on the periphery of a social group. Felt violated if anyone really got close and tried to become an intimate friend. Academically gifted, able to function in society and make things happen. Intuitive and devoted mother, anxious, not always super organised but very loving, enjoyed going ‘into their world’ and was very good at playing and imagining and playing with them. But struggled a bit with structure despite meeting their needs well. Always been able to lose myself down Rabbit holes, especially with autistic child, we have been on many adventures together and spent many hours on projects together. A bit childlike in terms of priorities, installed huge sandpit and swimming pool before properly decorating or furnishing our home. Have days when I feel robotic and do things but dont feel present. Very big list of sensory ‘icks’. I had a wobbler earlier because I was wrapping gifts and the paper was awful, DH was bemused, I couldn’t explain why the process was making me feel ill but I couldn’t cope and threw a ball of paper at him.

we went to a local shop and he said ‘ chose some paper babe, this one looks like it sounds autism friendly’ he meant it kindly. We do lots of things autism friendly for one of our children.
it was actually better. I’ve done all the wrapping now and feel calm. The paper was less rustly and a different texture. I feel like he’s just said something we already knew, I’m also confused as to why I’m so long in tooth for someone to actually say this. Thoughts welcome.

OP posts:
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randomusername2020 · 25/12/2023 18:32

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randomusername2020 · 25/12/2023 18:28

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wudubelieveit · 25/12/2023 17:06

@randomusername2020 i agree entirely, sometimes these threads are suggesting that an ASD diagnosis is defined & boundaried in ways that they can never be, because ultimately it relies on a clinician's opinion rather than fact . In an old-fashioned, male-dominated society many of the people currently getting ASD diagnosis would never be actually diagnosed because certain traits are so common amongst men; as our society has come to value soft skills more the balance has shifted, hence also why perhaps more ASD women are being diagnosed. We previously just accepted certain personalities or behaviours as part of the range of "normal" in human society, although perhaps that person may be labelled eccentric. Currently ASD & ADHD diagnosis both come down to whether or not those traits are problematic enough to cause that person difficulties in functioning. The genetics within families can be obvious producing both people who have received a diagnosis and people who have different numbers of traits (mine included where both ADHD and ASD are in different families members with a number of us a bit "this and that" who'd never receive a diagnosis).

T1cTacT03 · 25/12/2023 16:36

Well the first one was clearly incompetent and has no understanding of adhd so not sure what your point is .

randomusername2020 · 25/12/2023 16:16

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Startyabastard · 25/12/2023 16:10

That sounds really tough, OP.
I have sensory processing disorder, but luckily for me, noises aren't too loud or anything, it's just an energy zapper. Be kind and tolerant to yourself xxx

Mabelface · 25/12/2023 16:03

OP - you sound like me. Diagnosed with autism and ADHD in very recent years. I'm in my 50s. The absolute validation I got was mind-blowing. I've become much kinder to myself and as a result, I no longer mask at all. I've had no negativity for this either.

I'm now able to live the life I need to, rather than the one I thought I should. That's big.

ntmdino · 25/12/2023 15:36

EilonwyWithRedGoldHair · 25/12/2023 11:39

It's an interesting question though, as the line has to be drawn somewhere.

DS has been diagnosed, and I see so much of myself in him - it was suggested I be referred for assessment so I filled in the form. I suspect I won't meet the threshold for diagnosis but who knows...

That's the problem with trying to diagnose a physical difference in the brain through clinical means.

However, there is a line - and it's defined in the DSM V. If you want to avoid the heavily psychiatry-speak definition in the DSM, Sam has a fantastic video here explaining it (this is also a great way for those on the "Am I/aren't I?" journey to get a bit of clarity):

Autism diagnosis criteria: explained (DSM-5)

The autism diagnosis criteria are written for professional use and are therefore shrouded in mysterious and somewhat opaque language. In this video, I'm atte...

https://www.youtube.com/watch?v=1yva4RZW_s0

WorriedMum231 · 25/12/2023 11:53

@EilonwyWithRedGoldHair thats what I’m saying. It’s such a wide spectrum it’s impossible not to identify with at least one or two (but more likely a few) traits/symptoms/habits/ train of thoughts. It obviously doesn’t mean everyone will be diagnosed.

