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Eris' thread for bereaved mummies

1000 replies

feedmenow · 16/04/2008 16:28

OK, so the thread begins! I tried to think og something better to call it, but all I have in my head (still) is Shabsters comment about how it would have been better if we'd all met on a thread called 'how to cope with excessive wind'!

Anyway, we have somewhere to come now. Somewhere 'proper' where we can chat and remember our precious lost children, whether they were stillborn like my angel, or whether they were with us for 2 hours, 2 weeks, 2 months, 2 years or 20 years. No matter how long they were here it is still so very wrong to lose a child.

I just wanted to tell you all about yesterday. It was such a very strange day. Dp and I were collected by the FD in the limo that Eris was in and we drove slowly down our road behind one of the FD men. I felt like a fraudster, like I was going to be caught out and asked what the hell we were doing 'playing' around.

Anyway, it turns out that the crem we went to is absolutely beautiful, really gogeous gardens. The service was lovely. The songs and music we chose were perfect, and both my mum and mil got up and said some really touching, beautiful words. The minister read a story I had chosen and also an extract from Winnie the Pooh that he suggested. I sat with my dd1 on one side and my ds the other, then dp next to him. We all had our arms around each other and I cried silently throughout. Then at the end the minister asked everyone else to leave so the 4 of us could say our final goodbyes, at which point I started weeping with a vengeance. It wasn't til we went outside to join everyone else that I saw all the people who had come to be with us.

We went back to my parents house for brunch, which went really well. I come from a family who crack open the wine and beer at the earliest opportunity, so the wine flowed along with the tea and coffee for the drivers. It was a beautiful day, the sun shining, so we went into the garden. The children and the men played football, the ladies chatted and did a bit of skipping (who would have ever known that I could still 'jump in'???. I had got some helium balloons printed with the words "Too beautiful for earth..." so everyone released one and 'raised a toast' to Eris. People gradually drifted off home, but a group of people stayed with us all afternoon and into the evening. We had takeaway and eventually got home about 10pm. It was a very special day. I talked about Eris lots and, very importantly, people had fun. A very important thing to do, IMO, when celebrating a life instead of mourning a death. As people left I asked them all to be sure to remember my little baby girl, to think of her often and not let her be forgotten.

Dp and I set up a fundraising page to raise money for SaNDS for people to make donations instead of brining flowers. When I checked earlier today, we have had donations of £1360! It makes me sad that we're in the position to have received those donations, but we smile when we realise how much people care.

Anyway, dp went to the FD this afternoon and picked up Eris' ashes, so we at least have now brought our daughter home. It raised a few laughs yesterday when we were asked what we planned to do with the ashes and I said we would bring her home and put her in the wardrobe with nanny (whose ashes have been in my wardrobe for 2 years now!). Some might find this odd, but others thought it touching and comforting that they would be in the wardrobe together.

Anyway, I have wittered on more than I intended. I am pleased to say that I do actually feel a sense of peace now that the funeral is over. Both dp and I had been scared of yesterday as we were both aware that a funeral brings about a finality and reality to what has happened. And somehow, facing that finality has helped me achieve a degree of acceptance.

So, in memory of my precious baby daughter, Eris, I would like to pronounce this thread for bereaved mummies "OPEN"!!

OP posts:
ILikeToMoveItMoveIt · 17/05/2008 08:35

Oh Dooby, what a weight to be carrying around with you.

I don't have any specific advice as I really don't feel qualified to comment on this specific matter, but whatever you decide to do (pursue it further with the hospital or not) I believe you need to face it and deal with it. Burying it will not make it go away, and dealing with it doesn't rake up the past. The past has happened and it doesn't need to be raked up to be there - it's always there, iyswim.

IMO undealt with issues will always come back to haunt you. As painful as dealing with things can be, it eventually allows you have some sort of peace or acceptance.

I wish you peace, love and strength. We will always be here for you, and will never judge you xx

Doobydoo · 17/05/2008 08:45

Thankyou.I feel so much better just getting it out and receiving your responsesDosen't take much does it
Hope we all have a good day.
Dp is taking ds1 to the Irish golf open today[we from uk but moved here about 4 years ago]I am with ds2 today[he was 1 in April]Think his back teeth are coming through[eek].
THANKYOU AGAIN

shabster · 17/05/2008 08:59

Morning Dooby, Morning Girls.

OMG my head hurts..never again..till, maybe, tonight

Dooby the offer of emailing is always there..I find that writing feelings down really does help. Just give me a shout..feel free.

It is freezing here in Bolton, really cold.

