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Recurrent Miscarriage Support Thread 28 - Tests, Treatments, Trying again, Trying to stay sane and most of all TREMENDOUS support!

1000 replies

Kazz2112 · 19/07/2015 12:24

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!

Previous thread:
www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again?

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AllThereIs · 28/07/2015 13:57

Marking my spot again so I can keep up to date with you all. Hugs, warm wishes and lots of positive thoughts to you all.

^a bit happy, clappy huggy but you know what I mean.

barkingtreefrog · 28/07/2015 14:21

freckle loving your interpretation of my dream, I'll take that! Grin

Until I quit last year as I couldn't face juggling any more injections/appointments etc with fertility treatment I was a primary teacher. I have in the past been sports co-ordinator though so you're not far off! I was also senco. Really missing teaching, but appreciate I have rose tinted spectacles on now and the hours, stress and paperwork are no longer at the front of my mind. Nothing like teaching a lovely class though Smile.

lost thinking about you today. Thanks

kazz mute!!!

brummie it's next weekend - embryo transfer is this Thursday which will be 5dpo. Doing okay at the moment, anxiety will ramp up tomorrow, worrying about whether it will survive the defrost!

Flen hope the sickness calms down soon without that causing worry in itself

Mrsd hand holding in advance of Thursday Thanks.

bythesea82 · 28/07/2015 14:23

So I came across this today and thought I would share it....
It's a sculpture in Slovakia called 'Monument to the Child who was never born'. It's actually to mark the pain of those who have an abortion for all the many reasons people make this incredibly hard choice. I thought it was beautiful though and it made me think of all the little one's we have said goodbye to between us....

I am sorry if anyone is upset by this....

Emerald72 · 28/07/2015 14:34

Omg bythesea that sculpture is so sad. Sad actually made me nearly cry at my desk. Very touching though and good on Slovakia for actual recognising this and not hiding it away as so many do.
Mrsd and barking just good luck both for Thursday hoping all goes well.

I've got my appointment at St Marys tomorrow, finally, am doing something about it.

Marchgirl · 28/07/2015 15:28

Good luck for your appt tomorrow emerald. Mine was a real turning point in my mental state after mc3, started to feel like something was actually happening and being done.

Also good luck for scan tomorrow flen. Hand holding x

And good luck for Thursday barking and diddly and bumble.

Big week for appts this week!

Marchgirl · 28/07/2015 15:28

That also made me well up at my desk bythesea. Beautiful but tragic

Kazz2112 · 28/07/2015 16:01

Wow. Thats really emotive. Just logged onto my laptop to look and its got me very choked up!

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Flen · 28/07/2015 16:21

Gosh that's very beautiful bythesea, thank you for sharing.

Thank you for all your support everyone, just feeling very sorry for myself today. I think we will wait to see what happens with the scan tomorrow before going to GP or anything.

enerald I hope your appt tomorrow goes well.

Losttherythm · 28/07/2015 16:48

Ooh girls
Thanks loads for your thoughts and support
All went fine, the nurse was lovely. A bit of low blood pressure after recovering for anaesthetic but settled.
On my way home now to rest and try to leave things behind
bytgesea82 that sculpture brought tears into my eyes, so touching and describes exactly how I feel after each MC. I'll borrow the image to my gallery although sad, makes you think of the pain others are going through.
Thanks again girls, so happy I've found you.
Flowers

Kazz2112 · 28/07/2015 17:19

Glad it went ok and you're now en route home to recover Lost. Make sure you're waited on hand and foot whilst you recover. xxx

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Emerald72 · 28/07/2015 17:26

Just had call about results of tests on op, it had downs and chromosome 15. Blessing in disguise that it stopped early and we didn't have to make that decision. Think I'm relieved I've got an answer, wish I'd pushed more for tests on last MC too, he said then they don't do them? Probably due to costs. Shit scared now if get pg again it'll have Down's risk.

Emerald72 · 28/07/2015 17:29

Sorry bumble good luck to you too! Can't keep up!

Emerald72 · 28/07/2015 17:37

Thanks everyone, will let you know.

