Hey guys thanks! your being kind really does help, you might feel like you're not doing much but you are
anyway, progress (i think) the GOSH registrar rang me back, we had a chat, she spoke to the consultant and rang me back.
(in there somewhere was a sympathetic but essentially useless GP appointment)
they want to change to Keppra ASAP.
so the Epilim doses drop as from tomorrow, until he doesn't have any more from 1st June.
He should start the Keppra tomorrow morning (more on that later) and build up every 2 weeks, so will be on a full dose about the 20th June.
Hope it works....
re the Keppra - the on call pharmacist has been forced to go back into the pharmacy (as they don't keep Keppra in the emergency box) and make it up, and it's a solution which sounds complicated. so the nurse will call me when it's ready for collection, DH will shoot in, collect it (+ some phone numbers of epilepsy nurses at GOSH to ring when worried) and come home. so we can start tomorrow morning.
when the NHS gets fired up it really does work you know?!
think the GOSH doc wanted Keppra from the beginning actually and is using my anxiety as an excuse to switch early but i don't mind!
right, long me post again sorry guys!!!
Simps - really feel i should be asking about you more, how are you managing? did your dad come and cut the grass?
have you got a short-term, medium- & long-term plan? would you move nearer your parents?
dunno re talking to J - did the hv say anything? G's advice sounds good, say nothing!
right, DH coming back with an Indian, yum.