Recurrent Miscarriage Support Thread 28 - Tests, Treatments, Trying again, Trying to stay sane and most of all TREMENDOUS support!

[Kazz2112]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!

Previous thread:
www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again?

Sorry, just realised I'd missed gen and diddlys scan news! Excellent news! xxx

Have a good cry and let it all out barking. Giving you a big hand squeeze and hug...xxx

barking do what you need to do my love, the dog will be ok if he/she misses one walk. Wish I could give you a big hug.

Oh God I feel like I deserted you all..today of all days, no chance to read or post.

march great news! Am so happy for you! I can think of many a healthy baby who started out with a haematoma in there...xx

bumble brilliant! X

gen great news! X

mrsd phew! Massive milestone.Hope placenta moves up, and that you can relax a bit. Do you know what gender you are having? X

barking Christ it's a stressful process isn't it...you're not out, but it must be even tougher when you don't feel particularly positive. It was NOT a crazy idea to do this alone. You wanted to plough on and get going, and though I know you don't feel it, you are one strong lady and you are going to get through this. Unimaginably hard, but one hour, one minute at a time. Huge respect for you and I can't tell you how much I wish I could come and walk the dog at least for you! It's not over. Hang in there, huge massive hug xxxxxx

Welcome home, sorry for your losses. Do you know yet what type of chromosome abnormality? Sorry you are having to wait to discuss it, that's utterly crap. Hope you can get in earlier...x

Re the gender of mc's, I found it deep!y distressing to know, but harder when I didn't - I don't know why, something to do with knowing as much as possible and being closer to it? Sounds a bit weird I know.

Lovely to hear the great scan news today. So pleased for you all.

barking - big hugs lovely. As the other ladies have said, they wouldn't have put this embie in if they didn't think there was a chance so don't give up hope yet. It sounds like an incredible roller coaster of emotions that this journey is taking you on though and am in awe at you taking it on while dp is not only away but out of mobile phone reception.

Where abouts do you live? If is anyway near me (Oxford) I am happy to come and walk the dog for you!
xxx

Congrats diddly too on the great scan news! Fingers crossed the placenta will move down.

Welcome home, and sorry you find yourself here. How utterly frustrating to have your appointments cancelled. I agree with the others to speak directly to the secretary if you can. They have all the power! I hope you manage to get something sorted sooner as i know how difficult the waiting is x

barking, I'm so sorry you're not feeling very positive about things, and as others have said, i wish i was nearer to help out or just to give you a hug. It's ok to cry. Perfectly normal and acceptable. But you can do this. And it's not over yet. This is the strong embie that made it through the thaw. It's a fighter. And you have a good lining waiting for it to thrive in. It's had a bit of a shock and is bound to be a bit dazed, but now it's moved into its new home hopefully it will pick up. I have everything crossed for you both. Big hugs lovely. Stay strong. You are PUPO. Xx

Welcome home! Take a seat and get comfy. Sorry for your losses and about app being cancelled twice(!), so frustrating. xxx

Thanks everyone for the kind messages.

The chromosome abnormalities were number 8 & 15.

I have already written once to the clinic after the first cancelled appt so I guess I should write again. I did get a letter back suggesting me and DH get ahead and have blood tests at the GP for chromosome testing which will take 8 weeks to get back so we have just done that. What upsets me is the miscarriage was in April and they could have told us to have the blood tests then not in July?
We have seen a private doctor who had suggested to carry on trying and has prescribed the pessaries and lots of folic acid. He did a scan as well which was all clear so that was worth the money at least.

I need to pick myself up and think positive!!!! It's so difficult.

Barking, I understand how you feel to be on your own. My DH works away a lot and it's so difficult without your partner to support you and hold your hand.

Thank you all so much for your support and positive comments, it's helping so much .
I texted another friend and asked if he wouldn't mind doing another walk (he'd only just taken his dog out) as I could do with some company and he came out with me.
Going to meet another friend for a walk this evening with her dog. She offered to come round to mine, but actually the more exercise I can give the dog the better he behaves and the less stress for me. And it's good for blood flow to keep moving.

home if it's any comfort, most places ask you to wait at least 6 weeks after a miscarriage before they will take bloods anyway, although I know that wouldn't have taken you til July. Lots of us have had various hold ups in the system and some succes with being pains in the bum! I think the secretary route is the most helpful - it was only when I called that I found out my paperwork had been hidden under piles of other paperwork. Hang on in there and don't be afraid to be determined!

big hugs barking must be do stressful and difficult especially without dh.

welcome home so sorry about your losses, your in excellent company here.

brilliant news on scans ladies so pleased for you all xx

march, bumble, gen for good scans. Today you are pregnant and it's going well. Great news!

mrsD wow oh wow 20 weeks! What a journey. gear big hugs to you

Barking what a day for you, you brave amazing lady. So glad your friends are starting to rally round - and we're all here for you. Do exactly what you need to get through this next bit. I have every finger and toe crossed for you!

Oh my god I've been manic all day and missed so much.

Barking big hugs. As Freckle said, it's not a done deal. I'm sad the first embie didn't make it but willing everything for this one.

March Bumble Gen and MrsD yay!!!!!!! Loving the scan news. Ahhh March it will all about shoving needles in your tummy now. Welcome to the bruised tummy club!

Home welcome to you and so sorry for your losses. Defo not gate crashing and really hope we can help!!!

