He cannot walk very far, is in a lot of pain when he has to move away from a specially adapted chair and can only drive short distances, so I’m not sure what meaningful memories you think he can make with them. Even just sitting down with children this age isn’t very easy as they’ll forget and try to climb on him.
He is doing what he feels is best and I don’t think I should be saying otherwise.
@Moonnstarz i don’t think you’re really understanding and I’m trying to explain but seem to be caught up in a bit of a cyclical conversation. Having two little children all the time can be lonely. I’m kind of used to that because before this horrible diagnosis I often had them alone for the duration of the day. But it did mean the house was ours and for the most part, unless DH was working from home (which to be honest I’ve always found changes the sort of vibe in the house; it isn’t that he demands silence or anything just that for me it changes the atmosphere,) But anyway, the house and the day could be built around just the children a bit more easily. As it is I have to be mindful of DH as well, and he really is doing what he can but in many ways the focal point has shifted from the children to him for now, because how can it not?
Spending a couple of hours with a mum friend in soft play isn’t really going to affect that. And in a couple of cases (not all) people are backing off. Days out can work out very expensive , so a lot of the time I find people prefer to save that sort of thing for the weekend and partners.
I am sure we will get into a rough sort of plan / routine where we’re out for the morning and then back for the afternoon most days. Last summer was also hard work but I did have the option of sending DD into nursery for a couple of days a week and while both children are much easier alone I’d say ds is no real trouble and is downright easy. (That’s another mum friend problem I have; there’s an awful lot of one child families but that is for another day perhaps!) Ds plus DD is another story. I did actually put a film on for them yesterday afternoon and had to abandon it as it was like having a sheepdog and a cat; endlessly roaming in circles, go to one sofa get up down knock cushions down roam to DH, climb on DH, wedge between the space between New Chair and sofa, out again, swipe at sister, sister screams, sister climbs on DH, gets down, roam and herd and shriek and climb. My crap parenting? Possibly; they aren’t like that alone though.
Still hoping this may get better yet …