Recurrent Miscarriage Support Thread 28 - Tests, Treatments, Trying again, Trying to stay sane and most of all TREMENDOUS support!

[Kazz2112]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!

Previous thread:
www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again?

Thanks Just that explains it well, will ask my acu lady about it

Just hope Scott's blood tests are ok, he's a strong little chap! Xx

belle just reading back catching up, I'm very sorry to hear of your friends passing, it's a very cruel world out there. Much love and hugs to you and your friends xxxx

bootles team pink... Was kind of expecting it because of how ill I've been, but as a not very girly person, feel a bit eek about it.

Welcome allmy you've come to a good place. nk cells don't attack attack a baby as such, but can cause an inflammatory response in the uterus which makes it harder for pregnancies to progress, or get going. NK cells change with each cycle, as does the whole of the lining each time. Some lining is left after each period so each lining has old and new cells making each lining unique which is kind of hopeful as it can reset itself. Hence you will find some people may have 3 mcs in a row or more and then a successful pg.

Welcome allmy, so sorry for your losses. We all have natural killer cells in our uterus, they are a form of white blood cell and are generally useful. The theory is that if you have high levels of uterine Natural Killer cells, it indicates an inflammatory response in the uterine lining, which means it is unable to function properly, and an embryo can be starved of nutrients and did. NK cells don't attack it as such.

emerald we have not had karyotyping done - (dp basically stuck his head in the sand about it all, refusing to be tested - I think in case something was found with his swimmers, and he couldn't cope with that - not impressed). It seems to be a standard test for many, and some doctors still tell me we should have had it done. However a genetic counsellor, who I saw after my tfmr, and other doctors too, have said there's no point - we have a healthy DS and if either of us were carriers of a balanced translocation/dodgy chromosome of some sort, it would just be a numbers game finding an egg/sperm that was healthy.

I suppose all I would say is that if there is a chance of having a genetically inherited chromosomal abnormality that could lead to an embryo that could survive, I would want to know about the consequences of that genetic abnormality. If in doubt (I believe Downs is nearly always random and don't know anything about T15) maybe see if you can get access to a genetics counsellor at your local hospital? They could advise further. (Is St.Mary's your local trust, or were you referred from miles away?) It may be that I am reading too much into it, but thought it was worth mentioning, as after seeing the genetics counsellor I realised that she was the expert in this stuff, not the RMC consultants. Not that I am disputing what Mr Rai said! (I saw him a couple of times when I was under St Mary's) Hope this is coming across in the right way - too tired to form concise sentences...x

I should add I feel a bit eek about everything and have no idea how I'd have got this far without you guys.

Barking

'Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day that says: "I'll try again tomorrow."'

- Mary Ann Radmacher.

And try again, is exactly what you've done, even when your husband's up a mountain. You are Titanium.

(I haven't the foggiest who Mary Anne Radmacher is BTW but don't want to Google her. Just in case she ends up being a serial killer or Ku Klux Klan founder or something and it ruins the sentiment.)

starved of nutrients and die, not did. Sorry, horrible typo to get wrong, and apologies for insensitive language xx

Shit. That wasn't meant to be in bold, and can't work out how to withdraw post. So sorry allmy and everyone xxx

mrsd team pink! You'll do brilliantly no doubt as a non-girly Mum to a girl.

belle, also sorry to hear about your friend. One of my dad's friends committed suicide last year and although I didn't know him well, it was still really upsetting to think of any human being, so tormented that they felt they had no other option.

Bootles thank you that's really good info there on the karyotyping and interesting to hear your story on it. Do you mind me asking did you know the results of all your MC? And what was your tfmr for? My DP is reluctant to have it done I think given the fact about his brother, who also had T15 amongst other things, but for me it's more reason to know. You hit nail on head when you said about knowing what it would involve having an embryo that could survive, I think I should know that.
St Mary's is not my local trust but I'm only an hour away by train, my consultant gynae referred me when I asked him to privately. Being I'm 43.5 I don't have time to hang about. I will def ask about a genetic counsellor though, thanks for telling me about that.
How many wks did you say you are now?

Biscuits love the courage quote whoever she is!

biscuits I've put the same quote on this thread myself in the past!! Great minds!! . I have that written on a sticky note on the home page of my nexus so I see it every day, someone quoted it on the infertility thread after an ivf mc last year and I thought it was perfect, as sometimes it is just so difficult to continue trying.

girlie I'm a fan of acupuncture. I cried on my woo lady twice yesterday, in both the sessions . I arrived at the first appointment sad about the first embryo, and our chances already having been reduced by 50%, and I arrived at the second appointment haunted by the photo that clearly showed a not very well embryo. By the time I left both sessions I felt relaxed again. I also credit acupuncture and Chinese medicine for bringing back my cycles after the first mc, I hadn't had a normal AF for 6 months (just random spotting on random days and I never had a clue where I was in a cycle) and someone suggested I tried it.

mrsd I'm not girly either. My best friend's daughter is a proper tomboy, while her little brother is quite soft. I don't think gender really makes that much difference to how you bring them up unless you have views on how boys and girls 'should' behave. If I was to go on stereotypes those kids would be the other way round!

Can some one tell me why I was wide awake at 4.40am today? Third day in a row, but today I have no nervous wait for a phone call and I went to bed exhausted, so why am I not still asleep?!?!?

Thanks again for all the support. I'm slowly getting over the shock of yesterday - despite all their warnings, to go from two healthy embryos in the freezer in the morning to one very poor one put back by the afternoon and nothing left in reserve was a bit of a rollercoaster...
I can now see that if one embryo was going to perish, much better now than if this poor one had been the first out, and then next round I went through all this again and had nothing to put in on transfer day. Although I'm guessing in that situation they might have taken the other one out anyway and aimed for a two embryo transfer if they'd seen this first, but trying not to over think things.

Ps if anyone is interested Mary Anne Radmacher is an American self help author....

omg... omg... I'm 2 days before AF is due bur as part of the response trial I have to hpt from 7 dpo. And today I got the slightest shadow on a clearblue. So I did a durst response and got a proper squinter. Aaaarrrggghh.
overjoyed that my body isn't letting me down it seems in getting pregnant but this is the beginning of a terrifying journey!

Congratulations kazz! I'm so pleased for you. Told you not to give up hope!

Woo hoo Kazz

Yey kazz!! Congrats Starting the new thread was defo good luck for you!

ha ha. good point bumble. I forgot about that! I was only last night panicking thinking... slow down with the posts you lot. I'm sure my luck ends when the thread reaches its max! You may now continue to post away!

Kazz, wonderful news.

Congrats Kazz!

barking my sleep always goes up the spout of there is something around to be anxious about. Well done for getting through yesterday, that's step one done.

Re: acupuncture, I'm more open than most maybe because my mum is an acupuncturist, but I have definitely found it helpful. I had migraines for 8 years (since mc1) and they have completely gone since having acupuncture...

And kazz, hooray! Great news.

fab news congrats kazz xx