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Scared for endoscopy tomorow

44 replies

KitKatrunchie · 11/11/2023 15:23

Iv had coughing and drop on throat for years just lately I’m coughing so much I choke particularly after eating but sometimes got no reason I cough so much my bones ache
I’m terrified it’s cancer and I just want to not go

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LK2021 · 12/11/2023 15:48

My Dad has terminal oesophageal cancer that was only picked up due to low iron (with no other symptoms, not even swallowing issues) and was sent for both bottom and top cameras and he was told instantly that he had cancer. I have Barretts (pre cancerous condition that can turn into cancer ) and Eosinophilic esophagitis were food gets stuck in the oesophagus and constantly choke. Mine got so bad that I had to have a camera (with balloon stretch) under GA as I had such a narrowing they couldn’t get camera down.
Please if you have any symptoms that you are worried about, just get the camera done. I understand how terrifying it is but please try and get someone to be with your children. The sedation isn’t as extreme as they make it out to be. I’m glad that you going to get someone to stay with you.
Good luck x

KitKatrunchie · 12/11/2023 15:44

i feel like now iv had a throat spray I know what to expect and my friend said he can come with me it’s just the staying overnight but

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TheShellBeach · 12/11/2023 15:37

KitKatrunchie · 12/11/2023 15:35

I don’t see how I can as I really do t have anyone to spend 24 hours with me and I’m a single mum

now iv had the throat spray I feel like I know what will happen a bit more

No friends?
Your relatives?
A school mum?

TheShellBeach · 12/11/2023 15:36

Ask to have it done under GA.
It's not impossible to arrange, but you'll need someone to get you and stay with you afterwards.

Spirro · 12/11/2023 15:36

You can have it under GA but the waiting list is ridiculous, like a year or something. If you’re so panicky that you can’t have an essential medical procedure then perhaps you should be looking to address your panic and anxiety first. If you’re that wound up that’s probably what’s causing your health issues.

KitKatrunchie · 12/11/2023 15:35

I don’t see how I can as I really do t have anyone to spend 24 hours with me and I’m a single mum

now iv had the throat spray I feel like I know what will happen a bit more

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TheShellBeach · 12/11/2023 15:34

KitKatrunchie · 12/11/2023 15:32

Unfortunately I couldn’t go through with it I had a panic attack and ripped the tube out

I'm sorry to hear that.
You need to rebook it, plan to have sedation and arrange someone to come and get you

Some years ago I had one under GA. You may need to do this if you're really afraid.

KitKatrunchie · 12/11/2023 15:33

Thank you @Spirro that helps
I haven’t coughed all day as I haven’t eaten

I’m just terrified of this procedure I didn’t have it done back in 2018 for the same reason I can’t keep a tube down my throat he is saying I can only do it with full sedation as I could damage myself

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KitKatrunchie · 12/11/2023 15:32

Unfortunately I couldn’t go through with it I had a panic attack and ripped the tube out

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Valerianandfoxglovesoup · 12/11/2023 15:08

@Spirro , exactly what I wanted to say without the fluff 😀

AuntyMabelandPippin · 12/11/2023 15:00

They found out I had Eosinophilic esophagitis due to my colonscopy. It was a relief actually, eight weeks of treatment and it's not come back (so far).

Fingers crossed you're all done and it's nothing to worry about.

Spirro · 12/11/2023 14:51

If it was cancer you’d be dead by now. It doesn’t sound like cancer at all. Coughing is more a symptom of lung cancer anyway, not stomach cancer. It’s probably acid reflux or anxiety. Or acid reflux caused by anxiety.

I had endoscopy without sedation a few months ago and it was unpleasant but it only lasted five minutes and it wasn’t that bad. They found nothing except acid reflux.

Valerianandfoxglovesoup · 12/11/2023 14:50

Units work 7 days now, short staffed and underfunded, they bring teams from other areas or use on call surgical staff to clear the waiting lists

KitKatrunchie · 12/11/2023 14:47

Thank you! Yes a Sunday

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TheShellBeach · 12/11/2023 14:47

KitKatrunchie · 12/11/2023 14:21

I’m here now so fingers crossed! I’m just telling myself it will be over within ten mins

You're having it done on a Sunday?