Dont forget Dooby

lottiejenkins · 17/05/2008 09:03

Hi all, Dooby i asked two years ago whether any of Jacks organs had been retained, it had been worrying me for a long time since he died, our lovely gp contacted the hospital and none of Jacks had been retained but some samples had been kept from the post mortem which i was told was fine. Am so sorry you have been feeling like this.
I'm feeling like im on another planet this morning. We got to school at 8pm and Wilf was waiting, sadly his bags were delayed in another vehicle and we had to wait till 9.15 for them to arrive one stop at Mcds on the A12 later we got home at nearly 1am! I got into bed after a row with Wilf at 1.45 am and woke up at the same time as usual at 7am. Wilfred slept till 10 mins agoI dont know if im coming or going at the moment, im hoping for a nap later as im at a Ceiledgh(spelling) dance tonight. Love to everyone!!

hazygirl · 17/05/2008 09:22

its cold here too and i gotta walk a mile in memory today ha hax speak to you laterx

Doobydoo · 17/05/2008 09:23

Hi Lottie.Thanks for your post.Am for you.
Hope you and Wilf make up today!
Have a fab time at the dance[sound sfun]
Thanks again Shabster
I must go and do housework!

feedmenow · 17/05/2008 12:40

Shabs, what did you get up to last night ? ?

Dooby, I am so sorry that you are even having to think about your dd in this way. We all have enough to cope with without having to re-hash it because of your wishes were not adhered to. Do you think that you want to pursue it? Whichever way you go, please don't ever feel that we would be offended, upset or otherwise concerned about you sharing these things with us. At least, not because we don't think its appropriate for you to talk about. I feel offended, upset and concerned on your behalf, though.
I suppose in some ways I should be grateful that this kind of thing won't ever be a concern for us. My consultant was extremely thorough about the PM consent form and mentioned on many points that they had to go into a lot of detail to ensure that a repeat of Alder Hey was not possible.

Lottie, hope you and Wilf make up for the crappy evening today!

Hazy, what walk are you doing? Hope it goes well. One of my friends is doing the Moonlight walk in London tonight. She had surgery in february so needs to talk it slow tonight. She reckons it will take her about 9.5 hours. I plan to text her a joke every 1.5 hrs or so (if I remember to set my alarm!!). Anyone got any suitable jokes?

Trips, how is dh?

OP posts:
shabster · 17/05/2008 12:44

Hiya FMN - just the usual drunken, dancing, singing night that we always get up to at my friends!!!

So agree with your thoughts and words for Dooby....

Just finishing some knitting to put on ebay to raise holiday spends.

My granbaby is still cooking nicely in Emmas tum! His head is now engaged and midwife is very pleased with both mums and babys progress. Cant wait to meet him xxxx

Someone pinch me - everything is going so well - about bloody time too!!

frasersmummy · 17/05/2008 13:54

ooh doobydoo I really dont know what to say I can only imagine what a weight you are carrying about with you

I do remember when we were asked about a pm the alderhey thing wasnt long out the news and I didnt want to consent for this reason.
In the end the assurance were enough for us.

The fact you have brought it up here after all these years is really brave. Now that you have said it out loud you might find something in your brain narks at you to follow this up. If this does happen only you will know if you and our family are strong enough to cope with this awful news

Whatever you do decide please know that your friends on here will support you through it as best we can

take care.. sending you hugs

Doobydoo · 17/05/2008 15:12

Just want to say[inadequately]Thankyou! Thankyou all so much

hazygirl · 17/05/2008 17:57

fmn i did a mile in memory to raise money for cot death resarch cos they have been great since jayden died.it was only a mile but thats enough cos a lot of the kids were only two.there was a little girl who was born same time as jayden and she walked it bless herx

triplets · 17/05/2008 22:17

Hi ,
Thank you FMN for asking, he has not been brilliant the last three days, very tired, feels cold and off his food, makes me feel so sad for him , as he has gone from being such a strong independant hard working man, to a tired invalid. Just hope that he will soon pick up, though in a couple of weeks he will be starting chemo, its all still such a nightmare. When I think back to last year all our planning, our lovely 4 week holiday touring the states, so very glad we did it. Just got to hope for some luck!

triplets · 17/05/2008 22:28

Doobydoo,
We had a terrible experience with our darling Matthew. He died suddenly in our garden on the 2nd June 1994, three weeks off of his 15th birthday. He was never ill, and was fine that morning. We donated his organs, the PM was held the following day and we were told they thought he had died from cardiomyopathy. That was soon ruled out and till this day we do not have an explanation. One morning in Aug, 2 months later I was here alone, a copy of the PM came, quite unexpectedly, reading it, here alone was so dreadful, and when I got to the last page, it said that his brain had also been removed and kept in such and such fluid for further investigation. I did not know, no-one had told me, I cried, screamed, kept telling him how sorry I was, I didnt know. I got on my bike and cycled to the cemetery and stayed there for hours crying, I had buried him and didnt know. I phoned my GP, and was told he thought it was "standard practise" in a case f sudden death. 10 years later, a whole 10 years, a letter suddenly arrived from the William Harver Hospital(where Dh is now having his treatment) to say they now wished to dispose of my sons, heart, brain and tissue slides, did I want them back, or should they destroy them? It was such a shock, totally knocked be back down. Then of course I had to write and say I didn`t want them back, which made me feel guilty. It was a nightmare. So I feel for you, so very much.

I am sorry if I have upset anyone by my story. xx

LouiseAnn · 17/05/2008 23:45

Doobydoo and Triplets - that is so awful for you. You can't believe people could put grieving parents through this extra pain.

