DLA WAIT TIMES THREAD 49

[zoeybrooks45]

Another thread, post your scan date and good luck to all those awaiting outcomes. ❤️

Any body with mandatory reconsideration ring up today ? X tia x

Thankyou so much.

Yep one less thing to worry about...next up is getting him to have his bloods done. But thats a few weeks off yet.
Also hoping he has a smooth transition into year 3....his new teacher doesnt seem to understand much about SEN children. Hes struggles massivly with his handwriting....hes awaiting a dyspraxia assessment. Senco have been great im school and hes been given a laptop to use for big writing tasks. Xx

🤣🫣 I don't let them just tell me what they want, i said can you look into my claim and see where it is exactly, he got my claim up and said it was with the case worker, so I said well how long will that take her said should be done 2-3 weeks. 🤞🏻

It deffinitely is one less thing to worry about. my son got awarded late wednesday afternoon and i phoned up yesterday morning to find out what rate ect and he got HRC and after i got of the phone yesterday and today ive felt like a weight has been lifted off my shoulders as its one less thing to worry or stress about.
Oh god bless you hun i hope everything goes well when he has his bloods done and that his transition into year 3 goes smoothly🤞🏻
oh thats amazing that he has been given the laptop to help support him in school.

my daughter also struggles with her hand writing also id say her hand writing is of the level of a 5/6 year old (shes 12) she got screened for dyslexia in year 6 and it flagged up alot to suggest she was dyslexic but her primary school said rather then refer her for propper assessment theyll just “put her on SEN plan and treat he as dyslexic” … i think she could be autistic/adhd - primary school did refferal for her but was declined due to lack of evidence from school as shes masks in school but all comes out at home in a huge explosion. Shes struggled all throughout year 7 and she starts year 8 in september and im soo worried about how shell cope as itll be more difficult than year 7 in relation to school work ect so im going to try get a meeting with senco and see iff they will do refferal for autism or iff theyll help collect evidence from school so that i can go through right to choose.
its soo hard to get our kids the support they need and deserve but i wont give up or stop fighting for my kids to get the support they need

My boy is the same i think he may be autistic. He has been referred by school and just been referred along the autism pathway after his first peads appointment. His teacher was great and got the ball rolling straight away. They dont see his meltdowns but see his struggles with fine/gross motor skills and listened to everything i had to say about his other struggles. He also has a speech disorder so been on SEN register since reception. When they mentioned dyspraxia id never even heard of it...now ive read up on it i think he may be dyspaxic also.

Hope you manage to get school on side and get your daughter the support she needs. Xx

Im soo happy school listened to you about your worries and supported you to get your son support ☺️ and thats amazing i hope you arent waiting to long for your son to get assessed 🤞🏻

i went through health visitor for my concerns about my son and at 18months old she referred him to peads and SALT. The peadiatrician reffered him to the Autism pathway in march 2023 and were looking at early Jan 2025 for the assessment process to begin and between mid feb 2025 to end March 2025 for final diagnosis appointment. My son is 3 and will turn 4 in september so its been a long journey soo far…. Currently been filling out EHCP forms again for my son with the nursery so there ready for September to get ball rolling in hopes to have it all sorted and in place by end of december/jan time

and thank you hun i hope soo to but i will fight untill she does have support she needs in place x

Gosh it really has been a long journey for you both hasnt it.

We waited nearly 3 years for SALT referred in nursery and finally got seen in year 1. Luckily we managed to get him private speech therapy till he was seen by NHS. Forever greatful for knowing a speech therapist he brought him on so much. I never realised how bad his speech was because i could understand everything. Was so upset when i had the phone call from nursery. 😥

I dont really know what to expect from the referral its all new to me. Dont have a clue how it all works all i know its a long process.

