DLA Wait Times 80

[Kirstygingee]

MR- Mandatory Reconsideration
NC- New Claim
COC- Change of Circumstances
SD- Scan Date
LRC- Low Rate Care
MRC- Middle Rate Care
HRC- High Rate Care
LRM- Lower Rate Mobility
HRM- Higher Rate Mobility

Our MR wait is almost over, original awards was HRC and LRM, asking for HRM SD 25/04 had call from DM on 12/11 confirmed that in her opinion HRM hadn't been considered based on SMI and evidence was not considered fully. Asked us a few questions said she needed to speak to a medical professional and should have the decision by end of week hopefully.

Decided not to call on Friday, going to call on Monday to hopefully end this whirlwind journey!

Going to keep my fingers and toes crossed for you that you get the decision you want and your child is entitled too!! 😀

COC 06/05
I’m going to call on Monday and see if it’s with a decision maker yet🤞🏽
Hoping this will be my last thread🙈X

I done a COC 16/04 I haven’t heard anything. I last called 2 weeks ago and they told me it was still waiting to be assigned. I’m too nervous to call again may wait till Wednesday and call up as someone advised before.

Seen a few people awarded at 31 weeks so hopefully you have a decision made over the weekend or early next week. I’ve seen a 28th and 29th of April awarded last week, I’ll be 29 weeks on Tuesday. With it being whoever desks it lands on and how fast the DM gets through claims any April/ early May will hopefully be done by the end of the month so🤞🏽X

NC 27/08
COC 28/07
MR 04/08

So still in for the long haul!

Let me know how you get on. Rooting for you and your child 😀

I'm posting so I can keep up with the date updates. I'm taking a guess that my scan date was the day I got the text saying they had received my forms for my son so NC 14/10. Couldn't send hardly any evidence as gp and the family team both messed around, then I went through school for help and its taken years (over 7 since I first spoke to school) just to get to finally waiting for a practitioner allocation. Waiting for this is a blip on the radar compared to that. So many teachers and nurses (especially my daughters specialist ADHD nurse) saying they see his behaviors but getting it on the right piece of paper into the right hands has caused years of delays in getting him support especially in his education. I'm hopeful for a quick resolution but given my lack of luck with getting him support so far I am definitely not holding my breath 😅. I will keep going because as parents thats what we do. I hope wait times pick up for everyone waiting for responses to all claims so our children can get the full support they need.

Good luck! Im after you but calling fri to check they have new evidence:-) will also be 27 weeks then as well x

princessmom222 I’ve not heard anything have you.

Not not a thing. Il prpbably call end of next week to see if they have my evidence.

they told me to ring up the end of November because I rang up got told multiple things saying it was with a decision maker then with case worker so the lady told me to ring back up then as they should have an outcome hopefully we hear something soon.

I got told last week that i should hear something in two to three weeks. Then i rang up this week to see if evidence got there and said it hadnt yet. But that i was in the final list waiting to be allocated to a dm. She also said that they cant give me a timeframe (I wasnt asking for one).

Bless you, it seems like you are having to really fight for your child. It is awful when people dont take you seriously and you feel like your banging your head against a brick wall. I have had similar issues like you with my eldest daughter. I have had to fight for her since she was 2 (she is nearly 10). Shes been to three different schools and it wasnt until she started her current school i was finally listened too. They should take parents more seriously, a parent knows their own child more then anyone. Keep fighting for your child!

It's difficult definitely especially when the staff who say we see it are trained SENCO. It was easier when my daughter was diagnosed but she only got that speed due to the violent nature of part of her condition. She has been diagnosed ADHD with a compulsive tic disorder for 4 years but now at 18 has a huge list of symptoms that we are trying to get them to take seriously.
My son has had interventions done through school like intensive speech therapy because he stopped talking from the age of 2, it took him 2 years to say a full sentence after starting speech therapy with nursery at age 3. They have seen his sensory issues every lunchtime when he has to have everything in separate positions on his plate or he wont eat, or the teachers favourite of them forgetting and putting custard around his cake on pudding only for him to eat the centre of the cake and leave a wall of cake on the edge just thick enough to hold back the custard. I'm glad his current teacher joined the school 3 years ago as she watched during her student placement then pushed his actual teacher the next year to do the forms. If she hadn't it would be delayed even further. I think sometimes the staff get so used to certain behaviours in certain kids that they don't necessarily ignore but just gloss over them. My son is 10 now and with hormones starting to kick in for puberty his behaviours are even more obvious. Stimming in class, covering his ears or removing his glasses when everything is too much.
As parents we fight for our kids but we shouldn't have to fight so hard to be heard by professionals.
Sorry for the long reply I'm venting while mentally preparing for his opticians appointment which is always a challenge.

