TTC or pregnancy on prednisolone or similar part 13

[VillageMum]

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

[bakingtins]

mattsmama IIRC it's possible to have several peaks of LH before ovulation is triggered. I think you are on the right track covering all the bases, so to speak

brownstag wishing you all the best. It's a very tough decision to call it a day, but you have to preserve your health and sanity the best way you can.

[Mel3062]

Just echoing what the ladies have said brown, I do hope you will stay in touch, we are all friends and wish you well whatever your decision.
Matts mamma after last cycle I'm def covering myself just in case I have a surge (post opk) but actually ovulate later!

[Mel3062]

Baking great scan news. Waves to all, welcome triple ;)

[suemays]

brown completely understand where you are coming from as I felt like that before Christmas but then decided to give this year a last shot. I know you said you were going to wait until next spring and then give up so make sure you don't regret any decision you make based on the disappointment of the last chemical. Will miss seeing you here though!!

[Tumtimes1]

Hiya brownstag wish you all the best for the future - please still check in if you get a chance as still would like to know how your doing xxx

Mrs pixie do you get offered a seat on the train? Lucky you! Ah do you live up that friendly North? I am in London and I have never been offered a seat despite my clear bump. I am getting a 'baby on board' badge tomorrow,.

bakingtins great news on your 34 week scan. The days seem to be flying by now.

mattsmama good luck with this cycle!!

I am 21 weeks on Friday and my scan seemed to go well. My placenta is low lying but other than that all cool. I can actually tell people now, still nervous tho obviously xx

[LondonSuperTrooper]

Thank you for your replies. I didn't meant to post & run! I have been avoiding the conception board as I get very stressed when thinking about never being successful in TTC #2. I read some of the posts on the old thread and failed to understand what most of you were talking about - it's like a different language!

Willitbe thank you so much for your post. I've googled what I have been told nad its good to have some idea of what the results mean. Waiting till my next appointment would have driven me potty How would I obtain prednisolone? My difficulty is that I cannot get pregnant easily.

Brownstag yay to having someone here with similar history to me!! I am going to google melatonin now.

On the advice of Mr Sheta's clinic, I am taking vitamins with fish oil, folic acid, vitamin D and low dose aspirin. On the advice of those on the over 40 thread, I have started taking COQ 10.

Should I be taking anything more to increase my chances of falling pregnant and prevent miscarrying?

[MrsPixieMoo]

Tum I'm in London. My badge made no difference in the sick, tired first half but since my bump grew massive (at week 24) and I started standing next to the young ruffians in the priority seats (and accidentally stepping on their toes) I'm getting lots of seat offers.

[VillageMum]

triplespin welcome. I'm signed up with Mr S and sound similar to you in that my NK cell levels are only slightly raised - just enough to squeak into the 'high' category. He offers different protocols for different NK cell scenarios: mine, for instance, is quite conservative - only a 25mg dose of prednisolone from ovulation, intralipids at 6-7 weeks only, no mention of IVIG. I'm also on hydroxychloroquine, another immune modulator, but that's by my own request as he's had success introducing this with other patients and as I'm getting on now (I'm 44) I want to give any pregnancy the best possible shot. So yes, he will prescribe pred from ovulation, but he won't necessarily put you on a draconian meds regime if he feels it's not warranted. I'd go along and chat to him. Best of luck in whatever you decide.

Baking that's such great scan news! You'd better invest in some scrunchies...

mattsmamma it would be worth asking Louise the hydroxy/pregnancy question.

Tum and Pixie so glad to hear all's going well and that you have such nice visible bumps now!

Waves to London.

Had my SO scan today and to my surprise I have four good follies - so we'll see what this cycle brings.

[Mel3062]

Pixie you made me laugh :) can't wait to bash people with a pram!!
Village good luck that sounds promising ;)
Tum can't believe your 21 weeks!!
Waves to everyone x

[Tryingno1]

Hi guys. I'm new.

I'm about to get tested for nk cells following 3 miscarriages
I wanted to ask-how do u all do this alongside work??! I'm finding it very disruptive so far and haven't even started on pred which sounds like a nightmare!
I'm not sure weather to go to quenby or shehata yet but could any of you give me your overall thoughts of them and also any sucess stories and any who didn't have the same sucess under their plans (yet!)

[MrsPixieMoo]

Trying welcome. I'm with DrS and am 26 weeks pregnant on the NK cells regime. I'm a fan of his and think he's a real pioneer and has women with recurrent miscarriage very much at heart, but also know others have different views. I see his team - and sometimes him - on the NHS.

As for work, not sure if I really get your question. Yo just get on with it.

[bakingtins]

tum good news

village 4 follicles sounds excellent. Hope at least one of them is a good'un. Best of luck.

trying glad you are pursuing the NK cells. You know my story already. I just took one day off to see Prof Q (boss knows my history so ok with a day's leave at short notice when I explained why) and as I work part-time was able to arrange RMC apps locally in my own time. Once you get a BFP you are allowed time off for any antenatal apps anyway. Pred is not too bad, I did have some side effects whilst I was on it but nothing I didn't consider well worth it given the improvement in my chances.