Good luck with everything. Xx

It really has been and its been so hard and stressfull as I've had to fight soo much upto now for my son and at times i feel like im failing even though i know im not . After being told by dm on wednesday he was getting awarded and getting told what rate he was awarded yesterday i actually cried tears of joy and relief that the DM was able to see how much my boy struggles and how much extra care he needs compare to a typical 3year old.

oh god bless you its such a long process isnt it for our children to be seen by professionals.
my son was reffered to the autism pathway march 2023 , in july 2023 i got letter to say he had been accepted on the pathway and another letter explaining the process of it and information of what professionals may be involved during the assessment and diagnosis process and how long it can take from being reffered to getting assessed/diagnosis and what services are available for you to access for help/advice/support whilst waiting so places such as daisy chains ect

thank you also good luck to you for everything also i hope it all goes well for you and comes around quickly for you 🤞🏻xx

My heart breaks for you and your little girl. You sound like you’re doing an amazing job! It’s just luck of the DM unfortunately that is what it comes down to. I would say it might be worth having Citizen Advice help with MR if you’re struggling with wording. Go through the list and state reasons/evidence of proof for each. I think someone got declined before for the safety at night thing on a previous thread. Speak about the difference between her and her peers. Gather your thoughts and come out fighting. You will get what your little girl is entitled to in the end & a good chunk of back pay once this is all over. Others that were declined were later awarded HRC which just shows they are wasting time hoping you give up. X

@zoeybrooks45
Firstly, thank you. Sometimes just hearing someone say you're doing a good job really touches you most when you need it. Tonight I needed it. I'm sure this is just one hurdle of many to come in her lifetime but we will get through it. I will ask for some advice from citizens advice but I really think a tribunal would be the best place for me as speaking is a lot easier for me than putting pen to paper. Even better if I could take her with me to a tribunal, I often wonder if any of the decision makers have an experience on what we and our children have to face on a daily and nightly basis. Thank you for your comment, if you're still waiting I hope you get a good outcome!xx

Do they receive letters on a Saturday if posted by special delivery for a Saturday?

@GemzZ92 I still haven't heard anything hun, avoided mumsnet all day and actually been on the phone to my doctor today. My mental health is seriously declining again over this because of the constant struggle,worry and wondering to the point where now it's physically obvious too. I haven't been this down for a while, the last time I felt the way I do now was when my mum passed 6 years ago. The best way to describe it is I just feel so defeated at this point. I need the help for my son now more than ever it seems really convenient that now is when I'm struggling the most. I seen someone say they had been awarded but forgotten they had even applied. I don't understand how that's possible! I've been counting down the months and days, I've rang twice at this point and Im literally relying on getting an award just to be able to afford a new bed and furniture for my son. Absolutely baffles me. All that is keeping me going at this point is my boys and the lovely ladies on this group. I have no support system it's just me and my boys and although it hurts it thrills me to see people being awarded. Im so so so pleased and super happy for everyone finding and receiving the answers they deserve💖

This makes me so sad to read 🥹 i fully understand no support system but if you ever need to talk your more than welcome to message me, i don’t speak to my mother and haven’t for years and it breaks my heart

it breaks my heart to see people struggling i really do hope you get an answer soon ❤️ sending love x

Hi,

Just wondered if anyone has successfully gotten their child DLA without a formal diagnosis from a paediatrician. My daughter has a lot of needs which I won’t fully go into details over but a few are she’s still in nappies at nearly 6 years old. She has no concept of needing the toilet and her major factor is her bowels. She will not empty them. She has seen a paediatrician at the hospital for this, who has stated it sensory and we need to wait for a community paediatrician. Academically she is working at 18 months. At school she needs a 1-1 and they and myself are convinced she’s dyspraxic, amongst other things. She is currently on the waiting list for the community paediatricians and has been for a year and a half but like so many others we’re just playing a waiting game for her to get an appointment. I had her sen review in school in early July and they were the ones who told me to apply for DLA, which I never thought to do as she wasn’t officially diagnosed.

I sent everything off last month with lots of support from school and her nursery (I work so she attends after school club), as figured worse they could do was say no. However has anyone been successful without diagnosis? Am I going to be waiting 20 weeks for that no I’m convinced I’ll get?