WorriedMum231 · 25/12/2023 11:50

TheShellBeach · 25/12/2023 10:17

I am also autistic and you have misunderstood.

Not everyone has traits of autism.

🤦‍♀️

EilonwyWithRedGoldHair · 25/12/2023 11:39

WorriedMum231 · 24/12/2023 23:13

I feel like you’re putting words in my mouth. I didn’t say everyone was on the spectrum, i said, like you did, everyone has traits.

I know how the spectrum works, I’m Autistic. I feel a bit patronised by your response if I’m honest.

It's an interesting question though, as the line has to be drawn somewhere.

DS has been diagnosed, and I see so much of myself in him - it was suggested I be referred for assessment so I filled in the form. I suspect I won't meet the threshold for diagnosis but who knows...

HarrumphryBogart · 25/12/2023 10:46

yesyouareyouare · 24/12/2023 23:20

There are a specific triad of impairments with autism. Typically, these are social interaction, communication and imagination. Usually autistic people have real difficulties with imagination. Just being a bit 'childlike' doesn't mean you're autistic at all.

This is a common misconception. Because autistic people have difficulties communicating their experiences to others it is assumed they lack imagination, it's quite the opposite. The autism community is full of creatives! You're confusing social imagination with imagination.

TheShellBeach · 25/12/2023 10:19

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Autism is a diagnosis, not a label.

OP you do sound to me like someone who may well be autistic.

TheShellBeach · 25/12/2023 10:17

WorriedMum231 · 24/12/2023 23:13

I feel like you’re putting words in my mouth. I didn’t say everyone was on the spectrum, i said, like you did, everyone has traits.

I know how the spectrum works, I’m Autistic. I feel a bit patronised by your response if I’m honest.

I am also autistic and you have misunderstood.

Not everyone has traits of autism.

ChateauDuMont · 25/12/2023 10:06

This reply has been deleted

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CosmoChops · 25/12/2023 09:30

OP, it might be worth asking for this to be moved to the board for neurodivergent mumsnetters (under the special needs section) or posting in there too..... AIBU can be a brutal place and by no means everybody here is well-informed about autism, mirroring the real world of course.... there are still a vast number of stereotypes about.

I was diagnosed as an adult after seeing strong traits in my children and realising it so clearly came from me (and also explained so much of my life.....) One child has subsequently been diagnosed (which has made a massive difference for them already due to a shift in attitude by school staff and a willingness to finally put more support in place....) I suspect my second child will eventually be diagnosed as well.

Diagnosis has had a huge positive impact for me personally. Since childhood I have internalised so many negative messages about myself, and I couldn't understand the overwhelm, the meltdowns, the sensory struggles, the social awkwardness, the all-consuming obsessions, the struggles with change and so many seemingly very simple things when I am so high-achieving in other areas.... just being able to understand why has already been so helpful and has vastly improved my mental wellbeing (and probably saved my marriage!)

I hope that you are able to gain similar understanding of yourself by exploring it further..... Merry Christmas!

RSintes · 25/12/2023 09:13

Hi @Youcanonlyask - I could have written your post word for word and understand completely.

Please ignore the bitching going on from others on your post.

I've just been diagnosed aged 47 and it's been really life changing and affirming. I had to go private as the GP was one of the "but you speak in long sentences and are so eloquent so you can't possibly be autistic" types.

It's taken 6 years to get here but it's been worth it. I have literally no friends, no clue about social norms, totally overshare, mask extensively, melt down and shut down over sensory things, am very academic and prefer my own company to that of others, except for family. As my whole family are like this it took a while (and several broken relationships and friendships) to realise that this wasn't actually normal, although it was normal to me.

Please explore options for diagnosis and I hope you can get some answers and some peace of mind.

Sending peace and love for Christmas
💐💐

WorriedMum231 · 25/12/2023 08:47

TheCountessofFitzdotterel · 25/12/2023 08:43

I know how it works thanks. Please don’t patronise me. I have been reading and thinking about this for a long time.

