Dla wait times thread 82

[3amazinkids]

SD = Scan date
NC = New Claim
MR = Mandatory Reconsideration
CoC = Change of circumstances
LRC = low rate care
MRC = medium rate care
HRC = high rate care
LRM = low rate mobility
HRM = high rate mobility

This is a page where we are all in the same boat, trying to win what our children deserve, please be kind and support one another, we all have enough stress without adding to it 😁

NC SD 02/04. We received a letter today which was dated 07/04 asking for us to send our son's birth certificate. Has anyone else had to do this? Did it delay a decision? Is this a standard thing or a good sign? Sorry for all the questions 🙈

Hey I asked the same question just before you yesterday but have a payment in my bank today, so 8 weeks altogether. Scan date was 17th Feb.

Once received x

@Tmxx thank you! That is really quick very impressed!

Just thought I would update with some hope for anyone waiting for an MR, I rang for MR on 3rd March as my son was awarded hrc/lrm on renewal, I had lots of evidence for hrm under SMI, logged MR and said I would send further info from his teacher which I haven’t yet, received a payment this morning so just called up and they have overturned the decision and awarded HRM. So happy as I was prepared for a long wait and possible tribunal

Hello called today and was told a desicion had been made Monday 13th for NC. Won’t tell me over the phone and said to wait for a letter does that mean it’s been declined?
Thank you

Mr 27th October nearly 25 weeks and still waiting it's such a stressful long time

No thats doesnt always mean decline, just some either won't tell you or havent got that information, some will put you through to someone who can tell you though if you ask but others will still say no to that aswell! Call back using options 1514 they will tell you, hope its a positive outcome for you 🙏 do you mind me asking what your SD was? I'm NC SD 18/03 was going to ring next week to see if any updates but just wondering where they are with NCs

MR 20/10 just called up using options 1514, declined, looks like we’re going to tribunal!

😔 What a shame so more waiting I think that will be the. Same for me to 😔 it's so draining and of top of looking after a sen child

Did you see my post above? Our DM didn't even look at renewal forms - just extended award based on MR! No letter received yet, but you can ask for reason over the phone, I was given it. Once the letter comes, you apply for tribunal online I believe.

I was told decision for the MR remains the same at HRC/LRM but the renewal wasn't looked at

Hmmm... I had to phone back to find out. The first call handler was a bit confused by it all. Because the renewal didn't have any notes on it, but on the MR it had a note that said renewal forms received, but based on MR will extend current award.

I was told that a MR can't extend the award and that's why I completed the renewal. They keep contradicting themselves and clearly did not read all the information I provided as my daughter got declined . I am mentally drained after waiting 21 weeks for her COC and 30 weeks for a MR just for them to not read everything.

Yeah, I had new info in the renewal tbh that wasn't looked at.. Physio stuff, EHCP now with specialist school named. An MR definitely can extend award by the way, as the call handler I spoke to a couple of weeks ago before it was even decided told me that they may do that as I also have a renewal on the system.

Thank you I called back up and she told me.
Good news thankfully.
My scan date was 11/3 I called Monday morning and it still hadn't been looked at so it must of been done in the afternoon. Hopefully your next 🤞

MR scan date 20 October and was successful good everyone had a back pay this morning

Oh good glad they told you and it was positive too even better! Hopefully not too much longer then only a week after yours 🤞

Been told they are trying to do people before the 25th week mark I'm 25 weeks on Monday for Mr so Good luck to everyone

I've just applied for mobility for daughter as she is now 5 is that clased as a change of circumstances she's already getting hrc till she's 15

I phoned today to check that my childs renewal forms had been received and was told that a decision has been made and MRC will continue. I am grateful for this decision and the financial help is amazing but we all have disturbed nights due to their wandering around the house, verbal stims when they wake up in the night and meltdowns from sensory/emotional dysregulation, I don't really have any proof of this though and only sent in a sleep diary.
Do I just accept this decision or is it worth asking them to look at it again? Also what proof could I send in?
My concern is what if they look again and decide to reduce the claim...??
Help please, any advice will be appreciated x

It can be, but be warned they can look at the whole award again and possibly change the care lower or risk losing it all, but fingers crossed for you x

Really all i filled out what the mobility part

Has anyone else had a decision around 23rd october for a mr? Seen few people have got dwcisions, ive rang today mine still in queue unfortunately. The wait is torture

Hey, I asked for a MR on the 9th October but scan date is the 22nd, mine was still in the queue on Monday but rang again today and said now with a decision maker. So hopefully yours won’t be too much longer x