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Miscarriage/pregnancy loss

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Recurrent Miscarriage Support Thread 26 - tests, treatment and trying again

999 replies

bythesea82 · 17/06/2015 14:40

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread here

OP posts:
Brummiegirl15 · 25/06/2015 19:41

Boozle wonderful news!!! Congratulations and a gorgeous name!!

Thanks so much Littlebear Christ it's stressful - all I can think about is what happened last time. All I can think is "by now my baby had died" and I'm finding that mindset really hard to shake and it's really damaging.

But I do still have symptoms - tingly boobs. Sickness comes in waves and has reduced slightly and the tiredness. Christ I feel like something is sucking life out of me. Oh and I am crying lots

But I can't shake what has happened previously and people will say "you can't think like that"

Well it's happened 3 times, statistics would suggest I'm not being unreasonable

Lovemylittlebear · 25/06/2015 19:53

I have been thinking about you this week...it's completely normal for you to be "thinking like that" given what's happened before. Fingers crossed this time though is your time :) lol it does annoy me when people say you shouldn't think that or put that thought to the back of your mind...lol they know nothing about thought suppression and how the mind works....the more you try not to the worse it gets...haha I'm a nightmare because of my job and when anyone gives me bad advice I find my mouth on auto pilot explaining how the mind works and that you can't control your thoughts lol and give them an alternative statement that would be more helpful - geeksville... No wonder I have no friends haha :) xxx

Frecklefire · 25/06/2015 20:17

Boozle**, i must have missed a page, i didn't know it was your time!!! HUGE CONGRATULATIONS HON!Grin
Morgan* and longest* how would i even know if i had pcos?? They used to say rhose with it foubd it hard to get pg, but they dont think that anymore do they? I'm convinced my prob since ds is that have put weight on and its thrown horemones out (hence mid monrh blead). I raised this with consultant but he just shrugged and said no point testing as would treat in same way anyway (progesterone or hcg from bfp). I'm taking the agnus castus, avoiding bpa and cutting down on contact with phthalates. Im waiting for coenzyme q10, whet else could you recomend? Am worried i am as had gestational diabetes with ds too...

Frecklefire · 25/06/2015 20:41

Sigh...typos...and i don't even have fat fingers at all, just ones with excema!!!

ThePopAndCry · 25/06/2015 20:54

boozle congratulations! What a lovely, lovely name. Hope you’re all doing well.

flen whispered congrats for the positive test. A line is a line, remember. I will be all fingers crossed for you for the next test.

bubble Leeds have said to me heparin from bfp, no need for a location scan. Don’t know if that helps.

Waves to everybody else.

It’s my dd's due date tomorrow and I just want to write this post to publically mark the date and to say that I would have loved her so, so much. She will always be part of our family and I hope that she knew how much we wanted her. Here’s to all the lost little lives that we loved dearly but didn't make it and thank you so much everybody for being here over the last few months. You really have been an enormous help. x

Minnie74 · 25/06/2015 20:55

Wow congratulations boozle what a beautiful name and such a lovely meaning too. Enjoy the snuggles!

barking wish I could get out of the classroom- my boss is gradually turning into a monster and I can only see it getting worse. Sorry you're still waiting for ov- so bloody frustrating.

girlie frustrating to be told go away and keep trying but yay for being a spring chicken!

flen wish I could help with the prog but really no experience at all. All this is such a mindfk! Why can't it just be straightforward. So hopeful this is the sticky one for you though x

brummie impossible not to worry about the worst case scenario when you're round your danger zones. You're symptoms are so positive and strong though and soon this week will be over and done with and hopefully you'll feel a little better for getting through it.

My friend is in labour as we speak and her husband is 'helpfully' keeping the world updated every five minutes on Facebook 'waters broken, contractions 3 mins apart, contractions 2 mins' FFS shut the fucking fuck up!!!!!!