Starting to get nervous about cervix scan on Monday now. I actually want a stitch I'm that scared and paranoid!!!

barking big hugs. What a day for you. Don't give up hope yet, you are brave and can do this, and we will all be here for you.

Congrats to good scan news - seems like quite a few of those today :)

I've caught up on 3 weeks work at work. Feeling relieved.
HR is in tomorrow, I've not had a return to work yet. Really need for them to note how I feel in case I do end up needing more time off. I'll see what happens.

Hello ladies, please may I join? brummie posted me a link to this thread after responding to my thread...

I know I haven't had quite as many losses as some of you have, and I'm truly sorry for everybody's losses

I guess I don't have to go into much detail as I'm sure all of you gals have driven yourself crazy researching answers and seeking hope from google...

So I'll just give you my stats:

27, no children, 1 mmc at 10&6 in April (very long and drawn out, tried naturally and thought id passed everything, nope, medical management twice, nope, one month later erpc) 1 mc at 4&3 a few weeks ago, upcoming bloods for -thrombophilia -anti nuclear antibodies -thyroid function -ferritin -fbc, came down with glandular fever the same time I mc'd a few weeks ago, can't decide if that's related?

Currently in my tww as we had not been given instruction to 'hold off' ttc...due to test at weekend!

Well that's me, thanks for listening

Hi allmy I think I may have seen you on the TTC or anti natal thread?
I'm.sorry you've had to join us here, but these ladies are full.of knowledge and very supportive and helpful.
Sounds like they're being proactive in the testing the docs are doing, I do hope you get some answers and ongoing support.

Congrats to all the ladies that have had good scans today.

Barking, Pom poms are being waved here for you lovely lady x

Back from acupuncture session today. Not sure what I made of it but apparently I have a deficit spleen qi and liver qi wasn't much better!

Oh my gosh, not been able to pop in and read all day, what a lot happened and sorry wasn't here earlier for hugs and support.

Welcome homeboddy and so sorry for your losses. You will find lots of support and advice here. That's terrible they've cancelled your appointment twice, I would be devastated too. Can you keep ringing for a cancellation? Or go private? I would leave Ttc until you've had tests if possible? About chromosome tests, Dr Rai I saw yesterday at St Marys didn't advise we have them. He said if comes back with something there's nothing they can do to change outcome of it being passed on and we had DS ok. If they came back positive we would have to get DS tested too but still it would change nothing. So we haven't had them, but I'm still wondering if we should. THOughts anyone please on this!!

March Gen Bumble and mrsdiddly that's brilliant news on scans!!! Yay!! Fab loads good news today

Barking what a day you've had, sorry to hear of first embie but good the second is ok, it must be ok to be put back in, love March comments, it probably is just dazed from big freeze. everything crossed for you and big hand hold. You are very brave on your own doing all this. Glad you've found some company and managed to get off sofa and out.

Bootles I completely understand and agree with your comment on knowing MC gender after being faced with it yesterday out of the blue, was not prepared at all for that question but think that as upsetting as it was the not knowing is worse. Not weird, does bring you closer somehow

Welcome paws and sorry for your losses, it's still hard no matter how many you've had. It's good you've got all the tests ready to be done early and hopefully give you some answers.

Girlie. what's a qi??

Welcome allmy and very sorry for your losses . There's a few of us on here who've had 2 losses (myself included). I'm so glad I was directed to this thread by baking as the ladies here advised me to push for some basic testing and it's here I discovered 'Coventry' which I went to (to be tested for uNK cells).

girlie I had the spleen qi when I saw an acupuncturist too. She said I was too cold and had poor circulation and advised eating and drinking only warm things, cut down on dairy, alcohol. She said ginger was good to have. She was going to charge £400(!) a month for weekly acupuncture and herbal teas which was far too much for me to fork out so I never went back. Plus I didn't like the acupuncture so went for Reflexology instead.

Not sure Emerald something within Chinese medicine.

Bumble, I had reflexology today at work as forgotten I had booked a session. Very relaxing! Jury's out on the acupuncture...

Having a massive catchup been a crazy few days...

Barking you are one tough & strong cookie!! You may not have your DH by your side but by heck you have everything single one of us here with you holding your hand wish we could all come round and group hug!! Big positive vibes to you keep chin up Hun. Xxxxxxx

Home welcome to you, I'm sorry you have been suffering. You will find brilliant advice and support here, keep talking to us.

So many great scan news, keep it coming! Xxxxx

Qi is like the invisible energy that travels through our bodies... Chinese medicine holds that it is a kind of life force and can be disrupted and channelled. Western medicine rejects that it exists.

Thank you all for your warm welcomes!

mrsb I remember you too! You have stolen my user name haha, when I joined mumsnet, I went to use 'mrsb' (Mrs Bennett) and was taken...didn't think of adding numbers
bumble I remember baking ... Seen her around on a few threads, I think she responded to one of my first threads back in April when I was going through my first mc (mmc)
What are uNK cells??? Is it where your cells attack your baby as an intruder??? Because I've often wondered if that's what my body is doing! During my mmc I only ever got as far as a 4mm fetal pole with no hb...pole didn't grow till week 8, gone by week 9, mc'd one day shy of week 11! No idea what grew in my most recent pregnancy that mc'd, still passed a tiny sac though at 4&3!

Talking of spleen, I still have an enlarged liver and spleen from the glandular fever I had...painful x

Thank you for explaining Just, as you probably guessed I'm knew to this!