[freelancegirl]

I had a baby under Mr Shahata's care and am so pleased I found him and the treatment. I have some of the highest levels he sees in the clinic. Pred isn't so bad in the scheme of things, a few irritating side effects - I always put on weight - but they go as soon as you have tapered off. Good luck! And let us know how it goes.

[MrsPixieMoo]

Trying I'm sorry, just read my post and I sound really blunt and unkind. Am really sorry for your miscarriages. It's such a fucker, but there are things that can help. You're doing the right thing by pursuing those.

Lots of good advice on this thread, you've come to the right place.

Pred can be awful. Some people tolerate it really well. I was an insomniac, exhausted wreck on it and my face looked like a helium balloon. Had just started a new job and felt like hiding.

The way I managed with work was being really open about the previous miscarriages, type of treatment and possible side effects. I'm in a senior role, so had time off for appts when I needed to, but also worked hard in my own time to make sure all work got done and to deadline. This isn't a legal requirement at all, but it made me feel it minimised the risk of being overlooked for promotion.

The ladies on here got me through some really dark and stressful early days. It was the place I could come too when worried, not sleeping, frightened, sad and pissed off. The rest of the time I put those feelings away somewhere and I think that's why I sounded so abrupt in my last post. It's a survival thing and I'm sorry you were at the receiving end.

Guess I'm trying to say this is a really sickening and scary roller coaster at times, but you're not alone and lots of ladies on here have had babies. Free updates a list regularly.

Good luck x

[Tryingno1]

Hi.
Thanks for your advice girls and congrats :)
Didn't think you were blunt at all mrspixie didn't even cross my mind.
It's utterly crap this journey. Hopefully sucess is somewhere in my future.
X

[brownstag]

MrsPixie, I know I'm guilty of burying my feelings away somewhere too, and possibly coming over as a bit blunt. I think I got through the whole experience by treating it all rather scientifically. If I take 'a', will 'b' happen? And by poring over medical journals rather than thinking about my feelings. But they catch you unawares. I was reading a corny Facebook post, a quote apparently written by Buddha, this morning, about how important it is to let go gracefully of things not meant for you. Floods of tears!
Trying, I had a baby on treatment; he is now 5. I took pred from just after BFP. I had no major side effects while on pred and pregnant, except for black facial hair(!) and indigestion. I'm 43 and have just given up trying for no. 2. After our son, I had 2.5 years of infertility while not using pred. Then last year I changed quite a few things; starting taking pred from ovulation, taking DHEA and I had a lap and dye. Then I started getting pregnant, but miscarried 3 times. So whether pred was the important thing in getting pregnant again, I don't know, or a combination of all of them. The miscarriages I suspect are now down to egg quality; one that I had tested definitely was.

[brownstag]

And thank you to everyone for your lovely messages xx

[Tryingno1]

Hi brown stag-thanks for your story I know it can be hard to bring things up again. I hope you have found some
Closure and peace with your descision can't have been easy.

[Arianrhod]

brown Just wanted to send you huge hugs, I know we look at things in a very similar way and I really feel for you. PM me if you'd be ok with us hooking up on FB, and take good care of you.

[Mel3062]

Welcome trying
Id like to be fb friends if anyone else does?

[Triplespin]

Thanks village and welcome trying - we are also on the rmc thread.

It seems a lot of ladies here have had success with Dr. S. I am thinking maybe of keeping my appointment and taking my results and see what he suggested. I can then make up my mind which place to stick to. Or alternatively I give CRGH a chance (convenience of being close to work etc) and if I fail I may see Dr S or Gorgy. It is all too confusing.
I will see prof Q in any case as it is a one off and there is added benefit of the uterine scratch for implantation!

village how long have you been under Dr S care?

Hello to everyone else.

[Triplespin]

Forgot to add that DH is firmly against NK cells treatment. He came to my consultation with Mr. R at St Mary's and so doesn't want to try anything 'unconventional'. So I will probably just not tell him all the details - he hardly listens anyway!!

[Tryingno1]

When is ur appt with him?
I know it's so confusing I change between who to see if at all anyone! Today I'm leaning twds mr s...will prob change tmrw! He seems a bit more "agressive" with his treatment plans - I don't know if that's a good thing or not!

[Triplespin]

trying it's on 19th so I have a few days to cancel!

I am going to harley street. Actually do most people go to NL in Epsom for follow ups and scans etc? That may be a negative for me as its to far from work and I am not sure how much time I will be able to take off without being frowned upon. I am digressing but really annoyed that a male colleague has received lots more sympathy for an infection and taken a week off and I had to work through my miscarriage (I was miscarrying sitting at my desk - it was awful).

[Triplespin]

I know what you mean about the confusion. It's hard to decide which is the best option because you need to commit to their treatment for at least some time. As if the results are not realised then one will feel that they've lost more time.