Recurrent Miscarriage Support Thread 26 - tests, treatment and trying again

[bythesea82]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread here

sun just popping by to say

Freckle As people say you might be covered anyway... But I'd be really annoyed if my DH did that! It seems like we're going through it - the least they can do is perform on command (OK - I know IABsmidgenU...)
My DH works away - feel slightly sheepish about his extra 8 hours travelling overnight last cycle for what was probably a CB digi oversensitive/false alarm peak as the ICs much darker 5 days later... But anyhow - have told him he needs to be around at the start of next predicted Ov week - so he'll take some annual leave - no pressure!

Congratulations Sun. I think a sex does make it feel more real though we wanted a surprise in my first (blissfully ignorant!) successful preg.

sun lovely news!

Lovely news sun and glad to hear thorn is still hanging in there. also congrats to twilight for your all clear.

March AF is due sometime in the next week, so I will probably have started my next cycle by the appointment on Weds. Depending on the protocol they use (natural, downregging, suppressing ov etc) I could possibly be having a frozen embryo put back in in late August fingers crossed it survives the freeze We'll know more next Weds .

sasha I don't remember any symptoms from the clomid, perhaps it's doing lots to you - twins!!! did I mention my mate took clomid, had an awful time on it and got pg with triplets?

bootles thanks for asking about my dad, he's getting more physio on the rehab ward. Still no idea how he's going to manage at home though. The doctor asked my mum (they are living in a building site so it's not safe for him in the wheelchair, trying to make everything disabled access, work was delayed by an incompetent architect for over a year...) if he couldn't go and stay with me or my brother while the building work was done?! Yes, because I live in a massive house with disabled access and a spare bedroom, toilet and disabled access shower on the ground floor don't I?!?!? You couldn't even get my Dad into my house, he hasn't been able to visit for a couple of years as the stairs are really steep so he can't get up to the toilet and that was when he could still walk).

sun Amazing!!!!

freckle I agree with everyone else, you've got it covered .

twilight technically I'm in the 2ww.... Don't be holding your breath waiting for anything from me though, I gave up pissing on sticks years ago, not worth the disappointment and waste of money!!

March Yes having a break, can't face the Progesterone roller coaster ride again this month, my hormones and emotions have been through enough.

Still feeling emotionally fragile, anxiety attacks are just the pits!! I feel like I've put on a stone in weight too, going to go swimming for next couple of weeks and ease myself back in gradually!

I'm crap at pill popping and just wondering when/if the next time comes round, how I'm going to cope taking all the meds.
I gave up taking the Pregnacare after the 2nd mmc as they taste disgusting to me and I have to crush them. Sound like a right wimp don't I!!
Also not sure whether the folic acid gives me wind.
Fed up with the lot of it, in no mood to think about making a little person right now! The next few weeks and months are full of family gatherings, christenings and aunts and uncles wedding anniversary parties, with all my cousins and their lovely families. More mental battles with myself! JOY! Sorry I'll stop my self pity now!

Hello all,

I promised baking tins I would pop in to update you all with my good news. It has been a while since I have graced these wonderful pages. So my story. On my fourth pregnancy (2 mcs and a term for med reasons) we got a clear 12 week scan in november 2014.
I have received amazing support from the women on these pages, and I hope have offered some in return. After the scan I found it increasingly difficult to log on and see the endless stream of women joining and sharing their pain. I also found that in my head I needed to become not the woman who has had all the miscarriages, but the woman who is having and will have a completely uneventful pregnancy. Part of that meant I came to the thread less and less. I think this was healthy for me, but I should have explained at the time, and to those of you who I left hanging I am sorry.

So, ladies I got my happy ending. On Sunday morning after a lengthy induction I gave birth to all 8lbs of little baby girl, Cissy Mary. She looks nothing like me, full head of black hair, and I am happier than I ever thought possible.

I always suspected that I would need to revisit my experiences of the last three years, to try and incorporate me as the woman who has lost multiple babies, with me as the woman who now has one, and returning to these pages is the start of that I suppose and it feels a bit over whelming.

I really want to know how you all are, but I know how fast these pages move so it may take me a while to catch up.

