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Share your dilemmas and get honest opinions from other Mumsnetters.

To ask for melatonin experiences?

64 replies

ronan1 · 16/07/2023 20:43

In particular prescribed to children. Been having absolute hell with my 3.5 year old for about 2/3 months now - every night the same. Extremely hyper at bedtime, not able to relax, can't drift off. Taking hours to get him to sleep.

We've tried a few things, such as no screens before bed and all the usual stuff but nothing works.

We're awaiting an autism diagnosis but I can't go on like this anymore. I have a paediatrician appointment next month so I will be explaining everything then, but are they really likely to do anything to help?

OP posts:
x2boys · 17/07/2023 09:25

its well.worth a try but unfortunately it doesn't work.for all.children ,it never worked for my son but I do know lots of children for whim it did work for .

whatsagoodusername · 17/07/2023 09:09

Melatonin is a godsend. DS1 does not go to sleep without it - his brain doesn't switch off (ASD). Once asleep he's fine, but getting to sleep was a nightmare and stressful for him.

We got some in the US first (available widely, in any pharmacy, often supermarkets - not considered medication, just a supplement), then asked the GP here for it, saying we'd tried it and it worked. They gave us a prescription without any issues.

We still buy in the US (family there, so we go a lot) as it's a fast-acting variety and the GP's is slow-release, and we can get varying amounts. Currently have 1mg, 2mg (slow release from GP) , 2.5mg, 3mg, 5mg in the house! We vary dosage depending on the day.

Cracklecrack · 16/07/2023 22:36

Ps my sons autistic and we went between GP and the clinic where he was diagnosed (but discharged) and we’re told quite simply that they don’t prescribe it but could be different in different areas I guess

Cracklecrack · 16/07/2023 22:35

Can buy melatonin drops online. Work quite well. Have had them myself and they just seem to ease you to sleep x

MargotMargot123 · 16/07/2023 22:28

My daughter's paediatrian wouldn't prescribe it for her as he said it was for children with diagnosed neurological conditions.

But since seeing a sleep neurologist we are just about to get it on prescription. It's not an easy drug to get prescribed, from my daughter's experience. She has a sleep disorder and autism, I thought she would have got it quite easily from her general paed.

whatthefreshhell · 16/07/2023 21:56

Just be aware they do recommend short breaks from it every so often as children can become immune to the effects

quitefranklyabsurd · 16/07/2023 21:44

Our Ed psych suggested it for our dd 10 following an asd diagnosis. It was a game changer. She used to take hours to get to sleep esp if she was worrying about something or a change was on the horizon. Now she’s asleep by half 8 if we time bed time right. Honestly just brilliant.

be wary of sleepy teas if you think about heading down that route - we tried it and it gave her awful nightmares.

ronan1 · 16/07/2023 21:31

Thanks @roughtyping. With us, we've never had a problem with DS sleeping through, it's the actual getting him to sleep that's the problem. So I'm hoping melatonin will help us with that part 🙏🏻

OP posts:
Childhealthquestion · 16/07/2023 21:31

Melatonin a game changer for my child with cerebral palsy (and associated issues) - he goes to sleep, stays asleep and wakes up rested. Previously a nightmare to get to sleep, wouldn’t sleep well and would wake exhausted. I think it needs to be prescribed by a paediatrician rather than GP, then it goes on your repeats. I would go armed with as much evidence as you can - sleep diaries, what techniques you’ve tried etc. I think, fairly reasonably, they’ll want to be sure you’ve tried the obvious stuff first (I’m sure you have, but as much you can provide to show this will help). Good luck!

roughtyping · 16/07/2023 21:24

My DS aged 7 uses it. Huge difference getting him to sleep but he still wakes overnight. A bit of help though. We were initially prescribed through paediatrician and now GP fulfils.

ronan1 · 16/07/2023 21:21

This reply has been hidden

This reply has been hidden until the MNHQ team can have a look at it.

WilkinsonM · 16/07/2023 21:15

I buy it from piping rock. Game changer for my ADHD traits teenager. I've taken it myself a few times as I'm quite insomniac and had no ill effects.

Hiddiddleyho · 16/07/2023 21:13

Oh but her main issue was split sleep waking at 1:30am for hours, rather than getting to sleep. Which might be why melatonin was limited use.

Hiddiddleyho · 16/07/2023 21:12

My Dd took it for a while at age 5. It didn't do much for her. We had to go down a more psychological route. Weighted blanket. Guided meditations. The doctor was happy to prescribe it based on me saying that preschool had suggested it and so had a private sleep consultant we were working with at the time.

CanYouReachThem · 16/07/2023 21:08

I order it from a US online pharmacy for my autistic DC and it's been an absolute game changer.

They only take 0.5mg but they're settling to sleep hours earlier and able to get up much easier in the mornings.

I only wish I'd done in sooner.

Trollfeet · 16/07/2023 21:08

I know quite a few people who buy from Biovia.

Upandonward · 16/07/2023 21:08

You can buy it from Piping Rock in the UK - GP recommended this website to my SIL.

roarrfeckingroar · 16/07/2023 21:07

You can buy it in France. I've just stocked up.

ronan1 · 16/07/2023 21:03

I don't think it can be bought over here can it. Just wondering if there is any possible, natural alternatives we could try first

OP posts:
PenguinLove1 · 16/07/2023 21:02

You can buy melatonin in the chemist in the us - do you know anyone travelling that could get it for you?

Ive also bought it online here - i dont sleep well as an adult and its the only thing guaranteed to make me sleep every night.

Its literally sold next to vitamins in america so i dont see why you cant get it here

VelvetLiesAndChickenPies · 16/07/2023 21:01

ronan1 · 16/07/2023 20:56

Why do MNHQ keep hiding replies? Confused

There's probably certain keywords that automatically activate a "hidden until reviewed" response. Hard to know without seeing the text that was hidden but that's most likely

44PumpLane · 16/07/2023 20:59

It will be suggesting non GP routes to get Melatonin perhaps?

My reply was hidden and it was simply suggesting a 100% legal but non GP route to access Melatonin.

Imagine they just want to ensure no one is advising anything dodgy.

ghostyslovesheets · 16/07/2023 20:59

DD3 was prescribed it following a brain injury and it's worked well - she doesn't use it much now (she's almost 15 and can give herself a spoon if needed.).

FloofCloud · 16/07/2023 20:59

ronan1 · 16/07/2023 20:56

Why do MNHQ keep hiding replies? Confused

Probably because it's talking about meds ... it sure if it's not that

FloofCloud · 16/07/2023 20:58

@ronan1 - yes but saying that my children are older than yours so you should talk to the paeds first