It feels like a privilege that you feel able to share some deep emotions and difficult times with the rest of us here.

I hope no-one minds, but I am going to say a prayer for us all. I don't pray as much as I should, but it has been a difficult few days for some people here.

Love and hugs, LouiseAnn

triplets · 18/05/2008 00:04

All prayers most gratefully rec`d atm, my Dh has recently been diagnosed with cancer, bowel and liver.

shabster · 18/05/2008 00:16

Hiya girls. Hiya triplets....my forever friend. Staring at the monitor not quite knowing what to write.

triplets · 18/05/2008 00:23

Where have you been Shabs, not out again, you`ll be worn out before you get to Faliraki!

shabster · 18/05/2008 00:30

Hiya honey - not got time to get worn out...Faliraki will wait for me xxx

lottiejenkins · 18/05/2008 09:03

Morning everyone.Well that Ceildgh was certainly interesting i found it a real challenge!(I dont know my left from my right) The second dance i did, i was laughing so much my friend thought i was crying, then a very sensible man said to me "I hope you are going to concentrate this time Charlotte!" (Note to self, do NOT wear long flairs and high heels when doing country dancing, DO wear you're best cast iron bra!!) Am off to Margate again tonight(I am getting very familiar with the M2/M25!!) Will be going at 2.15 and back tomorow at 9.30/10pm. I have Wilfs annual review.

shabster · 18/05/2008 09:12

Morning Lottie.

Morning girls.

I lurve dancing but I would have to wear elastic bandages round my boobs for that kind of dancing

feedmenow · 18/05/2008 11:30

Morning all.

Trips, that is so sad about Matthew. Especially, I think, a letter out of the blue ten years later!
Sorry that your dh is so under the weather. Does he know how many people on MN ask after him and are rooting for him? When exactly does he start the chemo and how often will he be going?

Lottie, I have no idea what Ceildgh is but it sounds like you had a laugh which is the most important thing!

I have spent my entire weekend (and week!) so far at my daughters dance show! Rehearsals on Wednesday and Thursday, dress rehearsal Friday, 2 performances yesterday and 2 today. Yesterday I got there at 1.30 and got home just before 10pm! I think dp thought I'd been sitting on my backside all day, but he should try spending 8 hours in a hall full of kids, mostly giwls, aged between about 3 and 11! Plus all the doing hair, doing make up, feeding them, numerous costume changes, entertaining them, stopping them causing injury to themselves or others, keeping their hair immaculate, looking after other peopls girls when they are watching the show, blah, blah, blah! And to top it all off, dd now wants to try tap dancing along with the ballet and modern she already does! More money, more time, more committment and another dance and costume change at the next show! Will be leaving for todays fun and frolics in about 20mins so wish me luck!

Lots of love to everyone today - don't know why, but am feeling a bit soppy and feel like initiating a group hug!

OP posts:
Doobydoo · 18/05/2008 15:34

Have only read some of Triplets posts so far.So apologies for not mentioning anyone else yet.
TripletsThankyou for telling this.How utterly devastating for you.I honestly think I went blind for a few minutes when I read Hannah's PM.
I am thinking of you and your dh too.i REALLY AM AND SEND POSITIVE THOUGHTS YOUR WAY.
I too was at the William Harvey Hospital[1990]

frasersmummy · 18/05/2008 19:45

the stories on here the last few days have left me hearbroken and speechless.

I really dont know what to say .. am sending you all great big hugs and will say an extra prayer for all our little ones tonight

A celidih is a scottish dance. The difference between this and a dinner dance is that most of the dances are done in groups of 6 or 8 and have set steps.

There is a lot of linking arms/hands and spinning around. Its very energetic but its fun and because you dance in groups you make new friends. If I had realised you didnt know Lottie I would have advised flat shoes!!!

Doobydoo · 18/05/2008 20:23

That sounds great fun Lottie
That must be hard for you Triplets going back to The William Harvey with dh with all the memories
I completed my nurse training there.and worked on Padua Ward and The NICU where Hannah had been...that was prob around end of 2005/early 2006.It felt odd as I also recognised some of the nurses nd the 2 consultants were still there.
Are you reassured by the care they are giving your dh?
I still know the odd person that I trained with that works at The Harvey,haven't spoken for ages.But I know thay are lovely[they work with adults]
Am sending you many thoughts and positive vibes
Shabster...not long now till you are a GranAm so excited for you.xxxx
Thanks so much FMN.It really means alot that I have been able to post and your reactions have made me feel a weight has been lifted.
I will not be pursuing it.Sort of half did a few years ago when ds1 was about 2.But have decided that it would not be fair on my dp or our sons as they weren't with me then.Even though dp would be totally supportive.
I am just so and at it all.For manny people and am very much relieved that this does not happen anymore without the consent of parents.

xxxxxxxxxxxTo you all.

triplets · 18/05/2008 20:53

We can change nothing, so better not to waste precious energy, onward and upward with lots of UMPAH............as said by the great Shabster!

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