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Original poster

Lucyep's dd1 has been called in for heart transplant

207 replies

misdee · 06/08/2006 23:17

they post her, so please can we have some wonderful mumsnet prayers vibes etc poitning towards GOSH tonight.

OP posts:
Original poster
misdee · 11/08/2006 11:58

not too good today

(from heartline)

This Mornings Update, recevied a text from Emma this morning,,

Lucy not had such a good day so far, sats keep dropping even with increased Oxygen, also dumping lots out of chest drains, breath/breathing sounds quiet on left side. Working Harder to breath. Lucy has just had chest x-ray, Drs are with her now..

Emma or me will update later

please keep Lucy Bev and steve in your minds today as you always have, please send positive Vibes to all

OP posts:
mellowma · 11/08/2006 12:01

Message withdrawn

Nanou1 · 11/08/2006 12:24

in my prayers.... xx

DollyP · 11/08/2006 12:53

All the family in my prayers today XXXX

dejags · 11/08/2006 12:55

in my prayers too

x

kimi · 11/08/2006 15:39

Will light a candle and say a prayer

Elibean · 11/08/2006 15:47

Mine too...

KBear · 11/08/2006 15:50

Everything crossed here from the Kbears
x

whimsy · 11/08/2006 15:53

In my thoughts and prayers.

Scoobydooooo · 11/08/2006 16:04

Your in my thoughts xx

aitch71ababe · 11/08/2006 17:05

i do hope that things are clearer for Lucy and her family soon, these first few days after such an amazing operation must be terrible. my kindest thoughts are with them all.

fuzzimal · 11/08/2006 17:50

Thinking of you xx

whoopsfallenoveragain · 11/08/2006 18:12

Hi I just thought I'd post this latest update for you all

Much better news now...

They discovered that what caused this morning's blip was a build up of fluid on Lucy's chest. They have now taken out the chest drains as they had stopped draining it off but the fluid is leaking through one incision and keeps needing cleaning but Bev said at least its coming out somehow.
They aren't putting any more drains back in for now and the doctors are very pleased with her progress still!

She is reacting well to the anti-rejection drugs and has come off the drug they found out was causing her high heart rate those odd times yesterday.

Best bit! Lucy has been out of bed today and sitting up in a chair chatting. She's also eaten 4 spoons of spag bol that she fancied!! Bev says she is extremely weak and can't walk yet but I'm sure that will just take some time and eating as anyone would be weak after that kind of surgery and no food for 5 days!

Nanou1 · 11/08/2006 18:23

OMG this is just so fantastic! thought i'd check this thread before i leave the office - just in case!. fantastic news. thank you so much for letting us know.

Frizbe · 11/08/2006 18:47

Wow great news so glad to hear she's doing well

Lemmingswife · 11/08/2006 18:48

What fantastic news!

fuzzimal · 11/08/2006 19:50

Glad she's doing well

Scoobydooooo · 11/08/2006 19:55

So glad she is recovering ok & doing well after her slight blip xx

aitch71ababe · 11/08/2006 21:01

why am i sitting with tears in my eyes after reading that a girl i don't know, whose parents i don't know either, has just eaten spag bol? that, truly, is the magic of mumsnet. am absolutely delighted to hear that Lucy is doing so well.

Chandra · 11/08/2006 21:58

Glad to hear things are getting better.

hulababy · 11/08/2006 21:59

That's wonderful news!

kimi · 12/08/2006 11:28

Does anyone know how shes doing today?

whoopsfallenoveragain · 12/08/2006 14:50

This is the latest update

'All good so far. Sats 98& in air. Hoping the art line will come out today. Is eating small amounts and is being pump fed overnight. Don't know what is causing heart rate too increase at times but blood pressure remains stable throughout. Morphine is being stopped and she is sat out in a chair at the mo. Still can't believe her progress. In total awe of her. Lets hope she continues this path. Has 1st biopsy booked on Monday. Dr Burch is smiling so he must be a very happy man.'

He's like everyone here then who keeps smiling at the updates I'd assume!!!

So thats all good. I can only assume the heart rate has had more increases since I spoke with Bev yesterday as they'd then thought it was a med causing it and they took her off that one. But I'll ask later when she rings.
Keeping everything crossed for no signs of rejection at the biopsy on Monday and I have been constantly sending all the love from everyone!
Had another text too but will put that in another thread now.

Elibean · 12/08/2006 17:26

Thats great! Thanks for updating us; wishing Lucy some tasty meals (or bits of meals) over the weekend and hope that everything goes well with the biopsy on Monday. Thinking of her parents, too. xxx

whoopsfallenoveragain · 13/08/2006 00:25

And here is this evenings update

All good news again!!!!

Arterial line and all drips are out! Drugs are all oral now. She has eaten some more spag bol today and asked for chicken nuggets for tea too!

Her sats are 98% in air and she has no need for oxygen mask any more either!!

Her heart rate does shoot up sometimes for no apparent reason so they are just watching that.

Other than that, she's been up out of bed most of the day and Bev and Steve are obviously in with her all day and only coming out while she sleeps. Everyone is just amazed at her progress and the 'ward' word is being mentioned already! WOW!!!

Bev was also saying how the surgeon said her old heart was 'knackered' and ready for this!! So lucky Lucy got this now as it looks now like she may not have had long with her old heart! Gave me shivers even talking about it with Bev!! And thankgod for GOS putting her on the list and for the wondefully kind donor and their family did what they did!!