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When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

1 2 3 4 5 6 ··· 39 40

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

Conception

TTC or pregnancy on prednisolone or similar part 13

996 replies

VillageMum · 25/04/2014 20:30

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

OP posts:

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freelancegirl · 01/05/2014 21:05

I go to a mix of Harley St and new life, the latter which is a bit of a schlep but I am a self employed slacker so don't have to worry about getting back to an office. Mr S is happy to see you anywhere but it just depends on what appointments are available. Good luck! I'm excited for you. It's a relief to get a diagnosis and know you're really doing something about it.

Brown I echo what everyone else says and wish you all the luck in the world. I had DS on the treatment when I was 37 ---ok dammit a week before my 38th birthday and will be 40 this summer and currently ttc number 2 after one unplanned and untreated pregnancy sadly ended in miscarriage. I don't know when I would call it a day either but I would like to think I could try to stop it taking over my life with some cut off point. Who knows though! Either way, I hope it all goes well for you.

I've had a sad week, my lovely nan who I was very close to died. She was 99 and had had a wonderful life so there's a lot to be positive about but I she will leave a huge gap in my life as we were very close. It's kind of put any stress over ttc on the back burner.

Ari, are you lurking? I hear there are two babies in there!!! I'm so glad it's looking good so far.

Triplespin · 01/05/2014 21:31

Oh freelance sorry to hear about your nan. Hope you were able to see her in her last days. You must have so much on your mind, which I guess is good as at least you will not be overthinking about TTC.

So I just received my nkc test results in the post and they seem "very high" to me. I will try to copy over the results - but the number that stuck out was 50:10 nkc of 40% which would go down to 20% with pred of 10mg. These are from a lab called RICS but based on googling it seems my numbers are double of normal which is 20%. Anyone familiar with it and does this spell end of the road for me?

Mel3062 · 02/05/2014 05:33

It's all such a minefield
Free so sorry to hear about your nan, 99 is a great milestone bless her x

Arianrhod · 02/05/2014 09:26

free So very sorry to hear about your Nan, she sounded like a wonderful lady and I've bookmarked her scone YouTube video! :) Yes, I'm lurking, and yes, there are apparently two babies. Aaarrgghhh!

freelancegirl · 02/05/2014 12:05

I am always confused with the way different labs spell these things out Triple so no idea. I do know however that mine were very very high - in the top 5% Mr S ever sees in his clinic - and I have had a baby on the treatment so hopefully that is a good sign for others with very very high levels.

Do you know if they are ID twins yet Ari? I imagine whilst it fabulous it is also rather scary (aside from all the usual recurrent mc mentalling)! My best friend had ID twins when her first child was under three and she says the first year has been very busy and she has been pleased to return to full time work :) But loves it of course.

freelancegirl · 02/05/2014 12:06

Oh and thanks for the lovely comments about Nan and also for bookmarking her scone making video Ari. She was indeed a very lovely and great fun person.

Whoever mentioned Facebook I am happy to hook up with any of you and am already friends with a few here - hence Ari and I talking about scone making video!

Triplespin · 02/05/2014 13:04

freelance thanks that gives me hope!! Were you on preds and intralipids or just pred?

As of today I have decided to go see Mr S and AF least hear what he says. Then I will decide - I just hope he doesn't make me do the test again. I don't think I want to pay again.

freelancegirl · 02/05/2014 13:25

Hopefully he will be able to use your tests. I find he is very fair and is aware that a most of us don't have huge funds available! He often mentions things you might be able to get with your GP (not NK Cells of course...) instead of going privately and when I asked him if it was worth me having intralipids in advance of a BFP he said best not waste money in case you don't get pregnant.

Yes I was on 25mg from ovulation, 40mg at BFP and intralipids at 4 BFP, 8 weeks, 12 weeks and 16 weeks. I was also one of the first people he put on something called hydroxychloroquine - something he has been experimenting with to good outcome - and was on that until 30 odd weeks if I remember correctly.

You will be in good hands. Let us know how it goes!

Arianrhod · 02/05/2014 14:09

free No, they're non-identical twins, which is probably just as well so I stand a chance of knowing which is which ;). Are you back under Mr S, just out of interest?

freelancegirl · 02/05/2014 14:26

Yes essentially, ttc, but nothing to report as yet!

