Sore bottom ruining my life

@Agonydownbelow sharing a Times article today in case it’s an avenue worth pursuing. Your dairy intolerance isn’t what you think it is

https://www.thetimes.co.uk/article/1358c4c0-e5e4-11ed-a169-35bcc1d1a374?shareToken=7c285ae0311d3ad2854551c62c667707

I've not read all the responses and obviously no one can know the answer, but I struggled with fissures for so long, was so awful (and embarrassing). I was prescribed Rectogesic ointment which helped A LOT (though gave me headaches they were worth it). I really hope you get some answers soon.

That’s cramps/spasms - doesn’t involve bleeding.

I could have written this myself a few years ago OP!

I had so many doctors tell me I was too young (mid 20s) for anything serious and it was because I was wearing thongs (I wasnt for obvious reasons)

In the end, I kicked up that much of a fuss they referred me to a specialist an hour away from home and she did a quick examination and found the tear that was so bad I had surgery a couple of weeks later. I also had Coeliac disease hence the going for a number 2 at least 6 times a day!

Please persist with the doctors and referrals, that much pain just isnt normal and not something we should have to put up with!

Just a tip, if you have a shower head, squat over the head with warm water squirting up, it does soothe the throbbing!

The GP said OP has to ‘learn to live with it’. It’s not an ok thing to say, if something medical really disrupts your life, of course you can’t ‘learn to live with it’ in the same way. It’s dismissive. They should be referring to specialists and need to discover the root cause. You can’t give up because it wasn’t discovered initially and shrug it off. The GP needs to keep referring and keep trying to help the OP solve the issue.

Agree endo needs looking into, but have people missed that the GP has referred to specialists 3 x and had raging arguments with them ? This is not a GP doing 'nothing'.... this is a GP fighting really hard to get their patient an acceptable level of care from secondary care (the specialists) who should be doing more or referring to a tertiary center if they can't !!!

Your-you're

I have endo on the bowel. You get endo just before and during a bowel movement. This is not endo. This is the rectum/anal skin tearing and being excruciating pain when passing a bowel motion. It's intense pain. And if you poop every day then your in hellish pain. Am I right Op?

It's Ls, it hurts like hell, but on viewing, probably just looks a little irritated and slightly red, but nothing else obvious. That's why they are telling you they can't see anything wrong. A biopsy will give you an answer.

I'd say this is proctalgia

A friend recently had this and after a the initial scares and scans she was diagnosed with colitis - an inflamed colon. It was a very tricky thing to diagnose so probably not straightforward. Worth investigating in your case,

I sometimes have pain down there, nowhere near as bad as you describe though, and I find Savlon very soothing. That sounds awful OP 😢

@MrsSkylerWhite this has probably been answered down thread, but that sounds like metanium. Or gooch cream as my cyclist partner would say !

Over the years I've read about this pain quite a lot on MN (funnily enough people don't mention it in RL) There must be some cause, but no one ever seems to know what.

The pain is being caused by something. It cannot be nothing. You need a second opinion. Have they ruled out gall stones?

I have LS too and the pain around my bottom at times is horrific

I get something similar to this, often during my period time but also randomly. The tailbone feels as if it will crack when passing stools no matter how hard or soft. Sometimes hurts to even pass wind. No one took it seriously for about 15 years. Would suggest checking for endometriosis as its highly undiagnosed

Another for endometriosis - you need an MRI/surgery if this is the cause. Also tramadol.

Any other endo symptoms?

I second this. My dh had several brain stem micro-haemorrhages that appeared as vertigo (room spinning, vomiting and nausea). We kept on and on being referred away from neurology to ENT and GP, though I became sure it was a stroke or similar due to loss of function after each ‘vertigo’ episode and high b/p. Finally got his medical records and discovered they HAD evidence of increased haemorrhages in the notes but no follow up, no explaining to him or highlighting this in a letter to the GP etc and no treatment to prevent more (which happened). It was utterly ignored and he was discharged by the neurologist who wrote the notes, who promptly retired. You couldn’t write it as a novel storyline, it’s so blooming ridiculous. We’re looking at legal action due to the severe consequences it’s had.

Definitely look through your notes yourself. And don’t give up, the amount of effort a lot of people have to put into getting the help they need at the moment is horrific and I’m so sorry you’re going through this, OP.

For the past 9 years or so I’ve experienced this thing I call burning arse pain. I’ve never truly understood what it is.

Ot only ever starts when I’m lying down. Usually it wakes me from sleep in the middle of the night. It’s a burning kind of pain that seems to centre around the tailbone area, but internally. It isn’t related to constipation, needing a bowel movement, spicy food, menstruation, or anything obvious like that. No matter what time it is, I need to get out of bed and walk around. It’s awful.

Prior to these mysterious episodes I also used to get really intense pain related to needing to go to the toilet. I’m sure it’s all linked (nerves?) but I’ve no idea what it is.

Hope you get some answers because it’s totally unacceptable to be told you have to live with this. Women are always told they’re exaggerating their pain.

Buscopan can be excellent for crampy pain as mentioned above.

For such a local pain I wouldn't want to be taking oral painkillers all the time because it could make you constipated making the issue worse. I'd personally try the Boots haemorrhoid suppositories because they have a local anesthetic in them Boots supps
An alternative to that would be instillagel which is a little syringe with lidocaine in it.
If you are not getting any relief from local I'd ask Gp about short term course of proctosedyl supps or even paracetamol or diclofenac supps.

It could be lichen sclerosis. I have times when I’m in agony like this too along with the blood. Ask your GP for some dermovate steroid cream (although you may be able to buy a weaker strength one from the chemist. Also ask your GP for lidocaine gel/cream on prescription. You can then use this to numb the area. also take painkillers when it’s bad - paracetamol and ibuprofen will really help.
are you in the uk?

I haven't read all the responses but came on to suggest endometrosis - a family member had similar symptoms. She had all sorts of tests and it didn't show up until she had an operation where they could physically see it was there!

OP this sounds horrendous and it is shocking what passes as acceptable in the post-covid NHS.

Sorry can't read tft right now so apologies if all this has been said before. Just want to mention that I've found psyllium seeds (the whole seeds, not just the husks) surprisingly soothing on the whole digestive system, bum included. They seem relatively hard to get in the UK, easier in Germany where they're called Flohsamen, flea seed.

And you could try soaking your backside in a bowl of strong camomile tea - sorry if that sounds ridiculous but it's got anti-inflammatory properties.

I realise this must sound like me suggesting you move a mountain with a teaspoon... really you need more investigation and a health system interested in wellbeing rather than mere survival. I hope something gives.

I know exactly what you mean about the pain, I’ve had it many times. I’m convinced my colon is a weird shape because it never really gets better. I have really turned my diet around and it has helped a lot, but even a couple of days of not sticking to it and I pay the price. The pain is excruciating, can totally empathise

I don’t know if this has already been recommended. I recently had something that sounds very similar and it was horrendous. The thing that really helped the pain was taking an antihistamine. This and the steroid cream that the doctor prescribed seemed to stop it for me. Hope you soon can get it sorted, it must be horrendous.