Thank you for reading x

im soo sorry to hear your feeling this way hun 😔 i really do hope your awarded soon so its one less thing for you to worry or stress about 🩷
i can relate on doing everything on your own for your kids. I also dont have support system its just me and my kids , i mean yeah i go round to see my parents so my children can see their nanna and grandad but i do everything for my kids and honestly i cant offload to my parents iff im having a bad day of just need a listening ear , so i understand how hard it can be at times but you are so strong so please try and remember that and you can always give me a message if you need a chat 🥰 i know its hard but try to keep your chin up lovely it shouldnt be much longer now 🤞🏻🥰xx

Dla doesn't need a diagnosis it goes on care needs so if the care you need to provide is above that of another child their age (just for example the nappies, yes most children are potty trained by 6, but depending on dm they could see it as the nappies help the bowel condition so won't be an issue, I've actually seen people declined and told dla isnt to be used for washing soiled clothes and that a nappy is sufficient to help the childs needs, could also go the other way when the dm sees nappies as a care need above a child that age.)

The whole awarding seems a little backwards where some are awarded with no evidence and then those who send lots are declined, or people awarded/declined for the same things and then some dms do want a diagnosis as I've also seen people declined for no diagnosis even though it states you don't need one.

I guess it's a pot luck with what dm you get and how they view your claim/evidence, I know it's probably not what you want to hear but just being realistic, I put off applying for 6 years before I did recently and was awarded high rate care and low mobility, I didn't want someone who I didn't know making a decision on my child from paper.

Neither of my sons are diagnosed, one gets hrc and lrm one was just awarded mrc and lrm. As ling as you explain in detail their need you should be awarded

Hi, I rang on Thursday to give more notes and they couldn’t take it over the phone so someone was going to call in two days time he said to take them from me.
what’s your scan date?

Thank you, it’s exactly what I wanted to hear 😊. I’ve sent as much evidence as I can and explained her needs, as well as school and nursery sending her needs when she’s with them so I guess it’s a waiting game.

totally understand what you mean about it being backwards, I went through this many years ago with my brother (I’m his legal guardian) and he got denied. He was diagnosed and we sent so much evidence. In the end we ended up at tribunal and the judge awarded hrc and lrm as soon as we walked in and was baffled with how he was denied in the first place with all the paper work I’d sent!! Begged them to come and spend the day with him too and assess like they did with adults at the time but they refused 😒.

It's baffling isn't it how it works, they all don't seem to award from the same guidelines. I don't understand how people can get awarded with no evidence yet people who have it get declined, that's just my opinion though.

My child's 13, has tics, depressive disorder and anxiety diagnosed, on 3 different meds plus melatonin or they literally dont sleep for days. They're on asd pathway and awaiting salt sessions to start, they also soil regularly and camhs think its sensory, docs don't know why they do it. They're also very dangerous (runs away has suspected pda, self harms, sets fires, very aggressive both verbally and physically I could go on but I'd be here all day 😂🤦🏻‍♀️) I sent loads of evidence, I don't think they looked at it all as on my award letter that came today they said they used information in claim and a report I'd sent, but suppose they couldn't go into full details of what the looked at the letters would be stupidly long then.

Fingers crossed you're not waiting too long and you get the award your child deserves!

So sorry to hear that. Hopefully you hear this coming week and its 1 less thing to worry about.
They really need to update their system so people can see where everything is upto instead of being fobbed off over the phone!

Praying you hear next week. Sending hugs xxxx

My little boy hasnt been diagnosed but we recieved a text to say he qualified yday! Unsure of the rates as i couldnt get through.
He has just been reffered along the austism pathway.
Awaiting a dyspraxia assessment and is still wet most nights. Hes on medication for this. He also has a speech disorder. Hes 7.

Sent in NHS salt reports Private salt reports school reports and OT report.

He masks in school so they only see his struggles with fine and gross motor skills. Xx

Good luck to everyone!

so my Son was awarded HRC, so ive done the changes on UC and requested the disabled child element and carers element. I honestly would of know how to do it iff it wasnt for people on this thread posting pic on how to do it soo thank you to whoever shared it as it really helped…but when ive googled to see how much disabled child element is its coming up with 2 different amounts so im completely confused. I think one was around £200 or just under and the other amount was just over £400.
Just Thought id ask on here to see if anyone can make it make sense as im absolutely clueless and my mind is baffled.🤣

Unrelated I'm so sorry I woundnt know the answer I'm dreading doing this myself if I do ever get a decision😕 but do you have Instagram? If I give you my name can we talk? I feel you're the one I most relate to and even posting what I did last night was completely unlike me so tbh I think I need to reach out to others kind of like myself right now x