TTC or pregnancy on prednisolone or similar part 9

[sarahs999]

Oh dear - we reached 1000 posts on thread 8 without noticing! I hope you can all find this. THis is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Links to earlier threads:

Part 8: www.mumsnet.com/Talk/conception/a1492407-TTC-Pregnancy-on-Prednisolone-or-similar-part-8#33842381

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

My thoughts are with you Sue at this awful time. I wish you as peaceful a passage through the next days, weeks, months as possible. I feel I should be able to find some useful words in light of my own loss but they all sound so cliched. Please be kind to yourself, talk to anyone who will listen and take your time with everything. I am so so sorry.

Sue - I've no idea what to say to you. Keep strong. Loads of love, prayers and hugs xxxx

Oh god Sue what a difficult difficult truly hideous time. But you are making the right decision. You are protecting your child - from a life of pain. I don't know if I'd ever be brave enough to do the same but I imagine you feel bravery doesn't come into it. Take your time to grieve. Keep posting if it helps.

Oh Sue I'm absolutely heartbroken for you. After everything this is such awful news. I'm so so sorry. You and your family are in my thoughts. Do talk to people - and we're here whenever you need us. Much love and hugs xx

Sue I am so dreadfully sorry. Wish there were words to heal the pain. Thinking of you xxxx

So, so sorry to hear such sad news sue. All our thoughts are with you xxx

Thanks for all your support. The procedure yesterday was worse than I imagined as it was painful and traumatic. I had to keep still whilst the doctor injected a massive needle into my tummy. I could feel the baby moving whilst she was doing it which made it worse as all I wanted to do was push her off of me and protect my little one. It took about 30 mins so a lot longer than I thought and then we had to go off into another room to wait for the heart to stop. My dh kissed my tummy and said goodbye to our baby and told it we will always love it and sorry we couldn't help it. They then scanned me again to confirm the heart had stopped. I don't think I have ever cried so much before but at least I know my little one is free from any pain or suffering now.

I was given a tablet to turn off the pregnancy hormones and prepare for my induction tomorrow. I just hope that I don't go into labour today or tonight. I feel so empty and miss feeling my LO kicking. I still don't know if I want to see or hold my baby once I have given birth as i feel like the life left yesterday. We still don't know the sex as its legs were curled up but will find out tomorrow so we can name it. The hospital will do a service and bury it for us so that we will have somewhere to visit and remember.

Can someone move me off the 2nd trimester list as I can't bring myself to do it? We have been told I only need to wait 2 periods to start TTC again once they return. Nothing will replace the baby we have lost but I just hope that we will one day have our take home healthy baby to help heal my broken heart.

Good luck for everyone else with scans etc.

Sue that sounds utterly heartbreaking. I'm sorry it was so much worse than you thought.

I'm glad the hospital are allowing you a place to bury and visit the baby; it's very important. A friend lost her baby at 22 weeks and had a real battle to get a proper burial and service because it was treated only as a 'miscarriage' - so disrespectful of the parents AND the baby.

I will update the list and put you back in ttc. Well done for posting, I hope it's helping you process everything. Wishing you strength for the next few days.

Oh Sue, I just logged in to catch up with everyone and saw your heartbreaking news. I just wanted to say how dreadfully sorry I am. You and your dh are in my thoughts. XXX

Updated at Sue's request.

Friday, 21 September 2012

The babies are arriving!
Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4
coleyoz - V High NKC. DC#2, BFP cycle2, 41+1 - Baby born??!
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin. Baby boy James born 29/08/12, 6lb and 6oz at 36+5
PQ77 - DC#2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) Jonty (Jonathan) Edward arrived by c section 10/09/12 4lb 15 / 2.23 kg 33+1 wks
Mercator - DC#2 V High NKC, (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) DD arrived by ELCS 14/09/12 7lb 2oz

3rd Trimester
Hopefulfor2nd - High NKC - TTC#2. ? 38+5
Dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 38+5

2nd Trimester
HelterSkelter (IVF and immune therapy) 24+4
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 18+0
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 17+6 Next scan 5th October
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 17+6
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 15+3 wks
Jemimapuddleduk (33). 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 14+3 wks

1st Trimester

HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 10+6, next scan 18 Sept, Nuchal 26 Sept.
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 9+0
Cate - DD followed by 6 mc, VHNKC 40mg pred, intralipids, 7+4w

