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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

FET Sept/Oct

996 replies

Lolly2803 · 02/09/2016 17:36

Hi ladies,
I am due to start an FET in Sept/Oct and wondered if anyone else was too?! Had my first cycle of IVF in August but due to fluid in my uterus and thin lining had to freeze everything. I seem to always have fluid mid cycle, including natural cycles. Very worried that it will always be a problem and will never get to use my embryos. Having a hysteroscopy the week after next to check incase anything in there but doc suspects not. Would be great to have a few buddies! xxx

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Bear2014 · 06/10/2016 08:43

Thank you ladies. Part of me feels like I can't even really moan because we have our DD. Maybe we should just do our kitchen and go on holiday. In all seriousness though, we may not be lucky again but we've been lucky once and I can't imagine being in your shoes. My pain doesn't compare to yours.

Glad the hysto went well Banana. That does sound genuinely encouraging.

It really helped me what you said about the genetically abnormal embryos. That it seems our AA blast was probably abnormal but our early blast might not be. And that if we can get my supplements and drugs right in the future we may have a successful ICSI.

Hope everyone has a good day xx

Lolly2803 · 06/10/2016 08:59

Bear you are lucky to have a DD but that doesn't mean you shouldn't feel pain or sadness about unsuccessful treatment attempts. Personally I never think a holiday is a bad idea!!! One option could be get away for a bit, enjoy Christmas and use your other Frostie in January? Just an idea!
I don't pretend to be an expert or even have knowledge of this outside of reading wise Banana's posts on embryo abnormalities but it sounds like there's every chance your other Frostie will be perfectly normal and waiting for a snuggly lining to call home for 9 months. Don't give up, it's far from the end of the road. xxx

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Bear2014 · 06/10/2016 09:11

Thanks Lolly. We always knew we were gambling with our emotional well being trying for no.2. Part of me wishes we had just stuck at one, owned the decision and spent this year enjoying being a family of 3 and doing up our house. On the other hand I probably would have woken up in 5 years and regretted it.

I'll see what they say - I think I want to use the frostie this year if possible and go into 2017 with a clean slate but they might not even let me. xx

bananafish81 · 06/10/2016 09:28

bear it's not infertility top trumps. A failed cycle, especially following a loss, is completely devastating regardless of the background situation. Please be kinder to yourself!!

I realise that in a SS relationship the 'we went on holiday and got drunk and got the ironic natural BFP' ain't gonna happen (which is so often trotted out on these threads, which gives me the rage, and my partner has functioning testicles!) but a bloody great holiday sounds most restorative!

Thinking of you again Flowers

Lolly so I started cyclo progynova (HRT tablets to simulate a cycle - 10 days of progynova tablets and 11 days of tablets that are progynova combined with a progestin - which I take for 3 weeks and then wait for a withdrawal bleed in the pill free week, basically exactly like the pill!) today, plus a drug called pentoxifylline (Trental) which some studies have shown taken with 1000iu vitamin E has helped women with thin endometrium in the cycles preparing for a treatment cycle.

Dr wants to see me in a month to review, though said obvs I can come in any time if I have any questions or concerns

Monday would have been my due date, so in a wonderful twist of timing actually going in my favour, I'm starting a new job then, which I'm really excited about. It's a 3 month contract (poss to extend if we mutually agree) so basically absolutely perfect to keep me busy for the coming months off.

Bear2014 · 06/10/2016 09:36

Yay to a great new job. In reality, the due date is just an arbitrary thing. My DD didn't arrive on her due date. No one really does. Good luck on your first day and maybe have a nice little toast with your OH in the evening Flowers xx

bananafish81 · 06/10/2016 09:44

No absolutely - it's more symbolic of the 'we were hopefully going to have a baby in Oct and now we're not' feeling. Would have been the best early birthday present ever (I turn 35 at the end of the most). But not to be, sadly. Just have to keep plodding on...

AgainPlease · 06/10/2016 09:48

Oh ladies, I feel for us all. If anyone is ever down in SW London we have a big old house that I can put you up in and we can have (non alcoholic) cocktails and watch trashy rom coms and slag off women who get pregnant easily and moan what a shit of a time we're having.