And I’ve been living it. Patronising wasn’t intentional, sorry you feel that way. Happy to answer any questions if you want to learn.

TheCountessofFitzdotterel · 25/12/2023 08:43

WorriedMum231 · 24/12/2023 22:56

Absolutely everyone does. It’s an incredibly wide spectrum and diagnosis happens when you present overwhelmingly with a lot of the spectrum.

For example stimming - biting your nails is stimming. There’s loads more, research it if you fancy.

I know how it works thanks. Please don’t patronise me. I have been reading and thinking about this for a long time.

Calliopespa · 25/12/2023 08:41

blackfluffycat · 25/12/2023 07:54

@Calliopespa

"Thoughtless comments"
"Saying daft things"

Oh the irony

… apart from you, no-one has on here. It’s a different calibre of thread.

Calliopespa · 25/12/2023 08:39

blackfluffycat · 25/12/2023 07:54

@Calliopespa

"Thoughtless comments"
"Saying daft things"

Oh the irony

Ah here they come! Have a look at the other threads. There’s one about a woman thinking she’s getting a marriage proposal today and half of them are rubbishing the proposal style. It IS daft and thoughtless. You belong over there.

Hairychristmas · 25/12/2023 08:38

PostItInABook · 24/12/2023 23:10

You are on the spectrum because you’re autistic.
You are not on the spectrum if you are not autistic.

People may have one or two similar traits but they are not on the autistic spectrum.

The autism spectrum doesn’t go from a little bit to a lot like a linear scale. It is more like the colour spectrum.

Think of it like jigsaw pieces. Everyone might have a few pieces of the jigsaw but autistic people will have more than 75 pieces or something and you’re not on the spectrum unless you have that many pieces.

What about the people who have say 70 pieces though? Or even 60? I feel like I'm in that category (also have diagnosed children and close family members including a parent). I'm not really "normal" (allistic) but I'm not sure I'd quite reach the autism threshold either. I don't really fit in anywhere.

T1cTacT03 · 25/12/2023 08:32

Lindy2
Children are diagnosed under different services to adults. Adults who have gone undiagnosed for years are just as deserving of a diagnosis..

yesyouareyouare · Yesterday 23:20
No autistsitic people do not have real difficulties with imagination. Another stereotype inaccuracy like a lack of empathy.

Go and get a diagnosis op. It’s life changing. Difficulties increase as you get older in my experience. I got mine at 55. All 3 of my children are autistic. We all present very differently.

Baravia · 25/12/2023 08:31

Lindy2 · 25/12/2023 07:41

You sound like you are generally coping well. You have a supportive partner, you know what you like and don't like and manage your life successfully around that.

Even if you are on the spectrum I'd say save the diagnosis for those that really need it and desperately need professional support. My DD is awaiting diagnosis. We are getting it to try to get her better support and understanding. She is overwhelmed, spends days in her bed, misses more than 50% of school due to not being able to cope with school and the education system, is failing all her GCSEs, self harms and has no friends.

There's over a 2 year wait for diagnosis and that's even after being prioritised. Diagnosis for those that are managing well are pretty much pointless and just consume resources that could be used more appropriately.

We have separate mental health services for children and adults (in the UK anyway) so I would assume the waiting lists for diagnosis are also separate. I’m autistic.

GlowingBear · 25/12/2023 08:21

OP, I wouldn’t bother going for a diagnosis if the only reason is you feel you ‘should’ go. You don’t have to do anything.

However, if you feel would benefit from understanding this part of yourself better then go for it. Ignore the poster who has implied you’d be taking up resources; you are just as worthy of a diagnosis as anyone else. It may bring you closure, a sense of clarity, coping skills and strategies etc. It can be hard to apply these unless you know for certain what it is you are dealing with.

Incidentally, quite a bit of what you’ve described reminds me of a good friend of mine (except she got a giant slide installed whilst ignoring her ageing kitchen set up). She has an ADHD diagnosis and lack of structure is her one big regret with her now grown kids (even though she’s an excellent mum and they are lovely humans). It might be worth exploring, there is a lot of overlap of symptoms and co morbidity

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