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Help needed with shingles

9 replies

Cananyonehelpplease · 26/08/2023 14:58

Can anyone help? I am having my 4th outbreak of shingles over the last 3 years. The last 3 outbreaks I went to doctors and got medication which did not help. I am to young to be given the shingles injection:( it's so painful and all in my left hand side..all the way from my scalp to my chest..I feel as though my doctor is not taking it seriously...in floods of tears as I write this..even moving my head is so painful...even cool water on the spots is agony. Its Saturday night and cant phone the doctors until Tuesday as a bank holiday. I had chicken pocks as a young adult (caught it off my kids and was so covered in spots the doctor took photos to show colleagues etc) I am at my wits ends as what to do :( has anyone had this please xx

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LakieLady · 26/08/2023 17:30

I had repeated attacks of shingles for a few years after I had chicken pox, and I feel for you. It's bloody painful. I was prescribed acyclovir each time, and it really cleared it up quickly.

The third time it happened, the GP prescribed me an extra course of acyclovir, so that I could start taking it at the first signs of an attack, and the next one was the last one I had for years.

That was nearly 30 years ago, but completely out of the blue I had another attack, albeit nowhere near as bad, just a couple of weeks ago. I did an e-consult, the GP rang me a couple of hours later, sent an electronic prescription to the chemist, and I started acyclovir almost immediately.

I'm old enough to have the vaccine, so will get it later in the autumn, but acyclovir sorts it really quickly.

WallabyWay · 26/08/2023 17:21

You need antivirals ASAP. Antihistamines can help too. I hope that you feel better soon.

Curseofthenation · 26/08/2023 17:19

You poor thing. I was terribly ill with shingles when I was 29 and I was sofa-bound for over 2 weeks. I would honestly choose to give birth over having it again. You have my sympathies. Codine seemed to be the only pain meds that helped a little.

HateLongCovid · 26/08/2023 17:08

My daughter had shingles and like yourself she couldn't move without being in severe pain. It helped marginally to wear 100 % loose cotton next to her skin. Also I managed to buy a high % lidnocaine gel from Boots which did give some relief . I think it was higher than you are supposed to use, but at the time she just needed pain relief so used it. I think it was Confused 10%

Mrsjayy · 26/08/2023 17:04

A pharmacy can pre .scribe antivirals some of the supermarket ones will be open or you can ring 111 you might get an out of hours appointment

Redannie118 · 26/08/2023 17:02

Ok first of all doctors do not take seriously the impact that shingles has on your life. Ring 111 and see if you can get a GP app or walk in app today. You can get the antivrals by IV if its bad enough.

Pain relief is ESSENTIAL. Ordinary pain killers are useless, you need a nerve blocker like amytriptiline or ( even better) gabapentin. If you can, take a nerve blocker with an opiod like codine or co cocodamol. High doses of antihistamines. If you have a bath, wrap some porridge oats in a cotton or muslin cloth and hang from the bath tap. Run a warm bath with the porridge oats and soak for as long as you can, it really really helps. If you dont have a bath hang it from a shower head.

Tight clothing or even bandages to stop the scabs rubbing or being exposed to air also really helps.

If you go to the hospital/GP, tell them you want antiviral and nerve blocker painkillers as chances are they will not offer them, so you may have to get a bit arsey to get what you need.

You have my utmost sympathy OP. I had shingles 2 years ago that lasted 3 months and covered half my body. I had to demand all the meds/painkillers ect as doctors couldnt give a toss. Its utterly soul destroying how painfull it is. I hope you feel better soon.

cptartapp · 26/08/2023 16:47

Ask for referral to an immunologist.

MaverickSnoopy · 26/08/2023 16:38

Pretty sure my friend used this with shingles www.boots.com/poxclin-coolmousse-10076517. It says children with chickenpox but she said it caused immense relief. My husband used Piriton and said it gave him relief too. I would definitely call 111 though.

dementedpixie · 26/08/2023 16:12

Call 111 and you might be able to get antivirals/medication to help with pain