I'm just about to head in to my bereavement counselling session at the NHS where I gave birth. I basically just cry for the whole hour. Yippee

Bear2014 · 06/10/2016 09:50

Totally. It is still shit. Two of my best friends who also live very locally are due in November with their second babies. One of whom got pregnant first month of trying both times. But I've decided it's bad karma to avoid them so I'll be facing it head on. Hugs to you xx

Jellytots85 · 06/10/2016 09:50

Hi ladies just had a quick read at some of the posts and my heartaches for you as I just know this feeling too well as we all do and bear I can completely sympathise with what you are feeling I feel exactly the same but don't beat yourself up for wanting another it can happen it's happened before it's just how much you want to keep going but we are stronger than you think anything can happen when you get stronger you will get positive again and keep going, I've not been feeling right since my transfer had cramps and lots of discharge was thinking had I caught an infection from transfer they want me to do another pregnsncy test tomorrow but I just can't face it I bled so heavy for a week it's impossible so god knows what's wrong with me, to the lovely ladies who are pregnant congratulations that is fantastic news and the ladies who havnt don't give up. Hugs and kisses xxxx

Bear2014 · 06/10/2016 10:02

Jelly - god I'm so sorry that sounds horrendous. Really hope you feel better and get answers soon.

Again - we're in South London! PM me if you fancy meeting up for a cuppa. It would be nice to meet you. Hope it goes ok with the counsellor today. xx

bananafish81 · 06/10/2016 10:08

Oh god jelly all the hugs. Really hope you're feeling better soon and get some answers. Thinking of you

again sending all the good vibes from North(ish) London to you for your appointment. Despite the awfulness of the location, do you find the sessions helpful?

Personally I find a trashy telly and bitching session such as you describe MOST therapeutic xxx

Lolly2803 · 06/10/2016 10:57

Wow banana what an intensive and thorough plan! Really hoping this is the golden cycle for you. Do you think any of those drugs would be relevant for me and my endometrium issues? I could mention them to my doc next week. Are you feeling more positive now? Great that you can throw yourself into work for a bit, makes the days go quicker if nothing else!

Bear that sounds like a plan re: trying again this year and starting 2017 a fresh whatever the outcome of the final frostie. Life's too short to have regrets so I think you've made the right decision anyway. Sorry it's so crap right now.

Again hope counselling goes well. Crying for an hour letting it all out sounds actually like something positive. Sometimes a good cry makes you feel better getting all that anger out. Sometimes I just cry because I'm bloody angry!! Big hugs to you.

Jelly sorry you're going through even more uncertainty. Hope you get answers soon and can move forward xxx

Ladies I'm in SW London too!!! Where abouts are you guys? xxxx

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Bear2014 · 06/10/2016 11:04

No way! South West London Massive. Herne Hill xx

AgainPlease · 06/10/2016 14:56

Bear and Lolly I'm in Wandsworth! Will PM you Bear when I'm back at the PC... Haven't figured out how to do it from the app xx

The counselling does help. I think the biggest help is knowing I'm not the only one this has happened to. At least I know in my subsequent pregnancies I'll be getting scans and check ups every 2 weeks which I think will make the pregnancy go faster. The wait from 0-12 weeks, 12-16, 16-20 etc are too nerve wracking as it is and the time draaaaggggs.

bananafish81 · 06/10/2016 15:29

lolly the Trental and vitamin E is a pretty long term preparatory protocol - I basically found some papers on it and waved them at my consultant and asked if we could try it, if we were already going to be preparing the endometrium for several months with HRT and a coil. The women in the studies had VERY severe lining issues from Ashermans or irradiation of the uterus, and were prepped for 6-9 months. I’ll do it for as long as we’re prepping for a treatment cycle, I guess - you’re already doing the vitamin E, which is great. And you’ll be starting your treatment cycle soon!! Hopefully you’ll respond brilliantly to the oestrogen. I have many other more intensive treatments in my back catalogue should they be required (hello Neupogen wash and vaginal viagra pessaries!) but hopefully you will have a beautifully boring and straightforward FET

Yes, looking forward to throwing myself into work. Going to get some retail therapy and get my nails done at the weekend to try and feel less like a total frump and switch gear from being a professional infertile (having achieved the sum total of fuck all this year) to back being a senior professional in a trendy internet company (not feeling very senior or very trendy right now!!!)

Again I'm so so so pleased you will be scanned so frequently when (WHEN) you are pregnant. And hope the counselling is helpful. I started bereavement counselling after I lost my Mum and found it v helpful throughout the rollercoaster that this year has been..

