Recurrent Miscarriage Support Thread 27 - Tests, Treatments and Trying Again

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Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread
www.mumsnet.com/Talk/miscarriage/2404797-Recurrent-Miscarriage-Support-Thread-26-tests-treatment-and-trying-again

Sorry about the bfn twilight. Hoping it's just too early for you and you'll get some good news today.

girlie, completely understand the jealousy and have to admit to feeling it too in the last few months. It's something i never thought I'd feel on this board, as I'm genuinely so pleased when people who have struggled get their bfp and their pgs progress, so I've really struggled with feeling ashamed of myself for being jealous that i was being left behind. I second what everyone else says about emailing, calling and generally making yourself a nuisance (in the nicest possible way), or seeing if they can refer you anywhere with a shorter waiting list. And getting other things ticked off the list in the meantime seems like a good plan.

loopy, so glad the line is darkening. I think it was just or longest who spoke about the sperm hibernating until the egg was released. Hopefully that's what yours has done. I'm with you on the bizarre feeling this one might just work out, but then immediately chastising myself for believing it. Mutual hand holding. My first goal is 5 weeks (a week tomorrow). Feels like a lifetime away.

March barking big hugs to you both xx

Congratulations Loopy xx

Welcome to the newbies, this place is packed with wonderful people and hugely helpful advice so you are definitely in safe hands. I joined in February after finding out I had lost our (Downs) baby at 11 weeks. Found out at my 12 weeks scan and it was one of the darkest times of my life.

I chose not to go to Coventry because I had had confirmation that the baby had trisomy 21, so there was an explanation, if there had been no explanation I would have definitely gone as my first two very early losses were unexplained. I am pregnant again at the moment and am on Progesterone and aspirin and seeing my consultant every two weeks. Interestingly she won't be putting me on Fragmin until later (I'm not sure why) and I have also elected to have the Harmony test done privately through the hospital but I'm hoping I can have it done a little later as I feel I need to get to 12 weeks first.

Twighlight sorry you had bfn at 10 dpo. Like you I always test positive by then if I'm pregnant but there are plenty of examples of girls who get a late BFP so hang on in there xxx

I just wanted to add one more thing. Acupuncture really really helped my cycles and I feel was responsible for my 23/24 day cycles that wouldn't lead to pregnancy turning into 27/28 day cycles that did. I go weekly and the lady I see specialises in fertility acupuncture particularly.

I also put my OH on FertilAid supplements after reading so many great reviews on Amazon. He took FertilAid and Motility Boost after finding out most of his sperm swam in circles

Morning all,
Been away for a wedding with no phone signal so will try and catch up but sorry to those I miss!
hopeful welcome and I am so sorry to hear everything you have been through.
Also welcome to mrsB, hope you are ok. Good luck today.
casio and teach, welcome to you as well.
bumble, flen, mrsC, fifi and sebs great news on scans
barking Hoping it will only be good news to give your DH when he’s back. Been thinking of you and your family, how is your dad? Hope you are feeling better as well.
brummie how you feeling? Hope you are getting through the last week ok before the 12 week scan.
emerald glad going back to work was ok. Hope this week is ok.
sun hope you are ok? How are you feeling?
march Hope the streaks have stayed away and you can get going on the drugs!
thorn hope spotting is nothing bad, hugs. Good luck for the scan tomorrow.
spam be kind to yourself and don’t feel that you can’t push them for results and answers.
bootles sure lack of symptoms is just coming through the other side, hope you are not too anxious.
loopy congratulations!
All good here, just trying to step back from the internet a little and enjoy being pregnant, coming up on 28 weeks which is still hard to believe! So apologies for the gaps in comments and replies, thinking of you all though and rooting for good scans/news/tests.
Big hugs

Haven't caught up yet but will read through this morning. I have finally called the consultant's office, placental histology is not back yet. Apparently can take 12 weeks and the 12 week mark is next Friday. It is unlikely the consultant will see me at the end of July as she is 'very busy' then she is off on holiday for 2 weeks, then she won't want appointments the week of the 17th August as she will just have come back off of annual leave. So the secretary imagines I will be able to have an appointment from the week of the 24th August or in September.

I am so pissed off, I know consultants are busy but they have not even been in touch once, I have chased and chased. Nobody told me in the first place I was facing a 12 week wait. I know the doctor is allowed annual leave and I am being a complete bitch but this is my life! This 'maybe we will see you in a month' is crap and I just needed to vent.

Sorry for the me, me, me post. I will even give myself a

How utterly frustrating spam. I think sometimes health care professionals and the staff that support them struggle to see that to us, it's not just something that happens every day, it's a very important part of our lives that has a devastating effect. I certainly don't think it's unreasonable to be kept informed of what is going on, and also for them to book you an appointment so you have a date to focus on, even if that date might have to be changed if results aren't ready. Very on your behalf. Hope it gets sorted soon x

mrsb, thinking of you today. Hope you got through the weekend ok. Xx

bythesea 28 weeks?! wow. That's so great. Understand the need to be a normal preggo. Nice to hear from you though

Biscuits my only reason for saying about sperm being crap is someone on here said not long ago (but can't remember who) that they thought old people needed sperm that wasn't very old to have a successful pregnancy... Hoping that's not the case and much rather it's the hibernation theory that's true March! Definitely in need of hand holding. Am going crazy here, just hoping that this is our turn! Just tried to call Monica and she is on annual leave so then called the switchboards and managed to speak to another secretary. She said that they wrote to my GP so my GP should be able to give me clexane and progesterone if I want to take it which I just don't know. Clexane is essential as I tested positive for lupus anti coagulant but brain is mush from over thinking what to do re progesterone. Can anyone remind me the point of it? My levels have never been tested so for all I know my progesterone levels might be fine or they could be shocking. I just don't know what to do re that. So anyhow I phoned the GP and got usual Rottweiler receptionist. She ended up transferring me to the pharmacist, who could see the note from the hospital and said would Wednesday be ok, and I was already a tearful mess at having to explain a second time why I was calling, so at this point I ended up sobbing down the phone to her. Boys are at nursery until 1.45, and was hoping to collect prescriptions between now and 1.15, so boys haven't a clue that there is anything going on, and so that there is no chance of getting back late for the boys. She suggested 3 pm, but is now going to see if she can get the doctor to sign them off sooner and I have to wait for them to call me. Why does something so simple turn so complicated. It's only 10.30, I could be there by 10.45!!!