Bless him. Im a trained SENCO and everything your describing sounds like autism/adhd. I also have 5 neurodivergent children so i understand both ends of it. Im also diagnosed with combined ADHD/OCD and i have suspected autism so am currently getting that looked into. Some schools and SENCOs do overlook things as im having same issue with my third daughter who has serious ADHD. Your son really sounds like he needs an EHCP and alot in place to help him overcome and regulate his emotions. If they havent already given him some buy some ear defenders, i think they would really help with the loud noises. Ask for regular sensory breaks for when he is overstimulated. 5 minutes before class can help, 5 minutes during lesson and 5 minutes after. It can make a world of difference. Do they break his work down into small tasks as that can help too. It prevents them from getting overwhelmed. If they can put him in smaller groups or a table where there is only a couple of children on there. I asked for all this to be in place for my oldest and everything your describing your son does my daughter does. She also makes different cat noises for each emotion she is feeling and having someone who recognises these can help too. I asked for an appointed teacher who can recognise when she is getting overwhelmed and they take her out of the class and take her to feed the fish or for 10mins in sensory room to calm her down.
Im so sorry your struggling to get the help you need for your child it is awful, as a parent you shouldnt feel like you arent getting taken seriously. Keep fighting for him, im sure someone will help you.

@Princessmom222 I'm currently waiting for the actual SENCO to see me to discuss what options they have. They barely have the staff for extra currently the teaching assistant is covering for about 6 in his year on her own. I'm starting courses this year to get qualified myself for this role. Even if I am not qualified until my son is in secondary I still want to be able to help others in my situation. I am very lucky that his actual teacher has watched him for the past 3 years and she's doing all she can in class to help. Breaks when he's overwhelmed is one but without the additional support staff its putting him at her desk facing away with a collection of fidgets to help him calm again. I have to get him new ear defenders as he has outgrown the kids sizes (school won't supply without diagnosis). His teacher has put a complaint in on my behalf for the delays as she said yes they are my coworkers but they have put him at a disadvantage by delaying all these years just to avoid extra meetings and paperwork. ( literally what was said by one teacher just because she was leaving) His current teacher is amazing she's already taken my email from family service about awaiting practitioner allocation for schools records, this way they can start getting him help before diagnosis as he wouldn't be on that wait list if they weren't going to diagnose. Extra time for his sats, seeing about smaller room with less people, using a laptop so when he goes wrong he's not scribbling across his page and destroying his work. She's a rockstar and is definitely getting treats.
You must also be a rockstar! I'm sometimes overwhelmed with 2, you have 5 plus your own quirks!

@SassyPearlMember Im so glad his teacher is taking you seriously and is getting you the support your child needs. Thats amazing! You seem like you will be really good at it. When you do your learning youll find out a whole world of information and ways to help at home too!
It is very overwhelming and challenging but i honestly wouldnt change my kids for the world. They are all unique and idividually amazing. I just wish they didnt have the struggles that they have. Let me know your outcome. I hope this is one thing you dont have to fight.

MR scan date 16/6 so probably still got a long wait anyone know where there at for MRs x

My MR date is 02/05 and I had a called from the DM Friday (14/11) and she said report will be issued soon!

Any mammies on here who has a child/ children with pica

Aww okay thank you maybe a good 4-5 week until I hear maybe but I hope you get what you and your little one deserve keep us updated x

Just marking place - waiting to hear about son’s first renewal. Didn’t have much new evidence to send other than a couple of therapy appointments and did manage to get a letter confirming what I have said / help at school. Not holding out too much hope tho - think I only found out about his first 2 year award in April 2024 and did the renewal sep so doesn’t feel like much time has passed!

Think I have a bit longer to wait - for reference current award ends in just under 3 weeks time (dec 5th) looks like a lot of ppl here back a week ish before the end of the claim

When did you send renewal