Waves to the South London massive from Islington (although I'm from proper north, as I'm originally a Mancunian!!)

xx

Bear2014 · 06/10/2016 15:40

Banana - I work in Kings Cross! Can't believe how geographically close we all are. And I'm massively outing myself in this thread, not that anyone else will bother reading it ;o)

Lolly2803 · 06/10/2016 15:56

Ah ok Banana, yep I'm taking high dose vitamin E and l-arginine on your recommendation! I am wishing for a smooth, boring FET but with this bloody fluid it seems unlikely. Not sure if you remember but I have fluid in my uterus mid cycle that drains itself after a couple of days. When I had my IVF I had Progynova and those patches and had also the fluid sadly. Then my lining only thickened a tiny bit so that's why we freezed all. I had the bloody fluid in my natural cycles as well so I'm certain I'll have it this time we just need to thicken my lining while the fluids there and hopefully transfer when it's gone. - or drain the fluid but they don't really want to do that because it interferes with lining. So am preparing myself for the rollercoaster!!

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bananafish81 · 06/10/2016 16:01

Lolly interestingly one of the cases in the paper that my Dr used for trialling the Neupogen wash was a woman who had a thin endometrium and fluid in her uterus, who didn't want to freeze all - so they drained the fluid and used the same catheter to do the Neupogen wash as a rescue treatment. (She got pregnant after having had horrifically thin lining on the day of trigger). I really hope the bastard fluid stays away, but if it doesn't might they consider trying to aspirate it carefully? Just worth asking I guess.

Really hope the oestrogen does the trick. Worth asking them to check the uterine blood flow with doppler ultrasound when they're scanning you

Can completely understand expecting the worst (I definitely do that)- but we are all hoping for the best for you! Xx

pinkapples · 06/10/2016 17:05

So sad to hear everyone's news :( how many days past transfer were you? Is there any way it's not long enough yet? Flowers

Lolly2803 · 06/10/2016 17:05

Banana really wow?! So you're saying they use the same catheter they'd use for the wash to drain the fluid? I will mention this for sure!! I feel like draining is will be the only option as its always going to happen!! So they'll have to just try it otherwise we'll never get to ET and honestly if we don't get to ET this time I really think I'll have a breakdown!!

They've never checked blood flow but I have been taking baby aspirin every day and having acupuncture once a week to help. I'll ask them to check that on my scan as well. Thanks for the tips as always banana, honestly don't know what we'd all do without you! Xxx

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bananafish81 · 06/10/2016 17:38

Here's the study Lolly - they mention draining the fluid specifically. And they have scan photos of before and after!

www.fertstert.org/article/S0015-0282(11)00177-4/fulltext

Aspirin wise check with your consultant about when to stop it / restart it - my Dr didn't want me on it before ET because he said it could interfere with implantation, because the slightest touch by the catheter to the endometrium could cause a bruise if I was on blood thinners prior to transfer, which could interfere with implantation. I think it gets out of your system in a few days so check with your Dr about what they say - every Dr is different so they might say to stay on it, deffo do whatever they advise!

Sadly the last year has made me a bit of an amateur expert in thin lining - I think I've read the whole internet on it by now!!! xx

Lolly2803 · 06/10/2016 17:55

Well she told me to stop it a few days before my hysteroscopy so I think either way I'll stop it a few days before ET anyway just incase. Every time I've knocked or cut myself since I've been taking it I've bled like a river and bruised like a peach!

I'll have a read of that article thanks Banana. I've struggled to find much on the internet about the fluid that I have so will be great to read something relevant! Just willing AF now, CD22 so hopefully this time next week AF will have just arrived!!

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HelloMist · 07/10/2016 14:56

Banana, glad to hear about the new job! Hope the weekend helps you get yourself back in the right frame of mind and a bit pampered. :)

Bear, it's hard to know but you might well have regretted sticking with one and not at least trying. It's painful now but the what ifs could have been almost as bad. You still have another chance with your frostie if this time hasn't worked. You definitely shouldn't feel guilty or greedy for wanting a second! I'm sorry you're in this horrible situation. :( Hugs.

So sorry, AgainPlease :( It's good your natural cycle FET could be this month. That is something to focus on.

Pinkapples, how are you feeling?

pinkapples · 07/10/2016 17:30

Hi!
Been a bit quiet feeling a bit odd the last few days... my sister is moving to Germany on Sunday so I was going to test tomorrow so I could tell her before she goes... tested last night with a digi at 7dp5dt and got a bfp 1-2 weeks :-) does that sound like it could be right?
I've told hubby obviously but none else as not meant to test till next Thursday!!! Am still taking progynova and cyclogest will continue and test again next week but can't quite believe it!

AgainPlease · 07/10/2016 17:45

Congratulations pinkapples! It's incredibly rare to get a false positive so I would say you definitely are pregnant. There must be a very high level of hcg in your body already to come up on clear blue digi test! I remember when I was pregnant I poas on a clear blue digi just because it was there in the bathroom and it came back negative. I was fuming and vowed never to use clear blue again!

Congratulations again! :)