Dla Waiting Times - Part 31

[Margot82x]

New thread xxx

@Sunflower1808 no didn’t see the point calling today I’m only 14 weeks and still waiting for speech and language report to send that off once I’ve done that al call to see if recieved and then ask for a quick update I don’t think mine will be with CM/DM until at least end of March begining of April xx

@Emma2345 i was shocked they said mine was with the dm as im only 15 weeks friday x i reakon this mossing paperwork going to hold stuff up or after all this mess end up being a decline xx i shall let you know after i call tomorrow xx

@Keepgoing88 yeah I totally agree! What you write and how you write it will matter too.
I tried to be informational but not blab on too much! But now thinking it wasn't enough..

Wishing you the best of luck ❤️ hopefully we have done enough xxx

I really do believe its how you put it and describe how much help and support ymthey need more then diagnosis of something. I have SNEYS report/assessment, speech and language, audiology report but explained everything in detail. Just depends who you get when it comes to DM

I do wonder this too. I was expecting LRC for my son if anything. I’ve heard of people with a lot worse problems than what I have with my son and I sometimes do wonder whether they didn’t put much on the forms themselves. Or like you say it could totally depend on the individual decision maker

Just wondering has anyone sent a sleep diary as evidence?

@Rk123 I did, I sent in 7 days xx

Oh wow I never knew😪I am waiting for EPs report which should arrive soon I may start the diary and send it off as extra evidence before my claim gets assessed. Scan date 24/11 xxx

@Rk123 I didn’t send with the actual form, I sent it through with the second load of evidence as I didn’t know you could either, you could email the EP to see if they are able send you the report over email? It is frustrating when you are waiting for paperwork to come through, I end up stalking the post man 😂 our scan date is 22/11 so within days of yours! From seeing awards days I think we may have 3/4 weeks to go xxx

@Keepgoing88 I’m the same I really don’t feel I have enough. I filled the form as best as I could, added a letter from school with everything they have in place and things they have observed (this letter was for the dr for an adhd referral), a sen support plan from Ed psych at school and I then called to let them know she’s been accepted for an assessment.. that’s literally it. I’m honestly preparing for a decline as it really wasn’t much. But I did think, the schools report was really in depth and good and I obviously put my best so we’re just have to wait and see x

Hi This is my first claim and today my 14 year old was awarded LRC which I was expecting MRC based on her needs. I’m thinking of doing a MR but can anyone advise what info to include as I thought I’d put a lot and her ADHD diagnosis report was strong with it also advising to have her assessed for ASD. We haven’t followed this up as it would destroy her as she is not open to any of this. Can anyone advise what they would do?

Hi guys just wanted to say for those of you worrying about evidence I really wouldn’t over think it, only evidence I sent was a report from speech and language. My son doesn’t have an IEP or EHCP yet in progress of applying for EHCP. Still awaiting first appointment for paediatrician been waiting 16 month so far, Nursery filled in someone’s who knows your child section and only used the space provided only additional info I sent besides the form was a 7 day sleep diary and 2 of those days he slept straight through and we was awarded HRC no mobility but little one has only just turned 4 so not eligible at the moment xx

I have added loads about night time which they count hours between 11pm-7am as night time care and prolonged periods of more then 20 minutes as I'm up till 1 am with my little boy, he only sleep 3/4 hours then he's wide awake 4 ish unaware why nobody else is not awake he has severe development delay, they put him based of a 9-13 month old but he's 2 1/2, no understanding, can't communicate in any way and non verbal. I explained everything in detail. It's so sad the battles we have as parents to fight for our babies and what they rightly deserve