Sebs when is your scan? Fingers crossed this one will be happy news.

Bythesea can't believe you are 28 weeks already, why is it other people's pregnancies seem to fly by so fast?!

Spam crossed posts. Is there another consultant you could see sooner given yours is too busy then on holiday then wanting an easy time after her holiday? Surely they are paid to see patients, not to get to twiddle their thumbs after having had a holiday....

I have caught up now!

March Congrats to you In response to your earlier post, when I see someone I am going to ask if I can have some rmc tests. I am trying to research what to ask for at the moment but I have no clue.

Girlie Thank you, I do feel let down by the NHS the whole after care has been crap.

Onestep Minnie Thank you. I have now chased them and feel crappier than before.

Bootles catlover no counselling has been offered and I haven't asked for it to be honest. Do I ask at the GP? I think the thought of counselling scares me a bit, what do I even say?

Barking I am definitely managing the drama queen bit just fine. I really need to find a distraction, I have started crocheting and am making a big blanket out of squares, one of which is a mini version of the blanket we wrapped Jack up in when he was cremated. I am thinking of you while your DH is away and am so sad on your behalf that you are going through so much on your own. Please come here and rant as much as you need to

Thank you biscuits

feathered so sorry for your losses, I admire your strength trying again and just know we are all here every step of the way

Loopy congrats to you. Fingers crossed all goes well. I may call again next week and ask if I can see someone else. I feel I can't begin to move forward before we have the results. I don't even know if I want there to be a reason or not. I don't know which is worse.

Teach sorry for your losses. Welcome to the thread, but sorry you find yourself here. I came here in May after my 2nd loss and everyone has been so kind to me. I was welcomed with opened arms and have been here moaning ever since. Joking aside, they are a lovely bunch here and I have received some fantastic advice and support.

Thank you bythesea hope all is well with you.

Spam that is annoying, I have my fingers crossed for you getting an appointment before her holiday or with another consultant.
Congratulations sebs and loopy

Spam I was referred to the recurrent miscarriage clinic at The John Radcliffe Hospital and they offered me counselling there, also my last visit to EPU a few weeks back during my miscarriage, again counselling was offered by the doctor there.

I agree it's a minefield not knowing what you should or could be asking for in terms of tests and general support. I've only managed to gain bits of knowledge via the info posted here by the fantastic ladies and other ladies blogs. It's time consuming and also everybody has individual needs and circumstances. It takes a whole to work out what your own situation is and what you need. Xxx

Hi all. So have had a bleed this morning, bright red blood and although it has stopped for now I am still having lots of cramping. Been to the EPU who did a physical examination but wouldn't scan as according to NICE guidelines we are only allowed one a week

So I am in limbo, a place I know all of us have been. And I am losing my mind thinking why the fuck is this happening? All my tests were normal, the foetus was chromosomally normal, I have no idea what is happening and I hate it.

Oh gosh. So sorry to hear you've had a bleed flen. I really hope it turns out to be innocent but totally understand your fear. Hand holding from me. When will they scan you again?
I'm also being paralysed by fear. Spotting and cramps just started. Why can it just not happen without these episodes for us?

march hand-holding for you too, god it's just so incredibly hard. Can you call your EPU? Scan is on Wednesday. I just feel so bleak.

flen and march - huge hugs lovelies. God, it's never straight forward is it. Keeping everything crossed for both of you that it's not what you are fearing though. march - can you request a scan at your EPU too?? flen - the one a week rule seems very harsh if you have a specific reason i.e. bleeding and cramping - hope the next couple of days pass quickly for you. xxxx

Oh god Flen hand holding here too. I can't remember how far along you are? When you say everything was chromosomally normal do you mean the 12 week scan/Harmony test or were you talking about a previous pregnancy?

Hey sebs - our last pregnancy, had karyotyping done and it all came back normal. This time I am 6 weeks.

Thinking of both of you, march and flen . This limbo is the worst! Hope it all stops very quickly and that everything is fine!

It's not over yet. So many people with early spotting and it's still been ok. After the spotting settled the other day I had sort of accepted that this pg was just going to be one with spotting throughout and not easy, but it's not as easy to see it that rationally when it actually happens again.

No point in me doing anything about mine. I'm not even 4 weeks till tomorrow. I think they'd just laugh if i called!

Ah ok. Yep it's definitely not all over yet. I had bright red spotting twice before my BFP and dark red spotting once at about 6 weeks. I know Cloud had spotting too a few times. Obviously the cramping isn't great however sometimes uterus stretching pains can feel crampy. Everything crossed for you Flen. I'm do sorry you have this worry, it's bullshit

Am on school bus with kids on way nack from sports day so will do a propper catchup later but just want to say march* i am WILLING this on for you and flen* i completely empathise with the cold numb pain of waiting. I sincerely hope this is nothing to worry about and i am sending you my love and my strength. This is exactly why this thread exists. Hand holding across the etherweb... Xxx

Oh gosh March I missed your post where you said you are going through the same. Big squeeze for you too

*back

Thanks everyone. This thread is keeping me (mildy) sane