Recurrent Miscarriage Support Thread 26 - tests, treatment and trying again

[bythesea82]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread here

Sorry I've not been around much. I've really been struggling this week with the delay of ivf and really wondering if we'll ever have a child. Had a girl at work who is 9 weeks, she told me a few weeks ago as she had bleeding and knew my history so wanted some advice. But I've been struggling with her constant updates and saying she knows how I feel which I know she's trying to be nice but she has no idea as she's not had any mcs. She had a scan yesterday which I didn't know she was having so got sprung with her showing me a photo on her phone. I felt bad cos I just said oh lovely then pretty much just turned round. But I can't do scans it's too hard, I just feel like such a horrible person.

sun so glad you had a good scan :)

belle could to hear from you, can completely understand your need to disappear from here.

barking fingers crossed for next Wednesday and I hope things get sorted with your dad

sasha I don't remember getting any side effects on clomid - what dosage are you on? Are they monitoring follicles?

brummie best of luck for tomorrow x

Flower don't feel bad. I've felt the same, I find myself in those situations all the time... I'm freelance, so I go in to companies and work for a few weeks or months at a time. Often get chatting and get to know somebody who's pregnant in those few weeks, but they obviously don't know my history and I often have to cut the conversation dead or make my excuses and then they think I'm some freelance weirdo girl!!

brummie best of good luck tomorrow too xx

Twilight I've discussed surrogacy quite a bit with close friends who are gay & considered it but think they'll go for adoption instead. Amazing that you've had a friend offer!
My thinking was in the next few years there are very limited options for a surrogate we know as my friends mostly haven't even started or nowhere near finishing their families yet & DH's sibling has (actual!) hyperemesis so probably couldn't go through it again. Then I'm concerned about the lack of legal protection in the UK for biological parents if it's your embryo in another host - so if looking into a country where it's more contractual (like the US) then it would be tens perhaps even a hundred thousand...
So a while down the line but maybe something to have in mind for house/career decisions in the next few years... How did life get so complicated?!

Hi onestep - yes have been taking steroids for high nk cells, progesterone and aspirin. Although the last two were more 'just in case.'.

flower - it's bloody tough having to deal with pg colleagues / friends - you are definitely not a horrible person! I've had to back off seeing quite a few friends while they have been pg.

brummie - best of luck for tomorrow hon. Hope you are holding up ok.

x

Ok thanks Sun I'm not sure whether to take aspirin. Prof Quenby suggested progesterone, press and heparin, but I often suffer with nosebleeds (have done since young child) so I wasn't happy about the heparin. X

**pred

Hi onestep - yep opinion seems pretty divided on aspirin. The private consultant I went to said it wouldn't do any harm (I don't have any clotting issues), but the JR RMC were against it. In the end I just decided to throw everything at it and take the aspirin as well. x

Hi Sun yes all my clotting tests came back normal. I wrote to JR RMC about my Coventry results and treatment plan and heard nothing back since April, will call them again and make sure my letter was actually received. X

Twilight thank you, I agree it would be no fun cutting out all the fun. Someone else said about coffee too, even decaf having lots chemicals, but I love a coffee! Might stop the aspirin in case it clouds tests for clotting at the clinic. Who is Prof B?

Emerald, welcome and sorry for your losses. Sorry, I haven't read yesterday evening's posts yet, so I'll catch up properly in a minute. I just wanted to say, definitely stop the aspirin before you have any RMC tests, it would absolutely mask or reduce any clotting conditions which your Dr may otherwise treat you for. Many drs now follow the latest research that says 'just in case' aspirin can actually contribute to mc, and advise against taking it where no clotting disorder is detected.
Prof Brosens runs the Coventry implantation clinic with prof Quenby. I can't attach the info here, but you will find them if you Google their names. Many of us have been there and had good results (including the reason that I'm up and posting at 04:45! Thanks baby Scott! )

Congratulations to Belle! xx

justonemoretimeagain.wordpress.com/2014/10/05/it-cant-do-any-harm-the-aspirin-problem/ here's my blog article about aspirin. If you scroll down there's also a link to an interview with prof B.

Welcome emerald. sorry to hear about your losses and the terrible time you've been having. I would second that aspirin should not be taking before the testing, and latest research says not before conception because it interferes with implantation. Coventry definitely sounds like an option with your pattern of losses.

Good luck today brummie. Keeping everything crossed for you x

Afm. Had my consult with prof b last night. He told me off for testing too early and said I'm the victim of the sensitivity of the tests . He made me feel like a bit of a plonker for getting upset tbh, which wasn't great. I know the last two losses were very early, but i would still have known, even if i hadn't tested that early. He says to wait until 2 days after af to test next time. Impossible. I might make it to 12dpo if I can muster a lot more willpower, but never 16! anyway.

Also a bit confused by what he said. I asked if the prog could have caused healthy eggs to be rejected and he said no, they would have been unviable eggs, but then went on to say because i haven't had a successful pg after 4 months of prog from 7dpo I should change to taking it from bfp. Bit as this feels like conflicting advice. Anyway. From bfp it is.

Hi onestep - I'm not sure that the JR RMC will actually prescribe any meds (if that's why you have written to them with coventy protocol). The JR were supportive of me taking progesterone and heparin when I saw them after 3rd MC and said to contact them as soon as I got pg. But then when I did contact them they just said I had to go to my GP to be prescribed the drugs! In the end I got a private prescription first off and then when I needed more just took the packets into my GP, so it was a bit more of a done deal that they needed to prescribe them. It's a bit of a mine field isn't it. All very well for RMC to say that they are supportive but it's actually the GP who needs to be willing to write a prescription. If you are seeing the RMC again, might be worth clarifying the actual process to get the drugs before you get pg again, so it's a bit less stressful once you are pg. X

Just a quick message to say hand holding for Brummie today, thinking of you

Good luck brummie, huge hand hold from me, we are there in spirit xx

Thinking of you today Brummie.

New thread here www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again

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