I have chosen the thread title this time, because current circumstances means the sun isn't always shining for Beatrice at the moment. Indeed, she is currently in hospital in a fair amount of discomfort. However, when the sun does shine, and we have bright and clear days, we pack in as much as we can. 
When we brought Beatrice home from SCBU, we had the consultant's words ringing in our ears, 'Take her home and make some memories.' I feel confident and proud that we have made a treasure trove of memories, however long Beatrice's life may be. She continues to be surrounded by so much love and adoration from her family and I feel this love has helped her to thrive.
During the difficult days, such as these, we pray hard for peace and calm, and for a quick resolution so we can take our darling girl home and make even more precious memories with our beautiful Beatrice.
As with all other threads, same rules apply 
, read if you want to, post if you can, but above all, please spare some positive thoughts or prayers for Beatrice.
Here are some suggested organisations that offer expert advice on special needs.
MNHQ have commented on this thread
SN children
Making hay while the sun shines and always adoring Beatrice.
cupofteaplease · 29/05/2012 14:30
Oh 
I really hope they get on top of the infection quickly.
How are you doing cup?
De-lurking to say thank you for sharing Bea with us for another thread
Still lots of positive thoughts being sent your way from our household.
And Cup you are a truly fabulous mum, all your girls and you dh are lucky to have you!
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