Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Airline cannot accommodate disabled toddler

130 replies

ChangingTheNarative · 22/08/2023 15:49

Hi all,

I was wondering if anyone had any advice, I don't know if anyone will but it's always worth asking.

My son was diagnosed with a genetic disorder back in March (developmental delay, mild intellectual disability, autism and adhd) and he's currently on the ASD pathway.

We booked the long haul holiday in June and at that time we didn't know anything about his condition really or how it will affect him.

It's clear now he'll need a harness on the plane which the airline can provide but they have to be put on the backseats however they are booked so we can't have them which is fair enough.

We cannot take a forward facing car seat on and he won't fit in a rear facing one as he's the size of a 4 year old so they suggested a specialist restraint which is £3k (we can't pay this) and that's the only way around it.

I'm at a loss and don't really know what to do or what I can suggest to them.

I wanted to try and treat my son as normal as possible and take him on holiday but I'm thinking my only option may be to cancel?

I thought I'd ask here before I cancelled it though in case anyone has any ideas?

Im not sure what exactly but worth asking

Thank you so much.

OP posts:
Thread gallery
6
QueenBitch666 · 23/08/2023 03:26

Nothing to add apart from check in to assistance as you get to the airport. Say you need assistance straight through ( not just to the aircraft ) and they'll help you fast track through security. I travel with my disabled mum and an extra pair of hands through security is a godsend.
And I hope you all have a lovely holiday Flowers

OvertakenByLego · 23/08/2023 02:10

needtonamechangeforthis1 · 22/08/2023 23:21

@OvertakenByLego how do you fit the special tomato to the airline seat if you don't strap it down?

Just interested for future travel!!

The special tomato seat stays stable without strapping it to the back of the seat when you pull the base out slightly away from the back of the seat so the special tomato seat is in recline slightly even though the plane seat isn’t reclined, then let gravity do the work with DC sat in the seat. You use the plane seatbelt too. I’m not explaining this very well, but I will PM you where you can find more information including photos/videos.

JMSA · 22/08/2023 23:57

So pleased you're sorted, OP. Have a fab holiday when the time comes.

Oh, and you're doing great Smile

needtonamechangeforthis1 · 22/08/2023 23:21

@OvertakenByLego how do you fit the special tomato to the airline seat if you don't strap it down?

Just interested for future travel!!

Loopyloooooo · 22/08/2023 22:48

xyz111 · 22/08/2023 20:30

Op, have you really thought about a long haul flight? The have a ASD child who is 5, and we haven't booked anything yet due to the flight. Imagine putting your child on the sofa for 10 hours and not moving. Is he really going to be able to cope with that without a meltdown? Could this be quite distressing for him?

As a parent to a child with SEN you honestly don't think the OP wouldve thought it through herself already. C'mon.

I'm sure OP know what her and her own child's needs and capabilities are flipping heck.

Marmalade71 · 22/08/2023 22:05

So many arseholes on this thread.

Take a look at yourselves FFS

SunSparkle · 22/08/2023 21:59

the britax eclipse is a forward facing car seat suitable up to 18kg which is flight approved for many airlines. It’s discontinued but plenty available second hand which would be fine for the plane. You need to buy the airplane belt for it though. I’ve also known some people get the Joie Steadi on planes but that’s not specifically CAA approved.

Andylippy1 · 22/08/2023 21:52

I haven't read all the posts however I wondered is it worth asking the consultant who diagnosed your son regarding a suitable harness? One that wouldn't restrict him too much and still allow him movement? Some consultants are good on suitable types of equipment or medical staff in the department or within the child development unit may know? Just an idea.

xyz111 · 22/08/2023 20:30

Op, have you really thought about a long haul flight? The have a ASD child who is 5, and we haven't booked anything yet due to the flight. Imagine putting your child on the sofa for 10 hours and not moving. Is he really going to be able to cope with that without a meltdown? Could this be quite distressing for him?

OvertakenByLego · 22/08/2023 20:27

Ratfinkstinkypink · 22/08/2023 20:18

I didn't realise some airlines allow Special Tomato seats, we have a Firefly but my little one hates it whereas he's comfortable in his Special Tomato, I was thinking of taking him away next summer so that's useful to know, thank you.

Some do. BA don’t allow it or at least didn’t when I last checked. Virgin, Emirates, Jet 2, Oman Air, Ryanair and Qantas definitely do. You can’t put the strap around the seat, but that isn’t a problem, you don’t need to. Tryb4uFly is worth looking at. You can try a special tomato seat on an aeroplane seat there.

Ratfinkstinkypink · 22/08/2023 20:18

OvertakenByLego · 22/08/2023 20:09

Oh I despair too. DS1 uses a special tomato seat or stabilo and they are allowed on some airlines and not on others. It is frustrating.

I didn't realise some airlines allow Special Tomato seats, we have a Firefly but my little one hates it whereas he's comfortable in his Special Tomato, I was thinking of taking him away next summer so that's useful to know, thank you.

OvertakenByLego · 22/08/2023 20:09

PlasticineKing · 22/08/2023 20:01

I hadnt realised they had specific rules on them, thanks for links. I didn’t even think to check when I used ours, as I decided it was an “extra” safety thing that was necessary to us. Technically at the time DD was safe in her own seat, but I didn’t think the lap belt would be effective enough. I get not using them around the emergency exit seats. But they are unobtrusive for other passengers. I’m not arguing with you BTW - I just sometimes despair about health and safety going a bit mad, loads of extra rules. I say that and HSE is my husbands job! I absolutely do get it! But this seems a bit crazy to me. I really feel for the OP.

