TTC or pregnancy on prednisolone or similar part 13

[VillageMum]

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Agree trying it's too easy to let the whole thing take over and then friends drop away etc. it's hard for us as we just moved north after years in London so hadn't got the chance to make many new friends as this all started same time. We'll be fine though. Of course wish had a crystal ball!
Hopender thinking of you.. Really hope all going well.. You must be wishing time to speed up to at least one milestone.
Does anyone know about dangers of aromatherapy? I've been using Aromatherapy Associates Deep Relax oil in the bath .. Think one of the oils not recommended if pregnant but hoping ok until such time?
Hi everyone - hope all had a lovely weekend x

Morning all,
Today is day 10 in cycle and desperately waiting for that on test so can start with my first course of pred!
I have a really positive feel that this officially cycle 42 could be the lucky one for Christmas ?
Patience is not my strongest point and them smiley faces can't come quick enough .

• I have progesterone on my treatment plan from a sensitive positive test at day 10 of pred,if negative test I have to stop pred and wait for af. However does anyone know what happens if you don't get a positive test on day 10 of pred as for me this would be day 24 in cycle? If I stop the pred but actually 7 days later get a positive test? Therefore haven't taking the pred for 7 days or started the progesterone.

Sorry unsure if my question makes sense? X

Dildoos if you get a negative then you have to keep testing until AF arrives just in case - I test every other day but I only often get two tests in before AF anyway! If you then get a test which shows up something positive you can start them again!

I've always taken Pred a day or so after ovulation so I can go on until around 12dpo as even with successful pregnancies I've never had a bfp before this. Don't worry about a day either side of ovulation in terms of taking the Pred - it's not that exact I don't think. And pretty sure if you take it for 12 days rather than 10 you wouldn't need to taper as not too high a dosage.

Good luck!

Thank you sunny and free. It's a minefield all the drugs, days, times, quantities. However I am sure I will soon get in the swing of it. I already made the d3 mistake of half dose corrected now and feeling positive. Surely that's half way there? X

Rosa-we have moved north from London too...surbian life makes lack of DC more noticeable I think. I've just spent the weekend in London drinking and eating too much and
Feel much more myself and relaxed about the whole thing. I think I'm going to plan more weekends to see my friendlies. They don't have kids yet (although v imminent) so we all go back to when we were at Uni together and have a lot of fun :))

Dilldoos-the odd day here or there doesn't matter. Dr s is one of the few who gives pred pre bfp anyways. Lots of people who succeed with prof quenby take pred on a bfp. So don't worry! Just stop on d10po and restart when u get a positive test. I hope ur feeling about ur bfp is correct!

Rosa don't worry about the aromatherapy. ESP not at this stage. I think the same about stuff but actually women who don't even know they preg continue using saunas and steam Rooms , drinking and smoking and using all sort of products and are fine! There's certainly nothing wrong with using ur oils now so enjoy!
The first 2 times I got preg, I changed nothing. I was drinking and having coffee and running around
Moving house up to getting a bfp and it took me 2 Months both time. Now that I've majorly omitted coffee/alcohol/excercise a bit more and got my DH on all sort of supplements it's taken 5
Months last time and now in on month 4! So actually I don't think any of it matters.
Good egg, good sperm and it works out. So enjoy ur bath!

Thank you trying for your positive view on the medication. I literally feel like no idea and Dr s has always asked any questions but they come after I have been and louise has been on holiday so a little stuck with who to ask. This is a fab thread and you are all so supportive I hope with experience I too can be of help to others in future.
X

I'm really glad I have this thread too. It's hard for people in real life to
Really understand me. But you girls have been through it...and so feel like we have similar feelings twds it.
Dildoos-u will get used to the pred and regime just takes some time to get your head around it!

Totally agree, I have 2 really supportive interested friends in 'real' life but I don't want to burden them with my repetitive conversation. I wait for them to ask me as sometimes I feel maybe uncomfortable for people to talk to me about as I do look upset sometimes and that's sometimes hard for people to react too. X

trying you're so right about the big smoke Vs the smaller smoke. Much easier to be distracted and feel 'normal' in London where there's more going on and people tend to settle later or at least there's more of a variety! Need my fix soon! X

What a ight are I'm having trying to sort my scan! Dr s not around again next week as away on business so got to go for scan locally. Emailed louise on advice for best day to go as not got the time I want and no answer so assume she is away - hopefully she is back tomorrow!