OneStep2015 · 25/06/2015 21:02

Barking I will write a letter, I said I'd write it after my 2 mmc but of course time goes by and when hormones have settled, my mind settles in to that 'oh one day I'll most probably need my local services again and best not to complain'. My first miscarriage was immediately after a painful TVS at my local EPU. I'd had 2 previous to that not one bit painful and quick, blood hcg were only taken after the first scan (where nothing was visible at 5wks) and they weren't repeated for some reason. At the 3rd scan a tiny empty yolk sac was seen at the top of my uterus. I was sent away and an appointment made to come back in a week. But I walked out the door and started miscarrying on the way home. I alerted EPU to the bleeding but just told if it worsens to go to A&E and I shouldn't bleed after a TVS. Well the next day was Xmas Eve where my symptoms worsened slightly, managed it all day, then Xmas morning started bleeding heavily, NHS 111 made an out of hours appt to see the GP at the hospital. A lady in a 4x4 drove in to dh's car on the way there. GP could do nothing obviously and made an appt for a scan Boxing Day in main Gynae ward. We arrived there waited for ages and ages, enquiries at reception and the lady thought another couple was us and let them be scanned before us. Gynae nurse saw us afterwards and we watched her write our name in the book for a follow up scan New Years. We arrived New Years no trace of our scan appt. Since that first miscarriage I have suffered bleeding after sex close to af, have been to the dr numerous times, not one has battered an eyelid about it even though I kept going on about my progesterone levels. Was told my progesterone 'is fine as you're managing to get pregnant' and then sent away, oh and to try more lubricant lol!!! Bloody useless!! 2nd mmc had really strong pg symptoms up until 7 weeks. Started spotting/bleeding on and off, persistent shoulder blade pain. Talked to my dr on the phone was told I'd be fine, hang on for 12 wk scan. Mentioned to MW, told to tell GP. Took ourselves off the local A&E there for four hours, cannulated, told 'still pregnant and blood tests are all ok' no actual blood numbers given to us, no sonographer available to scan us, sent home. Went to 12 wk scan, but had substantial bleeding two days before, I knew it was all over. Scan confirmed ended at 7 weeks. Shuffled off to a tiny tiny dark cold cupboard with no windows and two chairs, to take in the news and wait for a dr to see us. Some political rubbish conveyed to us about why the EPU head nurse couldn't talk to us. Then half hour later told she now could talk to us. Went home, miscarried in the car 3 days later on the A414 at Hemel Hempstead. Dh drove to the urgent care centre in Hemel where a wonderful nurse (also suffered 3 mc herself) took care of me, got me seen by a lovely dr and took away the fetal sac. I was having contraction like pain, could barely talk, and was slightly out of it, I wish I'd asked for it to be tested. Finally got home at 11pm at night, awoke in shock at 2am, covered in sweat, blood and hyperventilating, called an ambulance and was seen to, they sat with me for a good half hour on the sofa at home until I was alright. ALL of that, potentially, could have been avoided right from the beginning with better monitoring and care, perhaps money wouldn't have had to be wasted by our call to the ambulance service and our trip to A&E too. As the EPU nurse said when I told her I'd manage the mc at home, some women when told the pg has ended, then, their bodies let go and allow them to mc, if I'd known sooner my mind might have allowed my body to let go sooner.
I realise every single one of you on here have your own, most probably worst stories, experiences than mine, but I'm still angry about the mismanagement of early pregnancy. It takes a couple of miscarriages and lots of days spent googling and gaining enough knowledge to go in armed to the Drs to start asking the right questions. Sometimes I wish there was just one 'go to' website that had every thing you ever needed to know about miscarriages.

I'm sorry if I'm ranting on, I'm slap bang in the middle of this slow mc and I realise not everyone will agree with my view point, just thought I'd just tell it from my current perspective. Sad Angry

Minnie74 · 25/06/2015 21:06

Oh pop my love, x-posts. What a beautiful thing to write and I know she knew how very much loved she was and still is. Tomorrow will be so hard but such a special time too. Sending you strength to get through it. Thinking of you so much tomorrow. Huge huge hugs xxx

Flen · 25/06/2015 21:08

onestep it makes me so sad to read what you've been through, and sadder still because I know many of us have had similar experiences. I think the more of us that complain, the better. I know I have and even if it doesn't make a difference, I felt like I had a voice.

Here is a useful site that has lots of info about miscarriage (although sadly not how to navigate the sodding NHS) sites.google.com/site/miscarriageresearch/home

And here is my blog which I include because I am a show off sometimes it helps to know that you're not alone thingsaboutmiscarriage.wordpress.com/

Flen · 25/06/2015 21:09

pop hugs hugs hugs, love doesn't ever go away.