VillageMum · 02/05/2014 19:28

free I'm so sorry to hear about your nan. What a wonderful, long life though. You were lucky to have her with you for so many years.

mel you're very brave, supporting your mum in the middle of ttc and dealing with all the related issues. Hope you're doing ok.

Triplespin I've only been with Mr S since last October. Others on this thread are veterans! I found him (and this thread) via a brilliant article by freelance which was published in The Times. I'd had two children by then, and four miscarriages (each ending around week 7 or 8, typically after we'd seen a heartbeat on an early scan). I had other issues too: a few cycles of anovulation following my fourth mc, and an ovarian cyst which had to be drained. He dealt with both in no time at all: got my periods restarted, put me on his superovulation programme, and by the fifth cycle I was pregnant (not bad going at 44!) Sadly that pregnancy has just ended, very early - it was a chemical one, and most likely due to chromosomal problems (so the meds couldn't have saved it). I'm now trying again. If I can get a healthy embryo on board, then I feel that my chances on his protocol are good. I would definitely talk to him and ask him to interpret your results.

free best of luck with ttc this cycle!

Waves to everyone.

Thanks ladies for your kind support as I launch into SO cycle 6! We are DTD as if there's no tomorrow

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Mel3062 · 02/05/2014 19:44

Aw thanks village yes it's pretty draining what with mum, dad in law STILL in hospital, hubby's back and ofsted looming argh!! Still like you we've tried to Dtd ;)
Facebook friends my name is melissa moss, pic of me with reindeer! Please find me as don't know any names :/ x

Triplespin · 03/05/2014 10:17

mel good luck for the ofsted and all the other things going on in your life.

freelance, village thanks for all the details. It is so reassuring to hear about your experiences. I guess I have to give it a go anyway and then make up my mind asi go along. It really is a minefield and so many different approaches to treating the immunes.

Ouch about the facial hair side effect from preds because I am just getting laser hair removal on my face!! I hope all the pain doesn't go wasted once I start on preds.

I would love to read your article freelance, please do send me a link.

Also wondering has anyone been given humira by Mr S as part of treating immunes?

suemays · 03/05/2014 10:17

mel I looked but couldn't find you!

Mel3062 · 03/05/2014 10:19

Message me sue I'll try find you :)

willitbe · 05/05/2014 20:29

Hi all, just checking in why you have all gone so quiet!!!!

Anyway, I am not supposed to be here as I am not ttc, but meeting up with Freelancegirl in real life today, made me want to check out how all you are!

MrsPixieMoo · 05/05/2014 22:42

Hey willit you're our friend, of course you're supposed to be here. Guess quiet due to bank holiday weekend.

Am 26 weeks, have heartburn and swollen ankles and still intermittent nausea and a wriggly baby girl who kicks lots and makes me smile.

How are you?

freelancegirl · 05/05/2014 23:52

Hello all, we've had a lovely day interviewing willitbe and meeting her family! It's lovely to meet more of us going through the same thing - always have really good conversations.

26 weeks Mrs P, wow! Such good news to have all these successful pregnancies on here.

Mel3062 · 06/05/2014 04:43

Hi ladies yes it's been v quiet I've kept looking.
Had a lovely weekend at Harry potter world as I'm another year older today, which makes me panic more! I'm 13 dpo today but not sure I want to test today!
I've had cysitis and taken some powders and they say not to use if ttc so worried about that now!
Freelance I'd love to be interviewed if you need more.
Will it, you are our friend ttc or not!
Mrs p how time flies!
Waves to all x

Mel3062 · 06/05/2014 06:35

Bfn :(

MrsPixieMoo · 06/05/2014 06:55

Hugs Mel. It's always especially painful after a birthday. You're in my thoughts.

Mel3062 · 06/05/2014 07:03

Bfn :(

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Triplespin · 06/05/2014 08:02

mel so sorry about the bfn. We build it up so much for this moment and then hopes get dashed. Hope it's your month soon.

Hi to everyone else!

suemays · 06/05/2014 09:41

Happy birthday mel sorry about the bfn, I agree birthdays make me panic too but there's nothing we can do about it!

VillageMum · 06/05/2014 11:35

mel don't panic, you are still young! Have you only just turned 40? That's nothing, a mere spring chicken. And next cycle could be the one!

willitbe welcome back!

Mrs P oh that lovely heartburn...!

Back to reality today after a very lovely long weekend. DD and I loved having DH and DS at home.

Waves to everyone.

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