Recurrent Miscarriage Support Thread 28 - Tests, Treatments, Trying again, Trying to stay sane and most of all TREMENDOUS support!

[Kazz2112]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!

Previous thread:
www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again?

Didn't mean to be confusing brummiegirl! Mentally not physically. Experienced nothing physical other than my digestive system recovering from the side effects.

march that totally and utterly sucks. Is there not an EPU you can call? Where I am you can call directly and they fit you in for a scan if you have had spotting (which you have).

flen good point about spotting, worth mentioning this.

march what bloody rubbish. I hope someone comes back to you and you can get this sorted. Could you just camp out at your epu until someone sees you. It's the last thing you need I know.

lost well done for getting through it. Get on that sofa, eat trashy food (what ever you fancy) and lots of TV/box sets. We're here hand holding x

emerald hugs for dealing with that call. Must have been tough but it's an answer for that one.

Good luck tomo flen I'd second (or 3rd, 4th... Whatever it is by now) the suggestions of seeing your gp about the sickness and nausea.

I'm definitely considering calling the epu (we can self refer) and seeing if they will scan me there (probably on the basis of bad cramping, which is true), but they've also not booked the consultant appt that i need after it so she can show me the injections, so still have to speak to the sec about getting that sorted. Wish I'd been more pushy at the end of last week but i just thought it was the usual slow letter for the appointment.

I would def be onto gp March, how annoying. especially with your history and spotting you 've had they 've sorted a couple out for me in past no problem and at short notice x

Woe bythesea**, that sculpture is incredibly powerful, it really affected me. Very close to the bone.

Lost** - glad you are on the other side and hope you have a strong recovery, both tonight and over the coming months. Xxx

Emerald** - i've never had any testing like that done, hope ir is a positive thing for you that helps you to progress through things. Xx

March I know it's different in different places, but I've never been shown injections by the consultant, always a nurse. Usually the consultant just needs to sign the prescription, and won't necessarily need to see you. I managed to start this Ivf round and get all my injections without seeing a consultant, the nurse just got his signature in my notes. I'd call the epu and start with the scan, then you can find out who can give you the drugs .

Thanks everyone. I think that's good advice barking. You're right, the consultant can just sign the script. Plus she must think it's on Friday as it's her that told me it was! if i haven't heard from the consultant by lunchtime I'll phone the epu and maybe just ask if my scan is with them (even though i know it won't be). Having been on the response trial (briefly) i also have a contact down there. Some waterworks may be required but to be honest it won't take much for them to come anyway. No way I'm waiting til next week

March, as someone who has suffered from a catalogue of appointment mistakes during my mc journey I totally empathise for you. Definitely use all your contacts and push the emotional impact as much as possible to get it sorted x

march a nurse at my gp practice showed me how to inject (I'd already got my injections which were prescribed at that practice). Am I right in thinking you haven't got them yet and need the consultant to prescribe them at the hospital after your scan? I'm sure there will be plenty of nurses who can show you at the hospital so would try not to worry about that bit of it. X

girlie can you pm me your address? I should be able to get to the post office to post the book on Thursday as I'll be off work for the embryo transfer .

I've got a copy of 'Fit for Fertility' by Michael Dooley if anyone would like it.

Thanks everyone for your kind messages and support. Yes it was quite a shock to find that out as had convinced myself it wouldn't come back with anything as heard sometimes they can't grow cultures or its transportation is wrong. Plus there wasn't much there, no fetal pole possible yolk sac, so was very surprised. My first feeling is relief that it hadn't progressed further and then abit more faith in my body again but can't stop thinking of it all. It is abit of closure really as now I know. No we haven't had the karyotyping done but going to ask for this tomorrow now. DP had a brother who was born with trisomy 15 amongst other things. He was adopted as his mum couldn't cope and had a breakdown, she had 2 other kids already, and they Neva see the brother now. It's raked it all up for DP which has been quite hard. I wonder if it's a genetic thing?
barking good to hear there's no greater risk of downs in next pg, but do worry that it's all due to my age (43).

