DLA wait times 76

[HeartyGuide]

New Thread as previously one nearly full.

Is it usual for a DM to refer an MR to their medical team? I thought all MR went to someone medical but DM phoned and said she had to refer. SD 30th Jan.
I’m so mentally drained from waiting.

Hi, yes completely normal as the DMs are not medically trained they refer questions to the dwp healthcare professionals it's done more with the MR because one DM has already looked at it and made a decision so at MR it's a different DM so they look in depth into what you disagree with ect so they have questions for the healthcare professionals.. Also they need to record on internal documents why it's been awarded or not awarded it's just part of their process.. Its nothing to worry about and it's why MR take so long cause the dwp healthcare professionals work across the board for all disability claims child and adults and sometimes they take longer to get back to the DM with answers... You should hear real soon 🤞🏼

I did pop over my friends again today to look at her award letter our boys are same age same condition and have very similar needs the reason given for hrc on hers is attendance with bodily functions throughout the day and some bodily function needs at night which is exactly the same as my son and there was evidence to support that with mine so can't see how it's hrc for one and Mrc for the other for the exact same thing so I'll be doing MR and I'll ask them that question 👍🏻

I know what it’s like to be a punch bag 😞 they just don’t understand do they but it’s hard on us parents, the paediatrician did say to me as she gets older they will prescribe meds for it but she didn’t say what age that would be, is those meds for adhd or asd? I hate to think what it’s going to be like as she gets older. They clearly haven’t looked at all of your evidence so i would definitely do a MR if I was you. Another long wait but hopefully the wait will be worth it in the end 🤞

Thank you so much. It’s a relief to know they usually do that. 😊

Has anyone done a MR recently that is just on the length of the award? Child is 9 years old.

I’ve only just sent off the renewal forms so I’m probably being much too over optimistic in getting awarded again. My daughter’s needs aren’t going to change (and if they do, I would notify accordingly) but I wondered if many people have much success appealing the length of the award.

Aye its hard work the meds are from age 5 for the risperidone which is an anti psychotic but is used in patients with asd to calm aggression there is other meds at age 6 for asd and adhd I think there called ssri which are like anti depressants but they have success in asd and adhd patients I've done alot of research as it's taking a while to be more comfortable with it but I'm worried about the behaviour in the future as he gets stronger Im definitely doing the MR though as I know he is entitled to it and we have fought to hard we had 2 attempts at the ehcp before it was granted so I'm gonna keep pushing I'm just a bit deflated today but I'll pick myself back up tomorrow I hope you get the award you deserve for your little one straight away hopefully you don't have to go through this aswell fingers crossed for you 👍🏻☺️

To receive high rate care the child has to have significant needs through the day and for prolonged periods at night, does your child need lots of extra care during the night?

My daughters was 100% rushed through too, if they actually read all the evidence she would of been given HRC/HRM ive sent tonnes of evidence. Ive sent tonnes more now waiting on the MR and i still think well probably have to take to tribunal. She is profoundly disabled, she will only get worse so I dont understand

Thank you, I never knew they could prescribe meds for asd until my last appointment, she even did it to the paediatrician because she had enough of being there 🤦‍♀️ if I’m honest it’s given me abit of hope that one day it may stop. That’s all we can do is keep fighting for the right support for our children. Will they be sending out a statement of reasons to you?

I never asked what rate was he on before the COC?

I really hope you don’t have to go to tribunal, your daughter 100% should be entitled to HRC and HRM, if she doesn’t get it this time then something is terribly wrong. How many weeks are you on now?

17 weeks now, God knows how much longer we have to wait. I do not do well with waiting as you can twll 😂

Does anyone know what date they are on for Mr? X

😂 me either, the longest I’ve ever waited for a decision from Dla is 18 weeks and now I’m on week 19 it’s stressing me out thinking I could possibly have another 9 weeks 🤯

The longest I waited was 11 weeks 😂 so im going out of my mind. I just want to know either way so I can A, start planning the sensory room if we get awarded/backdated or B, get in contact with CAB and start the tribunal process. It sounds so dramatic but its like we're living in limbo

Crazy ain't.it last 2 awarded was 15 weeka this 1 neally 22 weeks

Hi, I done coc in June for daughter non verbal autism, gdd, gastro esophageal reflux disease severe anemia iron deficiency and pica and since been put on a medicated diet under the hospital with shakes, i did state in coc form i was going down tube fed route but decided to try the shakes first do i need to let DLA know, and do any of you know there address so i can inform them thank you.

Dla wont take any changes into account less thehve been there for 3 months already and expected to last at least 6 months

Ok thank you, ill ring and double check but i mentioned it in the coc form that stated the information about the feeding tube and the upcoming dietician appointment finger foods have never passed her lips and the hospital said she could be on the shakes for months or years until she attempts some sort of food.

I googled it and i understand where your coming from but the issue with food has been going on since 6 month old and dla have been aware since i first applied, and i let them know the situation on the coc form, at the time of coc i was waiting for an appointment with the dietician, ive now had the appointment and thats whats been put in place going forward so do i need to let them know or not. Thanks

Yea 3 nappy changes each night he screams for a hour and half at bed time wakes up frequently in the night can be awake for upto 3 hours head bangs on the bed frame so I spend hours a night laying with him being attacked for atleast 25 minutes trying to calm him down 9 times out of 10 I'm up at 2/3am downstairs with him and fully up for the rest of the day he has a melatonin prescription but it dosnt always work I only use it 3 times a week as directed so he doesn't get a tolerance

Yea I do hope things improve I have no life at all I go to bed early just to have enough energy to deal with the night time and when I get the aggression it's so upsetting as he has no social skills I can't even have a hug afterwards which is so difficult he is very high functioning his memory and maths skills are incredible but he moods are just so unstable she didn't say on the phone if they would give me reasons but I've got a feeling they didn't even look at the care needs bit as I got the form originally sent as he turned 5 and was entitled to mobility but when it arrived his care needs had become alot more so I ticked the change in care and explained all the changes but I do honestly think considering there are people in Jan and Feb still waiting for coc and mine was the end of March they are backed up not reading them properly and rushing through them I took a photo copy of my dla form after I filled it in and all day a night care needs are filled in on my form 👍🏻

He was on Mrc only as he was awarded from 3 years old until 2027 and I felt that was fair as at thar age most children are still in nappies and waking up and needing care in the night the aggressive behaviour only began when he started school last September and you sort of say to yourself oh this must be a response to change and it will pass then he lost his grandad on the day on the 31st of March which made things alot harder for him 😔 and he has been this way ever since his speech isn't very developed so I'm not he fully understands bless him

Nappies and melatonin wont make a difference to the award my daughter is 4 shes got autism, gastro esophageal reflux disease pica severe anemia iron deficiency gdd and on a medicated prescription diet under the nhs shes still in nappies and shes been on melatonin since 2023 the award has never changed despite a long list of medications. Ive seen people with eczema be awarded high rate care, so its luck of the straw clearly.