Lucyep's dd1 has been called in for heart transplant

[misdee]

they post her, so please can we have some wonderful mumsnet prayers vibes etc poitning towards GOSH tonight.

So glad its all good news, and so happy for lucy and her family.

What lovely news. A day for Lucy and her family to enjoy.

Sunday AM update:

Bev's first words to me this morning... "Things just keep getting better and better!"

Bev and Steve were enroute to find a big cake when they phoned. Lucy has informed them she wants a big cake with 'Get Well Soon' written on it. lol Bless her!! Hope they find it!

Shes doing so well that they are going to try and get her up and walking today then hopefully out onto normal icu unit rather than transplant later today with the plan of going up to the ward tomorrow!!!! YAAAAAAAAAAAAAY!!!

I don't even know what to say - less than a week after transplant and shes doing so well. She was sat up in her room colouring when Bev and Steve went out this morning.

I asked Bev if she was happy in herself and she is. She's told them she 'feels better now'!

Cathetar is coming out today and shes reacting fine to the anti rejection drugs still! Tomorrow the central line should come out too. Thats only staying in tomorrow to get take the blood they need to test for that cmv virus (did i get the letters right this time???).

So all is good!!! More than good in fact!!! The little star is doing brilliantly!!!!

Such wonderful news

wonderful, really good to read.

Such great news - keep it up Lucy!

fab news

Fantastic!

Keep going Lucy!

Glad to hear Lucy is doing well and her new engine has made her feel better.

fab news

Any news today????

This was the update from earlier

'Biopsy at 1.30pm. Not going to the ward today . No beds and a teenager is going in the cubicle she should have had so she has to wait for another to become available.'

Will be thinking of them this afternoon and keeping everything crossed for that biopsy showing no signs of rejection!!

Monday Evening update:

Lucys biopsy went ok. She was gone about an hour. They have been told to expect some signs of rejection as thats common. Lucy is eating and needs the ng tube out now!!

They should get results from the biopsy tomorrow evening or Wednesday morning and theres no more news on her going up to the wards yet unfortunately.

Any updates??

Tuesday evening update:

Lucy had an echo and ecg today and has done some more walking.

The biopsy yesterday did show some signs of mild rejection and the doctors are going to speak with Steve and Bev tomorrow to tell them what they plan to do about it.

Best bit of today - ng and all other tubes are now out (only 2 canulas to go now!) and they are up on Ladybird ward!!! YAAAAAAY!!!!

That's great news.

Thanks for the update HM2J

wonderful

Great test recieved today:

"We may be going HOME on MONDAY!!!!!!!!"

That is fantastic news, the possibility of going home just 2 weeks after a heart transplant, what a star Lucy is!!

Thank you all so much for you good wishes and support, I am sure it means alot for Lucy and her family

opps, should read text, not test.

What a little star she is, brave lass!
So pleased to hear such encouraging news!