BFPs awaiting first scans
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov 7+0

STATUS UNKNOWN
Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July

TTC ? ASSISTANCE - TTC 2ND or more
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine) ? super ov
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov
LJ71 - two older DCs, mc on treatment. SO, pred, hydroxy

TTC ? UNASSISTED - TTC 2ND or more
Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Mollieboo - 5 mcs, 1 DS (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks, one loss @ 22 weeks. V High NKC. (Pred & Hydroxychloroquine)

TTC ? ASSISTANCE - TTC 1st
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 ? last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC

TTC ? UNASSISTED - TTC 1st
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks

Sue, I think are so incredibly brave because it seems to me that you made the best decision for your baby and the hardest decision for yourself. That is what being a true mummy is. The easiest thing for you would have been to continue with the pregnancy but that was not the best thing for your little one. Sending all my positive thoughts for some good, healing news for you in the near future in your ttc journey.
Cate
xx

sue Once again in tears here. I'm so desperately sorry you and your DH are having to go through this, you are so very brave doing what you feel to be the best thing for your little one even though it causes you a whole world of pain.

Stay strong, look after yourself, and remember we're here for you if we can help in any way. xxx

Oh Sue, my tears are tumbling for you. May your precious child rest in peace. Please let us know if and when you feel able what you call him/her as I am sure we would all like to remember your baby by name and send prayers/love/harmony into the world for her/him. I have attempted to write this several times and deleted as I just cannot find the words of care/empathy I want to give. There are none as things like this shouldn't happen. Xx
And Sue, I had DD1 a year and 2 days after I lost DS1. She woke me from the grief. The fear having her was stifling at times but worth every second. She is a fabulous 16yo and when she passed her GCSe's this summer, I wept for her and for him (deeply) but mostly for the balanced person she is, given the grief she was born into. She reminds me There is Hope, always Hope x

Sue - I am so sorry to hear your news and hope your induction is as easy as it can be. Take all the painkillers you are offered, there is no need to be brave. xxx
Also this may be out of turn but always remember you made the best decision for your baby based on the medical advice you were given, if anyone ever tries to make you doubt that please don't listen.

(We had to terminate at 14 weeks in 2008 for various abnormalities & I still get angry when people say things without thinking about what they would and wouldn't do)

Hope everyone else is ticking along xx

Sue :( what a dreadful time you are having. I can't imagine what you are going through . I hope the next few days go as well as they can for you. Much love to you and your family xx

Thinking of you and your family Sue, I'm so sorry for the pain you feel. Clabbage has some very wise words there. Am in awe of the experiences some of you have been through, surviving and not losing hope.

I'm going to a remembrance service today for people who have suffered miscarriages - I will be remembering all of your losses, and especially Sue and her family at this time, as well as my own four.

There was a bit in the service today where bells were passed round the cathedral, and you rang them to remember your baby(ies). It was so hard to hear so many bells ringing, all representing someone's pain and loss, and yet so wonderful to publicly acknowledge your losses.

Still waiting to go into labour since yesterday morning. I am having pessaries every six hours but have not dilated. Passed a load of clots last night prob due to the procedure on thurs. I have potentially got another 24 hours on pessaries and they will then review. They can't break my waters yet as I am not dilated so can't be induced on oxcitocin on a drip! Really fed up as just want it all over with but my body is refusing to give up the pregnancy. All those early weeks praying that my body wouldn't reject the baby and now that's all I want!

So sorry things have not progressed a bit faster Sue. How awful for you

Hi Sue I have been thinking of you alot and can't imagine the pain you are going through. Hopefully the nurses are taking good care of you. I bet you just want to get back to your dd and try to start recovering from this terrible episode in your life. As you have a DD already I know they will not let you stop for a minute. In their eyes it is bau which I think forces you to get back to 'normality' quicker than you would or your body would like. Anyway let's hope your future is full of happiness and all of your dreams come true. It is nothing short of what you deserve.

Sorry to hear that things are not progressing Sue I hope that the physical part of this nightmare time is over as soon as possible. Xxx

sue thinking of you x

sue Also thinking of you, and praying for this to be over as soon as possible so you can start to heal. xx

Just marking place and adding my thoughts for Sue, really hope it all goes quickly xxx