Hello, newbie here, so I’m right at the start of the dla dread. Posted my forms 3 weeks ago, not heard anything since, my plan is to wait 6 weeks before ringing to see if they even have them. I’ve set myself a target to expect a decision around end of June, ive done that to try and not stress myself out too much 🤣 although I still lurk here every night reading everyone’s comments.
Im already panicking after sending mine off. Not sure if anyone else is happy to say why they’ve applied but my son has anxiety and selective mutism, we struggle so much with him at home, to be honest I didn’t realise just how much we struggle until filling in the dla form as it’s just become day to day life for us for the last 2 years, I just never knew I could apply for dla until January, however at school he is so well behaved ( that’s down to the SM ) I won’t fully explain or I’ll be here all night, but I’m worrying what evidence I’ve sent just won’t cut it. We only sent the SALTs report which was very thorough, and I did fill it in and explain lots, how ever I didn’t get school to fill any bits in at all. My sons school are so unsupportive, and because he behaves in school they said they felt there wasn’t anything they could add to my form that would support it, even though school have seen video recordings of what I deal with at home. So now I’m worrying they’ll think why I didn’t get school to fill anything in.
we are waiting for an appointment with school senco because he may need an asd/adhd assessment. We think he definitely does anyway. And still waiting for therapy sessions for his SM. I know someone who gets dla for her
son and she sent no evidence in at all, school just wrote on it he was awaiting asd assessment, yet I know someone who had a diagnosis and was declined. I know it goes off care needs but that sort of stuff worries me,
i hope everyone gets success and hears soon, meanwhile I’ll park my bum for the next 5 months 🤣

Oh definitely waiting for post is definitely a worry never stalked anyone in my life 😂the school hasn't provided me any information about the EP how does it all work? Do they post it or does it go straight to the school? I have been chasing with the Senco they haven't heard anything yet 😕 hopefully soon so I could send off the sleep diary that I am starting tonight 🤞 our scan dates are very close!!! Hopefully we hear sooner than 3/4 weeks 🙏

Just to give you all a bit of positivity … I didn’t send loads of evidence in … just EHCP acceptance letter (not a draft, just the email from the LA to say they’re gonna issue one) and a letter from his headteacher ! My son’s been awarded HRC LRM today. Xxx

Hello I have been reading since I sent my forms of but have not posted as of yet , my scan date was the 12/1 so I now I still have a long wait yet but I keep panicking I was late sending my forms back the date on my form to return was Boxing Day and I totally forgot with the lead up to Christmas then forgot it was in my bag to post for a week after Christmas should I of rang and got new forms ?? And not sent the ones that had Boxing Day on ? And also I am certain that I didn’t write my sons name on the back of the evidence I sent will it get lost some where , I’m over thinking my whole application now 🙈

Have you phoned up to see if they have all your evidence

@Naomi2211 hi all that will happen there is they won’t back date from the date you rang for forms will only be from the date the scan onto system. And I’ve never wrote child’s name on back of evidence so wouldn’t worry too much about that. X

No I haven't called I'm to nervous that I will get a horrible person lol and be arsey with me because it's so early on in my claim , okay that's fine it's my fault I was late sending it of just got distracted with Christmas ! I'm so anxious about it all because I am rubbish with forms but tried my best , I wish if it was a decline they would just tell you earlier 🙈

My scan date is 27/10..isit wishful thinking to think I'll have an outcome this week 🙄💭 I see so many people be successful with scan dates after me. Or am I setting myself up to be hurt😂

3/11 still waiting lol…
Hey any parents EHE there child because of their daily difficulties i home school my now 13 year old and have for the past 3 years 4 in September 😁

I feel like I’ve not sent loads of evidence either but worried I will get a decline even tho I did go into the form in so much detail about how violent he is I have to safe guard my other children away from him how unsafe he is at home and all meltdowns and out bursts and about night time and sleep and how he literally doesn’t sleep I sent 2 pediatrition reports with it and school filled in the someone’s else who knows the child and also sent the SCP referral off (pathway for autism diagnosis) & hopefully going to send speech and language report as soon as it comes but now I just feel like it’s not enough xx

Can I ask what your child's needs are or diagnosis is and how old? I haven't sent any evidence either as we're still on waiting lists to be seen by professionals, my son is 4.

I Hardly sent any evidence just one report from the hospital saying that my son is on the asd pathway and he has substantial social anxiety , I haven't really got any evidence his primary school was not very supportive and dragged there heals with support , he's now on the pathway but told he won't be seen till he is in year 11 now , I am really doubtful he will be awarded but I explained what I am applying for him and he said does this mean I can try a weighted blanket , and noise reducing ear pieces , it brakes my heart that I can not afford the things he wants to try to make life a little bit easier for him