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Here are some suggested organisations that offer expert advice on special needs.

DLA Wait Times 80

1000 replies

Kirstygingee · 15/11/2025 17:22

MR- Mandatory Reconsideration
NC- New Claim
COC- Change of Circumstances
SD- Scan Date
LRC- Low Rate Care
MRC- Middle Rate Care
HRC- High Rate Care
LRM- Lower Rate Mobility
HRM- Higher Rate Mobility

OP posts:
Princessmom222 · 17/11/2025 18:46

Kirsty3kids · 17/11/2025 14:59

That happened to me after 4 weeks they hadn’t received anything so I sent it signed for and they got it the next day.

The lady i spoke to earlier also said she was chasing up my evidence. She rang me back and said she managed to chase it up and it has now been scanned onto the system. I couldnt thank her enough, she went above and beyond to help me!

WaitingTimes · 17/11/2025 18:47

Memum22 · 17/11/2025 18:20

From what I can work out I think this is middle rate care. How old is your little one?

She is 12. 13 in March

WaitingTimes · 17/11/2025 18:47

Thank you for your help 😀

AugustLily · 17/11/2025 19:05

Hi, I am just looking for some advice MR 15/09, my daughter’s award due tomorrow, I can see it pending but is £10 more. Does anyone know what this could be ? Thanks

SassyPearlMember · 17/11/2025 19:07

AugustLily · 17/11/2025 19:05

Hi, I am just looking for some advice MR 15/09, my daughter’s award due tomorrow, I can see it pending but is £10 more. Does anyone know what this could be ? Thanks

I believe its the £10 Christmas bonus given around this time of year.

Mammybear3 · 17/11/2025 19:15

Simplelifeneeded · 17/11/2025 18:16

We had some bloods done for various things and genetics testing. From the bloods taken so far the only thing they show is ds has a under active thyroid and he's a sickle cell carriar.

We are currently waiting for an app for genetics,an early autism diagnosis through the hospital as she’s under 5 I had Honestly not even heard of pica until the midwife mentioned it to me

Simplelifeneeded · 18/11/2025 00:59

Mammybear3 · 17/11/2025 19:15

We are currently waiting for an app for genetics,an early autism diagnosis through the hospital as she’s under 5 I had Honestly not even heard of pica until the midwife mentioned it to me

He already has ASD diagnosis, global development delay and hyper mobility, severe speech delay.
Health visitor referred him to the community paediatrics and salt at his 2 year check. We was seen by both really fast within a few months.
He was 3years 6months when he got his asd diagnosis.
He 4 now and he saw the education phycologist recently they say developmentally he's 2.
Now we waiting for his final Echp.

Jessesmum19 · 18/11/2025 09:34

ThisDearMember · 15/11/2025 19:27

I done a COC 16/04 I haven’t heard anything. I last called 2 weeks ago and they told me it was still waiting to be assigned. I’m too nervous to call again may wait till Wednesday and call up as someone advised before.

Hiya have you heard anything yet xx

LinaKarimRayan1993 · 18/11/2025 09:43

3isenough8 · 17/11/2025 13:41

M/r 10/10

Had a phone call Friday from a decision maker. Completely unexpected as I waited 28 weeks for mt other child's and that was only a month or so ago. No decision yet shes calling the school for some info .

Wow this is so speedy. Hopefully they've got more staff working to clear up the MR pile before Christmas. Wishing you all the best 🥰

ThisDearMember · 18/11/2025 09:54

Jessesmum19 · 18/11/2025 09:34

Hiya have you heard anything yet xx

Hi nope I haven’t yet, think I will call tomorrow afternoon. X

Mammybear3 · 18/11/2025 10:18

Simplelifeneeded · 18/11/2025 00:59

He already has ASD diagnosis, global development delay and hyper mobility, severe speech delay.
Health visitor referred him to the community paediatrics and salt at his 2 year check. We was seen by both really fast within a few months.
He was 3years 6months when he got his asd diagnosis.
He 4 now and he saw the education phycologist recently they say developmentally he's 2.
Now we waiting for his final Echp.

So glad your getting support for him a awnsers I’ve seen lots of family’s who are struggling to get help my daughter is 3 we’re currently on waiting list for a sen school and ehcp is in progress

Princessmom222 · 18/11/2025 10:21

@Kirsty3kids have you heard anything. Im sure you said yours was with a dm a week or so ago.

Sophhiiee89 · 18/11/2025 11:26

Does anyone know what this means please my anxiety is taking over with dread x

DLA Wait Times 80
Garfield456 · 18/11/2025 11:39

Sophhiiee89 · 18/11/2025 11:26

Does anyone know what this means please my anxiety is taking over with dread x

I think they will want to ask you some questions to do with your child's claim to help them make a decision

xxMumofthreexx · 18/11/2025 12:37

Hello, I have done my daughters first renewal. She was prescribed medication yesterday but I'm unsure if I can phone and ask them to add this information on to her renewal or would I need a change of circumstances form this close to the end of the renewal? Thanks

Princessmom222 · 18/11/2025 12:56

xxMumofthreexx · 18/11/2025 12:37

Hello, I have done my daughters first renewal. She was prescribed medication yesterday but I'm unsure if I can phone and ask them to add this information on to her renewal or would I need a change of circumstances form this close to the end of the renewal? Thanks

I rang them the last week and told them about my daughters new medication on a new claim and they just added a note onto the system. I called using option 4. It might be different for renewal but its worth a try 😁

Kirsty3kids · 18/11/2025 14:42

Nope nothing have you think it’s going to be a long wait by the looks of it x

xxMumofthreexx · 18/11/2025 15:11

Princessmom222 · 18/11/2025 12:56

I rang them the last week and told them about my daughters new medication on a new claim and they just added a note onto the system. I called using option 4. It might be different for renewal but its worth a try 😁

Thank you, I'll call tomorrow then and see what they say

Sophhiiee89 · 18/11/2025 15:51

Garfield456 · 18/11/2025 11:39

I think they will want to ask you some questions to do with your child's claim to help them make a decision

Yeah it was got to wait now as they are contacting the school could be 7 to 10 days or 4 weeks depending on the school 😪

Jessesmum19 · 18/11/2025 16:15

Kirsty3kids · 18/11/2025 14:42

Nope nothing have you think it’s going to be a long wait by the looks of it x

What date was yours x

Simplelifeneeded · 18/11/2025 16:26

Mammybear3 · 18/11/2025 10:18

So glad your getting support for him a awnsers I’ve seen lots of family’s who are struggling to get help my daughter is 3 we’re currently on waiting list for a sen school and ehcp is in progress

Good luck with everything.
We have my sons draft Echp, now waiting on the final plan and to see which of the special needs school he will attend.
I hate hearing about people waiting so long for the support their children need.
Its not fair on the children or the family.

Kirsty3kids · 18/11/2025 16:33

Jessesmum19 · 18/11/2025 16:15

What date was yours x

28th August Nc x

Jessesmum19 · 18/11/2025 16:36

Is there any April coc still waiting ? X

Memum22 · 18/11/2025 16:59

I called DLA and they made a decision on 14/11 regarding my sons MR for his mobility but they can’t tell me over the phone if it was successful 😬

Princessmom222 · 18/11/2025 17:13

Kirsty3kids · 18/11/2025 14:42

Nope nothing have you think it’s going to be a long wait by the looks of it x

Was it with a dm then? Id call to see if there has been an update. But then again i am a very impatient person and the anxiety gets to me.

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