Oh I despair too. DS1 uses a special tomato seat or stabilo and they are allowed on some airlines and not on others. It is frustrating.

PlasticineKing · 22/08/2023 20:01

OvertakenByLego · 22/08/2023 19:18

That depends on the airline. Virgin state it must be in the last row. BA that it can’t be used on a seat on an emergency exit row or the row either side.

I hadnt realised they had specific rules on them, thanks for links. I didn’t even think to check when I used ours, as I decided it was an “extra” safety thing that was necessary to us. Technically at the time DD was safe in her own seat, but I didn’t think the lap belt would be effective enough. I get not using them around the emergency exit seats. But they are unobtrusive for other passengers. I’m not arguing with you BTW - I just sometimes despair about health and safety going a bit mad, loads of extra rules. I say that and HSE is my husbands job! I absolutely do get it! But this seems a bit crazy to me. I really feel for the OP.

parrotonthesofa · 22/08/2023 19:51

Oh I'm sorry I just read the thread properly and see you already answered my question.
Glad you got it sorted!! X

parrotonthesofa · 22/08/2023 19:50

Hey can I ask (not being goady at all just not understanding) why he needs a harness on the plane? My son has a genetic mutation causing severe autism / developmental delay and intellectual disability. He uses the normal seat belt on the plane. I'm just wondering why this isn't possible? But as I say not being goady at all, just trying to understand your specific situation which is obviously different to mine!
I've felt rather stressed about traveling in the past but it usually turns out better than I feared!
Good luck and I hope you find a solution that works for you.

MolkosTeenageAngst · 22/08/2023 19:46

ChangingTheNarative · 22/08/2023 19:25

I'll buy the CARES harness. Is this the right one? Thank you x

If you don’t want to pay to buy one it looks like you can rent one from here from £15: https://tinyexplorers.co.uk/product/kids-fly-safe-cares-child-airplane-safety-harness/

Kids Fly Safe Cares Child Airplane Safety Harness

kids-fly-safe-cares-child-airplane-safety-harness HIRE

https://tinyexplorers.co.uk/product/kids-fly-safe-cares-child-airplane-safety-harness/

gogomoto · 22/08/2023 19:40

I should add that I didn't want the airline placing restrictions on us which happened to friends, so I preferred to just manage things myself. By 6 she was much more predictable but we found travelling by car and ferry easier (I lived overseas prior hence lots of long haul planes)

gogomoto · 22/08/2023 19:36

Double check the car seat situation because I think it's the opposite, you can only use forward facing seats. Ok mine are adults now but I used forward facing car seats on planes until they outgrew the harnesses, my eldest is autistic. I also never told the airline about her autism nor asked for extra help. All families can bring on compatible seats. The only thing I would note that if you fly into USA or Canada seats must be faa compliant (my graco ones were)

OvertakenByLego · 22/08/2023 19:29

The only approved harness across all airlines is the CARES harness; and that doesn't need to go on the back seats, it can be used on any seat.

That depends on the airline. See my pp, Virgin state it does need to be the last seat.

TropicalTrama · 22/08/2023 19:28

Also for future reference OP, the US based carriers are much more accommodating as they’re not legally allowed to refuse a FAA approved restraint eg the cares harness

ChangingTheNarative · 22/08/2023 19:25

YouveGotAFastCar · 22/08/2023 19:23

The only approved harness across all airlines is the CARES harness; and that doesn't need to go on the back seats, it can be used on any seat. I think whoever has been talking to you at TUI is misinformed; although they're probably trying to help.

The car seat argument is a non-starter; there are no British seats that meet the requirements anyway. You can sometimes get a couple on board; but you run the risk that they'll be checked into the hold as they shouldn't be used on the plane, and taking that risk wouldn't work for your toddler.

I'll buy the CARES harness. Is this the right one? Thank you x

Airline cannot accommodate disabled toddler
OP posts:
ChangingTheNarative · 22/08/2023 19:24

Jk987 · 22/08/2023 19:21

I wonder if there's a charity or other organisation that would lend you one of those £3k restraint harnesses you mentioned? Or rent one to you for a small fee? Surely people don't buy them outright just for an occasional plane journey! It's worth a google.

They do loan them which is great but we travel in October and you have to go to an assessment centre and it's quite long winded and takes awhile so wouldn't be ready for us but it's an amazing thing they do for people who are more prepared and on the ball than I am.

OP posts:
YouveGotAFastCar · 22/08/2023 19:23

The only approved harness across all airlines is the CARES harness; and that doesn't need to go on the back seats, it can be used on any seat. I think whoever has been talking to you at TUI is misinformed; although they're probably trying to help.

The car seat argument is a non-starter; there are no British seats that meet the requirements anyway. You can sometimes get a couple on board; but you run the risk that they'll be checked into the hold as they shouldn't be used on the plane, and taking that risk wouldn't work for your toddler.

Jk987 · 22/08/2023 19:21

I wonder if there's a charity or other organisation that would lend you one of those £3k restraint harnesses you mentioned? Or rent one to you for a small fee? Surely people don't buy them outright just for an occasional plane journey! It's worth a google.

OvertakenByLego · 22/08/2023 19:18

PlasticineKing · 22/08/2023 19:11

A CARES harness goes on any seat and doesn’t affect the person behind. I used one before on an easyJet internal Uk flight. I got one on eBay second hand. It’s definitely an option!

That depends on the airline. Virgin state it must be in the last row. BA that it can’t be used on a seat on an emergency exit row or the row either side.