Lots of love

Belleende and Cissy

Thank you for sharing your story Bellende (always loved your name!) and a massive congratulations on the birth of your baby girl Cissy! Hoping you'll post a cute pic soon on the success thread.
I completely understand the need to step away and try and be positive about your pregnancy, but it is lovely you have come back to share your news and provide hope to us on here. xxx

Completely understand onestep and i think you are very wise to take a break (wish i could be equally so, but the urgency had taken hold of me!). Hope you're being kind to yourself. Don't worry about the weight. It's normal and won't be forever. I've also put on all the weight i had lost on the 5:2 but my current thinking is fuck it. The big vitamins are pretty horrible. Have you tried folate instead of folic acid? I got the ones flen posted a link to a couple of threads ago and find them ok. They seem to dissolve very easily

Lovely news belle. So pleased to hear you got your happy ending and completely understand needing to try and stay positive by visiting us a bit less. Hope you're enjoying snuggles with your new arrival. Do you mind me adding you to our thread babies list? There is also a photo thread for 'survivors' of rmc if you wanted to post a pic of cissy, we'd love to see one. The link is here

Ah ok many thanks March, I'll find Flen's post. I here you on the urgency thing, I'm 4o beginning of Sept and that alone is making me anxious beyond belief. I am really fed up with the weight gain creeping up on me over the last couple of miscarriages, really do feel I need to lose it, just can't fit in to my clothes, partly because my belly has gone to jelly!!

Belle wonderful news on the birth of Cissy, I love her name. I'm fairly new to this forum so didn't know your story beforehand. Completely understand why you had to step back and recharge. xx

Belle wonderful news, very happy for you . Thanks for coming back and sharing, it's lovely to read the happy endings. Don't apologise for stepping away to protect your mental health!!! We all get to that point at times, and you had the best reason for it .

belle I have tears in my eyes reading what you wrote. I am so happy for you and completely understand the need to move away for a while. Just very pleased that you are ok, Cissy is ok and all is happy!

onestep I think these were the ones I posted that march mentioned... www.amazon.co.uk/Solgar-Folate-Metafolin-800-tablets/dp/B001LR2RVQ

Hello ladies, newbie here looking for some support and guidance, been following your threads with interest. My stats are:

Me 43, DP 38, DS 2.
MC Aug 14 5wks, MMC dec 14 10wks measured 6 no hb and ERPC, MMC 6wks June 15 ERPC sent for testing. No fetal pole, irregular gestation sac.
I have had some bloods done after second MC which came back normal but now booked appointment at St Mary's for end July and Mr a Shehata in Harley St in August for NK cells testing. We have seemed to get pregnant quickly each time but none got past 6wks and no hb. Feel like I'm in last chance saloon here with my age and cannot understand it after no problems with DS. I find there's no support out there except these forums and friends don't understand, how can they if they haven't been through it. Any help, advice, support much appreciated! Thank you.

Great new on your scan Sun

Lovely positive story Belle and totally understand the need to step away for a while. Congrats on your baby girl.

Sounds like you have been through the mill Emerald, sorry to see you are in a position that you have to be here but this is a great place to be filled with lovely supportive women who can give support and advice.

OneStep, totally understand the need for a break, think it will do you the world of good. I was thinking of having one myself this month as so I can enjoy a glass of wine guilt free when remembering my lost baby on the 11th. But like March i have the urgency as well, especially as I am already 40 i just don't want to waste time.

Sounds really negative but if I am going to miscarry again I want it over with so i can start getting some testing done.

Emerald hi hope you find some support and advice her. Absolutely super bunch of ladies on her made with super human strength and determination!!

Thanks Flen and Bunny xxx

Bunny thinking of you.

I know this May sound cold to some of you, but I have never calculated any of the due dates of my mc or ever thought I should remember them, i think I just shut those thoughts out as it would be too overwhelming.

I'm running from extreme anger to sorrow feelings today. I hate hate hate what mc does to us!!!!!

sun fantastic news! So pleased for you!

freckle I agree with*twilight re egg

Sasha hope your hormones regulate soon - I have never taken clomid but anything that affects hormones is bound to be hard going/result in emotion release - hugs

onestep argh to waking at 3am, hope you find a solution, everything is worse at 3am.

Am doing one page at a time..

barking sorry to hear there are issues getting your dad home, yes wouldn't it be great if you could click your fingers and have your home sorted to accomodate him! Hoping a solution is found soon. Also hoping August is when things move with the ivf.

onestep a break could be good. I know you don't want to think about meds but pregnacare isn't really essential - another variety may suit you better, or a folic acid with vit d and calcium, or the one flen suggested. If you have a good diet the vitamins are covered, just the folic that's essential. But for now don't think about it - do your break properly with wine and no meds and all of that x I remembered the first 2 due dates, and I if I sit down and think I can work out 3,4 and 5, but as time went on I blocked them out too ( blocked out even working out a due date), and the mc dates took over in terms of significance. It's self preservation.

belle huge congratulations on the birth of Cissy, and thank you so much for coming back to tell us. It's lovely to hear! Absolutely understand your need to try to put yourself into the normal pg category and take a step back from here x

emerald welcome, and sorry for your losses. It sounds like you have the testing in motion -RMC clinic then NK cell, which is the path many of us have taken. Stay on here for loads of info and support.