MrsB sorry you've had a shit day, it's still very early, you need to take time out for you.

Oh March that's crap how annoying, can you get a private scan done somewhere before 11th?

Sasha hi! Not sure we have? Thanks for your info on what happened with yours, it makes you think doesn't it but I have took some comfort in that it wasn't anything I did, like lift heavy watering cans, go to gym, it was never going to make it. Just wondering why did it implant? But then maybe it took that long for my body to realise? Thanks for shehata protocol I'm seeing him next month, but worrying now do I go with him or St Mary's? And do they mind if you're seeing another clinic?

bootles and brummiemum great scan news!!!

Sounds like I'll have lots to think about if and when I do start the progesterone. Feeling much calmer now about the wait, thank you all for your kind words.

Glad to hear the erpc went as well as these things can lost

Good luck with the appointment tomorrow emerald

march that's so frustrating about your scan, I would be fuming too. Epu sounds like a good idea if you can get in there.

Emerald sorry to hear your news. Hugs for you.
March call the epu and put it frankly, you need your heparin ASAP and they need to understand and sympathise, this is no time to mess up with missed appointments and system
Thanks lovely girls for wishes, hugs and support. I had relaxing evening, felt wiped out after that ERCP, MAY IT BE MY LAST ONE

March - I had the bleed a week after I stopped taking the progesterone but weird things started happening near the end of when I was supposed to fade it out. Like weird bright yellow shadow on toilet paper after I wiped so I stopped back end and started front end and then finished course early as I got freaked out ( but not to say anyone else should finish early). They tested me for inflammation of the blood as I have had weird cramping intermittently since ectopic and nothing seen on scan so that coupled with the bleeding freaked me out a lot x but feel a lot better now that they said I don't need to be concerned. Hope you get a positive result also that helps stop you worrying too. Love to everyone else xxx

Glad you had a relaxing evening lost take it easy and rest lots this next week. Is this your 4th MC? Am I right in saying that?

Emerald sorry to hear your news.
Lost I bet you felt wiped out. I hope you sleep well. Take care

Catching up..page at a time..

flen At 14and a bit weeks, today is the first day day in ages I have had a few hours without feeling sick. It is grim, and by what you have said before you really suffer badly with this - why not ask the GP for something? I know what you mean about accepting it when you actually get a baby in the end - I have felt oddly furious at various times at spending so many months feeling dreadful in the past 3 years without ever reaching the goal. Here's hoping this is the one for both of us. Massive hand hold for tomorrow x

lost hope today went as smoothly as possible x

brummie I cut down pred over 3 wks, and prog over a week, and clexane straight off - I found it all terrifying, but better now it's done. You'll be fine.

mrsd hand holding, hope you get some sleep....

Oh dear just read in prof Regan book that if you MC due to trisomy (mine was 21-Down's and 15) then you do have slightly higher risk of MC again due to trisomy even if a diff one. Does that mean the more MC you have the bigger the risk? Another question for tomorrow! Night all x

emerald hugs, results either way are hard, it sounds like alot to take in,though most likely random I would have thought.

bythesea very moving sculpture indeed

march iam furious on your behalf - they bloody have to fit you in. Is there anywhere else that will see you? Private if necessary? That's seriously shite service. It clearly works really differently in different areas, but is there someone other than the secretary you can call?Or go to go and insist on urgent scan? As you say, you can say about the Coventry protocol. So sorry this stress has been put upon you, its so unfair.

Sorry march hadn't read this last page before posting...I would absolutely agree that consultants know F all about injecting - they never do it. Any nurse can show you - GP, epu, mw...

Good luck for scan today flen, and for your appointment emerald

Hehe. Just had a little look at the march antenatal thread. They all seem lovely (no bitchiness at all like there was on brummie's thread!) but they are stressing about getting spots! Such a different world. I think I'll stick over here.