OneStep2015 · 25/06/2015 21:22

Thanks Flen hugs. I will look at those links. I too am consumed by the horror of other sufferers. I do know that massive amounts of investment is now going in to investigation of mc, let's hope one day soon we can benefit from it.

Marchgirl · 25/06/2015 21:24

Massive hugs for tomorrow pop. You will always love and remember your little girl. I hope you find some peace tomorrow from the passing of her due date. Did you say you're going away this weekend too? I hope you all have a lovely break and manage to get away from it all xx

Marchgirl · 25/06/2015 21:34

What a difficult time you've been through onestep. You're right, it's so sad that so many of us go through such difficult experiences. I have to say that my epu have always been brilliant, but others, like my consultant and the doctor who diagnosed my first mmc ("I don't even know what I'm supposed to be looking at; all I can see is an empty sac") Could definitely improve their bedside manner. And the 'rules' need some revision, particularly around the definition of rmc as 3 consecutive mc. Some earlier testing could save a lot of heartache and stress, and help people feel like they were doing something. Lots could be improved. Let's hope things change for the better soon

IFinishedTheBiscuits · 25/06/2015 21:38

Pop Flowers She knew.

Brummie, my sister suggested my negativity was 'sending a message to the universe' and if I believed I would have a miscarriage, I probably would! First, I don't believe in 'the universe'. Second, I never expected to have a miscarriage the first three times but it still happened. I don't think people can possibly understand if they haven't been through it. And some people are just unintentionally unhelpful.

Boozle, congrats!

Minnie, I'd kill DH if he did that on Facebook...

Flen congratulations. My Coventry results buddy, you've left me behind. I must try harder not to fall out with DH this month. Grin

Tanny, is there a Children's Centre PND group you could go to? There are also two online courses I heard are as effective as counselling, will try and find and post later.

Frecklefire · 25/06/2015 21:42

Thinking of you and your little girl pop**. I hope tomorrow will offer a release from the pain. I hope you will find comfort. I am sending you a huge hug hug. Xxxxxxxxxx

BumbleBee0 · 25/06/2015 21:52

My thoughts are with you, your baby girl and family tomorrow Pop. Sending you love and a big cuddle. Flowers xxx

Brummiegirl15 · 25/06/2015 21:54

Oh Pop I've just a shed a tear. Beautiful words and she absolutely knew.

Much love xxxx

IFinishedTheBiscuits · 25/06/2015 21:57

Here is one site recommended by GP who said he thought online support for depression was as effective as counselling. I think it was this one, it was a while ago!

www.llttf.com/index.php

OneStep2015 · 25/06/2015 21:58

Pop beautiful words, much love and hugs to you. Xxx

IFinishedTheBiscuits · 25/06/2015 22:00

moodgym.anu.edu.au/welcome

And I think that's the other. Australian site rings a bell.

mrsdiddlydoo · 25/06/2015 22:04

Pop beautiful words. Will be thinking of you tomorrow. Sending you a huge hug and lots of strength to help you through the day xx

onestep I always find it helps to write things down. It's crap what you and everyone has been through. I hope things start looking up a bit soon. You will get passed this eventually x

IFinishedTheBiscuits · 25/06/2015 22:05

I might be mixing up counselling and CBT. I think GP said online CBT could be as effective as face to face CBT rather than online CBT vs counselling... Don't quote me though.

MrsConfusion · 25/06/2015 22:22

pop big hugs for today and tomorrow. Your love shines through your words.

onestep I'm glad you can write it down. It is right to rail and fury at it. You have not been treated well and none of this should be happening to you, or any of us.

I've just had a gush of bleeding Sad so wondering if this is mc4. Meant to be at hen do this weekend. Including spa. I don't know what to do or feel or think. Stupidly part of my brain is blaming DH as tonight he started talk about 'when you're on mat leave' and I think the universe heard him Sad

OneStep2015 · 25/06/2015 22:42

MrsC massive hugs, saying a little prayer tonight and hoping that you'll be ok xxx

IFinishedTheBiscuits · 25/06/2015 23:17

MrsC, so hoping everything is ok. My (limited) understanding of 'the universe' is that you get what you visualise (or project to the universe), so your DH's positive thoughts about maternity leave would help make maternity leave happen.