Thank you Bunny, Onestep and Bootles, (sorry can't work out how to make it bold on here?!)
Yes it has been a hell of a 10month emotional roller coaster as I'm sure you all know too well. I've only learnt about the RMC clinics from reading about them on here, otherwise I don't think I would have known. Really hoping they find something as that would at least give a reason other than maybe my age.
I see you're talking about meds, I'm just taking pregnacare conception and aspirin 75mg but wondering if I should be doing more/looking at diet? I'm only having odd glass of wine but wondering if I should even be doing that? It's all such s minefield! DP doesn't agree with him taking supplements he says he gets all he needs from his diet.

Thanks all. Still can't quite take it in that we have finally got to a 12 week scan. And that it was good news. Doesn't seem real somehow. Trying to enjoy the relief before the worry sets back in (ironically today I'm worrying that I'm not having any stretching pains, after being almost constant yesterday - need to slap myself with a wet fish).

bellende - so delighted to hear your lovely news. Huge congrats on the birth of Cissy - and what a lovely name. Completely understand needing to step back lovely.

emerald - so sorry you find yourself here but welcome. These ladies have been a lifeline for me over the past few months.

onestep - hugs hon. Doesn't sound cold at all not to calculate due dates. I stopped at the 4th mc as just couldn't face another date that I would always associate wih sadness.

x

Congratulations Bellende on the birth of Cissy, such wonderful news and gives a lot of hope! Sun, thank you, and congrats also on reaching the 12 week scan, that's a big milestone to get too.
Onestep, can completely understand also not calculating due dates, it just brings more sadness. My recent MC last week happened when the previous one was due, which just compounded the heartache really.

Bellend - congratulation on the birth of Cissy. I saw her pic on the grads thread and she'd gorgeous. Please don't fret about having stepped away when you needed to. I sometimes have to dip out if I'm going through a tricky phase too.

Emerald - so sorry for your losses and that you're in a position where you have to join us, but warm welcome and glad you found us. I hope you find it useful. I think there is some controversy about the use of aspirin if it's not indicated - I'm sure someone will be along in a minute who is more in the know. I'm sure the odd glass of wine is fine - I don't think it helps to cut all the fun out.

Barking - sorry to hear about the difficulties with your dad. Hope things end up being a bit speedier than was initially suggested re. IVF.

Onestep - No one will think you cold - we all deal with these things differently. I'm a bit like you and Bootles in that I block them out. After the horridness of getting through the EDD of MC1 I stopped registering them when the GP told me. That said, I do have a vague notion that baby number 1 would've been 2 next month.

Bunny - hugs. Relate to that feeling. Hang in there. x

Consult with Prof B tonight. Mostly what I was expecting; i.e. lots of reassurance that I should get there, plan of progesterone from day 21 etc etc. Their standard protocol when normal NK cells basically. But with aspirin from 8 weeks due to possibility of clotting problems (one off high lupus anti-coagulant test). It really felt like he'd looked at my history and had a proper think about it which was really nice.

Morgan - wanted to say something to calm your panicking but struggling as I share most of them! I think we technically are a fair way off needing to seriously consider surrogacy, but the thoughts and imagining worst case scenarios happens all the same. Is surrogacy something you've looked in to much? I have a bit - but as you say its costly. I recently had a friend offer to be one for us if we needed one which has put the idea in my head again. I find it difficult to think about though - what if there were complications etc.

Emerald I was also going through my 4 mc last week. A pregnancy in unknown location (PUL), thought it could possibly be ectopic, but my hcg no.s started to take a dive pretty quickly. Thank goodness my wonderful dh just stopped me in my tracks and whisked me straight off to the hospital when I found out after doing a test, thanks to the ladies on here alerting me after I posted some symptoms (I'd also had what I thought was my period, but knew it was an abnormal bleed for me) so things weren't quite adding up. The strangest couple of weeks I've had in a long time, but strangely felt it was uncontrol, I think partly thanks to the fantastic monitoring by the hospital.

I'm sorry to hear that you have been suffering too. Xx

Sun have you been taking meds such as Coventry protocol so far? Really happy for you, it's such an achievement to make it to such a pregnancy milestone. Xx