Hiya @Ltb17 thanks for asking.
I have to be honest I've not been on here for a bit. I guess i find it hard hearing others being awarded for similar needs to my DS but he got refused.
I ended up requesting a statement of reasons to find out why they declined his claim. That only came last week so I'm due to sit and do the MR this week. To tell you I was appalled is any understatement. ALL his care needs (EVERY SINGLE ONE!) were dismissed following a call to the school SENCO. Apparently he presents as happy, full of life and confident in school. No he is loud, overpowering and spends his days role playing taking on a dominant characters part. Best was he walks himself to school at 7 completely independently. Which is strange as up until 6 weeks ago he was driven to and from school and those doing the school runs now have to restrain him and hold him back and they have even told school this. They also denied any interventions at school which again is very strange as he is in two type of therapy and will be being removed from class every day for sessions on his mobility and poor muscle development. I cannot put into words how let down I feel.
The statement of reasons made me angry upset. He doesn't qualify for mobility as he isn't registered disabled or lost any limbs. It doesn't matter he has no road sense, is impulsive and a danger when out and has to be pulled back or chased after. Those two were the criteria they gave and he met none. Not only were the SENCo comments infuriating, they commented how though sharing my bed wasn't conventional because I dont have to move between rooms during the night to help him it is deemed acceptable. And the worst I felt was 'may we suggest the use of nappies or pull ups to avoid your child's embarrassing accidents'. No consideration that he is wetting and messing himself most days a week.
This process is soul destroying especially when I see others being awarded for similar needs to my boy. Another mother on FB the other day posted her childs award letter. Awarded for the same things my son does. I feel so let down by them.
In the meantime my DS is getting worse and school are putting everything on the fact he is happy at school yet seem to forget the interventions they have put in place. I was part of a meeting recently and I cried and cried as its even worse that i thought. Sadly he is still being punished daily for his stimming which I know upsets him as he gets home screaming saying that they stop him from trying to make himself calm. He spends his days sensory seeking. School have also told me to discuss the possibility of vacant seizures from observations that have made yet only a week prior they had told the DLA his is absolutely fine.
I spent my morning crying to our GP. This will be the 3rd urgent referral he has made since Feb. He is also referring to community Paediatrician and we will he starting with BEAM.
I'm really really upset