Thanks for all of your comments, ladies. lemons you are right that we did have an appointment this week, but I have put it back. At the appointment last week, the consultant said to come back in 3 weeks for the LLETZ because by then my cervix should look normal again after the downregging drugs (it was too tight for him to see everything when he did the colposcopy when I was still on the drugs). However, I made the appointment this week as my head was whirling around with questions and I felt that I needed to have them answered before the treatment appointment. However, I have since decided to push it back because, whilst I really don't want to have treatment, I would like him to be able to get a proper look at the area and potentially take a biopsy to check that it is low grade, and he is unlikely to be able to do that this week as my cycle hasn't come back yet so my cervix probably hasn't returned to normal either. His seccy has assured me that there will be time for questions before the treatment and he won't just "dive right in" 
. So my plan is to go to the appointment to cross examine him with a long list of questions with the aim of getting to the point where he will do another colposcopy and biopsy any dodgy areas he finds. There is a chance that he will somehow convince me to have the treatment there and then, or that I might see the lesion on the screen and react by thinking 'getitoffgettitoffgetitoff NOW' but I'm fairly sure that I am not going to consent to the LLETZ at this appointment. I was on the immune suppresants for 6 months and I am sure that they contributed to this. I would like to see what 6 months off them does. And under the normal NHS protocol, I wouldn't have seen anyone after one bad smear, just been called for a repeat 6 months later. So I am thinking I will have this appointment and possibly a biopsy and then go back to the NHS schedule.
The danger is the time scale that I was mentioning yesterday because of the need for a clear smear before IVF at most clinics. So I leave this for 6 months. If it doesn't go away, I have the treatment then. And then I have to leave it a few months to settle down, and then hope I get a clear smear. I could always lie, I suppose. From what I have read regression rates are actually higher during pregnancy. I guess they tell you not to get pg because if it does get worse during pregnancy, you have some tough decisions to make. If I'd known that when I first got the result, I wouldn't have freaked out and insisted on seeing someone asap, but they don't tell you that in the leaflet, it just says not to get pregnant until the problem is resolved.
In the middle of all this, I had almost forgotten that we are seeing Mr Gorgy tomorrow for further immunology tests. I am going to go ahead because I want to test for infections and stuff, but I don't think I would do any more immune-suppressing treatment, for obvious reasons. KFZK is in agreement with that (in fact I think he would insist on it)
I need to do some scanties shopping. My bridey pants (set I bought for my wedding) has just fallen apart. At least the marriage outlasted the wedding knicks. 