Valerianandfoxglovesoup · 12/11/2023 14:46

Here rooting for you! You can do it xxx

KitKatrunchie · 12/11/2023 14:21

I’m here now so fingers crossed! I’m just telling myself it will be over within ten mins

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Pushkinini · 12/11/2023 14:18

KitKatrunchie · 12/11/2023 13:19

Can I ask what was the outcome of yours?

I have a genetic condition which raises my risk of certain cancers; stomach, bowel amongst others so I have biannual endoscopies and colonoscopies at the same time. I was worried beforehand, but the staff are so lovely and put you at ease. Honestly, it's better to get it over and done with.

Newthingsahead · 12/11/2023 14:08

This doesn't sound like cancer to me
My dad died from it last year and he went from First symptoms (reflux) to dying in 3 months.

You would have lost weight rather than gained to and you just would know about it by now if it was

You definitely need to go though however hard it is for a diagnosis so they can treat what ever it is :)
It will soon be over which will feel like such a relief. I always focus on that with medical procedures

Mouselemur · 12/11/2023 14:05

I had an endoscopy a few months ago. My symptoms were a feeling of something stuck in throat, problems swallowing, reflux etc. I’d also had some other health problems which had been going on for a while.
I was very scared it was sinister, but needed to know/ rule out things.
I had it without sedation-just the throat spray anaesthetic. There was a very brief moment of ( I’m talking 2 - 3 seconds) where I thought I wouldn’t be able to do it, but after that it was ok, slightly uncomfortable but not painful. The nurse that was supporting the doctors carrying out the procedure was excellent, and talked me through the whole thing and kept me calm. Listen to their instructions and just focus on what they are telling you. I had a trainee doctor doing the procedure ( under consultant instruction) and he was also excellent.
I had the results there and then- all clear fortunately.
I never did get an actual diagnosis for my problem, but anxiety was suggested as a potential cause.
I believe it was a combination of food intolerances causing silent reflux, weight gain( I’ve managed to lose a bit of weight now) several courses of antibiotics which messed up my digestive system, and anxiety.
After some lifestyle changes, probiotics, diet adjustments I’ve made a huge improvement.
good luck x

KitKatrunchie · 12/11/2023 13:46

Thank you that has helped! I’m quite glad I can’t have sedation now!
that’s good to know about oesophageal cancer

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Valerianandfoxglovesoup · 12/11/2023 13:41

If it was oesophageal cancer, you would have got to a point where you couldn't swallow within months, let alone years. As others said, much more likely to be reflux or perhaps sphincter dysfunction. But don't take it lightly, some reflux can slightly increase the risk of cancer and must be treated. It might just be a good old fashioned hiatus hernia seeing as it hasn't progressed into anything actute. Good luck, try not to worry, have something like a TV show you know really well in your head to focus on and feel free to message if you need support. It will be ok. These diagnostic lists were our quick easy days when we finished on time, in and out and almost always ruling out the nasties. X

Valerianandfoxglovesoup · 12/11/2023 13:36

Just to add, the sedation, Midazolam, doesn't actually make you sleep, it just makes you forget the procedure. Some people are snoozy and relaxed, others are like bad drunks, it's not like anaesthetics. I used to be a bit freaked out by the fact someone was flashing us one minute and then 20 minutes later asking when they would have the sedation, total and utter memory loss. It lowers inhibitions and is an all round horrid drug, also used for terrible things illegally. If you choose to have it, always have someone with you for a good few hours and don't drink alcohol.

KitKatrunchie · 12/11/2023 13:19

Can I ask what was the outcome of yours?

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Pushkinini · 12/11/2023 13:18

You know you must go. Statistically it's far more likely to be something treatable. Then you'll know and be able to get on with life. I had one 18 months ago and it was very quick. I had the throat spray (I opted for sedation, but it was only very mild) and it was all done in a matter of minutes.