Lost glad all went well and now hope you get lots of rest and support at home. Take it easy on yourself xxFlowers

Justonemoretime · 28/07/2015 17:37

Emerald, sorry to hear that, but I know what you mean about not making that dreadful decision (my third was turner's syndrome). I don't have any statistics, but I'd say the chances of it happening again are really very small. Hugs to you and hope the news help you to get some closure. xx

Flen · 28/07/2015 17:53

emersld that's quite something to find out - hope it sits ok with you. My one chromosomal result came back normal and I have imagined that an abnormality might have provided if not comfort, then at least a reason. Hugs to you.

barkingtreefrog · 28/07/2015 17:55

emerald I'd never heard of chromosome 15, had to Google it. Sounds potentially very difficult. There is no greater risk of downs syndrome in a subsequent pregnancy. I don't know of a single family with siblings with downs syndrome (apart from mine but adoption doesn't count for genetics!)

lost glad it went okay, look after yourself Thanks.

Bythesea can't see anything on the app so I googled it - very beautiful image, just perfect.

BumbleBee0 · 28/07/2015 18:06

Gosh that sculpture got me blubbing. It's beautiful and says a thousand words. Thanks for sharing bythesea.

lost glad it went ok. Now take it easy and look after yourself (as well as being looked after)

emerald hugs for your results. I've never had a result on the foetus' but when I found out about possible causes of my mcs (blood clotting/high uNK cells) even though it was positive to find a potential cause, it was still sad. Don't apologise about missing me out re thur, I'd not mentioned it previously on here so only March knew. Smile

Sunandrainbow · 28/07/2015 18:28

lost - glad it went well today hun. Make sure you take it easy over the next few days - hope you have lots of support in RL.

emerald - hugs lovely. My 3rd (only one tested) has trisomy 22. I was told most chromosomal issues are one off spontaneous events and the chance of there being a problem with the parents that could affect future pgs is very small (I think for t22 it was 1:250 ish). They did however offer us karyotyping, just to check. Have your hospital offered that?

brummie - hope you are doing ok coming off the progesterone. I actually decided in the end just to cold turkey it and apart from being less 'regular' and substantially less windy!, I didn't notice any effects.

Good luck to everyone with appointments this week too!

x

clairemorgan81 · 28/07/2015 18:37

emerald - hope you are feeling ok about test results, dont know much about the different chromosome abnormalities but bet it was a shock and can understand your worry. lots of love.
lost hope your being well looked after , at least that dreadful part is now over.x

mrsb0710 · 28/07/2015 18:39

lost sending thoughts your way. Take time to recover and look after yourself.

emerald I'm glad you have some answers, but I imagine its very hard to take it all in right now too. I hope they offer ongoing support.

Had a shitty shitty day, feel overly stressed and under pressure at work. DH said something completely innocent and I snapped and cried. And I still haven't heard back from the midwife yet. Want to hide away and not do anything. Tempted to get signed off work for a while but I need the money and mental stimulation. Just trying to remember tomorrow is another day.

Frecklefire · 28/07/2015 18:44

Flen** - been there babe. 30 WEEKS vomming. Go to gp. Did shag all for me but if they turn around and say you're not putting on weight at least they will know why and will leave you alone, maybe! Love and true sympathy. Xxx

Marchgirl · 28/07/2015 18:46

Gosh emerald, that's a lot to take in. I hope it gives you some closure one you've processed it. Hugs x

Glad it went ok today lost and that you are on your way home. Hope you have plenty of time off to recover

Marchgirl · 28/07/2015 18:57

Sorry you've had a difficult day mrsb. It will get easier but try not to put too much pressure on yourself x

I'm bloody angry. Got appt letter through last Thursday for the wrong date for scan - 11th aug. Had already had a call from the consultant to say they'd made a mistake but she'd rebooked it for Friday 31st, so I've been waiting for the replacement letter. I hadn't got it today so called up and they have nothing on the system for Friday. Only the appt for 11th aug. I could cry. I just can't wait any longer. Been building myself up to this for 2 weeks. It's already a week later than coventry suggest to start the heparin. Consultants nice secretary is off until next Monday so I've had to leave a message and hope that someone calls me back to sort it out. Worried they won't have any appts and I'll have to wait until 11th, but i really don't think i can. Nerves are already shredded.

SashaKerr · 28/07/2015 19:14

This reply has been deleted

Message withdrawn at poster's request.

BumbleBee0 · 28/07/2015 19:15

march that is so bloody frustrating! You could call coventry and they might book you in if you can get there (although I aporeciate its miles away) or could you book a private scan? Or is there another epu you could call and say it's urgent you need to start heparin asap. Or how about speaking to epu staff directly (rather than waiting for secretary)?
Sorry I'm sure you've already thought of all these!

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