Also realised today that if this month doesn't work my next scan falls between Christmas and new year and there are no clinics then so will have yo go locally again! So potentially the next time I see mr s I will either be pregnant or on my last round of SO!

Sunny-what a pain! Hopefully u will be preg when u see him! To be honest if they can do everything here and advice over email no need to him? Saves u travelling too. Is ur diet going well?
Rosa-yes so true. London life is so busy it's easier to just get swept away with it and just go out and drink and eat lots and enjoy urself. Sitting in a big home all alone isn't as fun!
Af nearly over. Got 3 acupunctures booked in weekly this month. And alternate day DTD begins soonish!
Hope hopender is ok....

Sunny yes I think Louise is away, but she was also last week so thinking back soon? Hope you get sorted with an appointment/scan soon either with them or nearer home. X

Sunny I hope you're ok. As Trying says you should be fine though I know it's nice to feel like you're getting the best possible advice etc.. Hopefully your local scans are just as good. How's the SO going? May try after Christmas if still no luck.
Trying good luck with plan this month. Let me know if you can recommend a good acupuncturist.
hopefully the Shehata team will be back soon - they're in demand and maybe need to expand!

Got it all sorted today! Going for my scan locally next weds afternoon but got to go on my own as DH can't get the time off work but think I'm ok going on my own!

Also got them to send me a prescription in the post today so I can get my injection early next week without having to panic I may not get it in time as the pharmacy has to order it in!

Work is so busy at the moment I'm hardlygetti g time to think about anything!

Los I think we only get 1000 posts oer board so will have to create part 14 soon!

Rosa where r u based? I'm in Manc
and mine is really Lovely. It hasn't help me Get preg though! But I found her reassuring and supportive and kind so I keep going. I feel like she understands Me. I found her on google and she is fertility specialist and zita west accredited so know wot she is doing, sure u could
Find one in ur area in a similar way?

Sunny-glad ur sorted and its good work keeping u busy. :)

Yep need a new thread soon-who wants to do the honours? Is freelance still there? She's due pred baby no 2 would be nice if she did maybe?! In fact when r u due freelance?

I've been eating a lot of
Choc and cake and worrying its not v good for my fertility!

Agree - Free you should do the honour if you're still around? How are you and how long to go?
Hope- what about you.. How are things? I imagine you might try to distract yourself these weeks so might not be around. Everything crossed for you.
Trying - I'm in Edinburgh so Manchester a bit far!:) there are a few us in Edin so started to forget we were not all there! Been working too hard.. Bring on Christmas hols! X

I'm here and lurking! I just don't think I have the power to do a good one when on the phone and can't be arsed to reach the laptop right now: too bloody big and pregnant! I would like to do one that has a title that would explain things more like; immune/ natural killer cells treatment when ttc or pregnant (aka the 14th Pred thread) and also put all the links to the previous threads! But if someone else can do the honours I would be most grateful.

Rosa I had accupuncture in the city you're in - if you are still looking I can PM you her details (no idea if it worked - but one of the cocktail of things I tried!)

Hi all, had a crazy few days with work so haven't bend able to check mumsnet properly, but you have all been in my thoughts lots. I want to write a proper post later to write more individually but just wanted to let you know about my acupuncturist rosa. She is based in the new town in Edinburgh at the Albany clinic and is called Fiona Wolfenden. I'm off to see her again this morning! I don't know if it is coincidence but every time I see her twice in a month I get pregnant. She used to be a nurse and has a specialism in fertility. She is great for a natter and making suggestions too! I really like her!
Yesterday, was tricky because I had lower back pain for a large part of the day. On the other hand I was stuck in traffic on the M8 for a five hour found trip and sitting on a dodgy chair in between. I have still been really worried but just did another test now and it is super strong. Hopefully things will settle down today. The night before last I was up all night being sick. Feels a bit early for morning sickness so I'm wondering if it is the progesterone or something else. Boobs aren't that sore, although they should be soon with all the poking I've been doing! I'm just so hoping this little one stays put. My next target is six weeks and so I have a week and a half to go...
Sending all of my most positive and best thoughts for lots of BFPs this month! It will happen!

Hope so glad things seem good! It must be so hard....u sound very level headed and have a great approach. ESP with the getting to mini targets....glad ur feeling sick?!!
In a rush so can't make new thread today but if anyone else has time to let's do it! And change the name as freelance suggests

Hey hopender, I think I missed your bfp! Congratulations (on the first step!).

Congrats to you hope! How exciting! X