Dla wait time part 2 2022

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Set new one up as old thread ended @April202 @Nicky80catri @Leaf1216 can't remember any other names

@Legofigure thanks hun. I am just so worried they are going to refuse her. Shes 12. She doesn't sleep at night, wont go out alone and throws temper tantrums, lies in bed crying over little things. Shes under camhs. I did send the camhs report in. Shes also under special measures at school. I just hope and pray that we get awarded x

I'm so sorry to heat your daughter went through all of that! She sounds like such a fighter bless her ❤️ its heartbreaking what some kids go through isnt it 😔 yeah I dont think I will get it, like you say its her age. Its crazy though because the care she needs is a lot more than a child of her age even at 8 months old!
That's crazy, so unfair that you don't get hrm for her, I dont get it either!

@kbe15 I’ve just come to the conclusion that if my daughter could run away from me then she’d get hrm. Because she can’t walk properly let alone run they consider her ‘safe’. So you either have to have a child that runs or a child that can’t walk at all or has no legs to get hrm.

Mine can run off and we get lrm, I’d never considered he would be entitled to hrm as academically he’s on expected levels so I didn’t think he’d fit the severe impairment criteria but reading some guidance from contact on intelligence he prob should qualify
contact.org.uk/about-contact/news-and-views/how-to-claim-dla-higher-rate-mobility-your-top-questions-answered/

i applied for a blue badge and we got with lrm anyway with no issue so I’m going to stick with the lrm

@Sarah3587 have you ever challenged the decision not to award you hrm?

I read these comments in here and really believe my son got a bad DM. My son's claim was refused completely. His needs are high and through the night and those saying their children have been awarded are giving care reasons just like my son.
I wont go into every point but his mobility was refused on the basis he isn't registered disabled and/or lost any limbs. My son is a runner. Dangerous when out and has to be restrained. I have statements from those walking him stating he has to be chased after and pulled back. No road sense or stranger danger. But on the basis stated above he was refused mobilty.
Care wise there are too many to go in to but here's a few;
My son needs care through the night. Because he doesn't like being away from me he ends up in bed. We spend hours back and forth and then I give up exhausted. But I get limited sleep due to constant waking, bed wetting, him headbutting and punching, falling out the bed, all of which I am with him calming him, settling him and washing/changing him. DM stated 'though not conventional Mum doesn't need to move to a different room to care for X therefore this is deemed acceptable'. Basically because he shares my bed everything I do during the night doesnt matter.
Regarding the accidents during the day and night, my son does both, 'may we suggest using nappies or pull up to avoid embarrassing accidents going forward'. Totally dismissing the face my son is having accidents 3 to 4 times as day.

As I say there are many other insulting reasons but those alone above I feel are appalling and dismissive of what I am actually doing to help him. I dont stop. I am so tired I feel constantly ill

@Needanewadventure2021 how long do you have to get your mr done? Have you managed to get any help or advice for it? I do believe there's good dms and bad, I think some skim over and some actually read into it properly. I do believe you've been unfortunate here, I was really shocked when you were declined. I really do hope with your mr they overturn their original decision.

Because I requested the statement of reasons I have until the end of June. I'm gathering more evidence but the person who's going to help me isn't available until the weekend to sit with me.

My son went to a therapy session yesterday. All I'm going to say is I found it so hard. He didn't say much which i expected, but i kept having to go after him and bring him back. He couldn't keep still, was climbing, running into tables, banging his head into the wall. We were there an hour and I felt angry upset that this was going on so blatantly in front of people just as I detailed in my claim, but as school said they don't see it....declined! There is no way in hell they arent seeing this in school. They just label him disruptive.

@Needanewadventure2021 did you get a report from the therapist he saw yesterday stating what happened? If not it may be worth asking them to write a letter for you to send off as well. Also I would be calling the school when they return and asking for a meeting with senco, headteacher and also family support worker if your school have one, take someone with you if possible and really lay it on the line with them.

How old is he? Does he have support at school? It’s not supposed to but I think a lot the time goes on what support they are getting at school as otherwise it’s just your word. It’s not like this in all cases so must depend on the assessor but having school based back up evidence def helps.

Sorry didn’t read this one before I posted, so school aren’t seeing anything they just have him down as being disruptive, what are they doing about the disruption, exclusions, meetings, word with you after school? Confirm every conversation you have with them back in writing by email, put something like “just wanted to confirm our earlier conversation” then at end “please let me know without delay if I have misunderstood anything otherwise I will assume you are in agreement that this is an accurate record of our conversation”.

the school prob won’t even read them or reply but it builds up your evidence.

School have been awful. They deny care needs to dla but in a meeting recently I've been made aware more interventions are being put in place. It doesn't make sense why the senco denied all his care needs as his been observed since early March (claim went in end of feb) to form a report in May that he needs different interventions during each school day.

Regarding the therapy yesterday unfortunately not. I did ask but they arent that kind of service and cannot get involved in giving evidence to assist a diagnosis. Frustrating really as it would have been a perfect statement

Thanks @Morph22010 I've been doing this since 2018. It's appalling. This last school year though things are really ramping up with my son.

When he did talk yesterday to the therapist he was saying how he gets punished for chewing/sucking his clothes, staring, not sitting still, not finishing his work on time, eating fast enough.I was horrified by what he was saying. He then got really angry saying they he can't calm himself down in school as he will lose his playtime. I wish I could have recorded him but it would have broken confidentiality. I know this happens too as I've addressed it but they refused to write anything down

For the meeting yesterday could you do something like a meeting note yourself and include the observations and cc it to the therapist. So whilst they aren’t providing direct evidence it is evidence of the session that they hopefully aren’t saying isn’t false you could the send to dla.

I’ve never bothered getting schools or anyone else to fill in the section to be completed by someone else and have been awarded both times I’ve applied as my other evidence was enough. If they aren’t going to write anything that will enhance your chances then you may as well not bother asking them, although of course they could be contacted directly if other evidence wasn’t enough

They refused a statement and asked me to give their details. The dla called them

Just checking in to the new thread, scan date 12th April, 8 weeks next Tuesday 🤞🏼 still a few weeks of waiting yet 😔

confirm everything said to you verbally back to school by email. I used to find that if I cc’ed in Someone like sendias or la caseworker (when we had one) that school tended to up their game, I wasn’t expected the person copied in to do anything or even read but the fact of copying someone in sometimes helps

And regarding yesterday they said no to this also. The GP did warn me that nothing from the meetings can be used to form evidence. It is a children's mental health charity whilst waiting for CAMHS. I actually had a missed call from CAMHS yesterday to say this I just need to wait and they cannot speed his appointment up but all his referalls have been received

Thats a really good idea about cc'ing people in. Thank you. I thought my own paper trail will be enough but this is a good idea

That’s a nightmare, are they ever calling you in to collect or excluding him if he’s being disruptive? If that’s the case the it’d totally refuse to collect anymore excluded or not being as they said they can manage.

We're waiting together...it's driving me slightly mad (I keep checking my banking app in case of pending payment! 🤦‍♀️) at this stage. It doesn't help that at least two people were apparently awarded from 5 April on the Facebook group last week!

He has never been excluded. I think that would push my son over the edge. He genuinely fears their punishment. He is made to sit on the floor and shouted down to. Made to lose playtime and face the wall. The list is endless. I get the angry brunt of it at home where his taking it out on me that they don't understand him and are punishing him for trying to keep himself calm.
I've spent every school year having nearly daily conversations when collecting him about whats happened in his school day. They haven't all been bad. Some hitting. Mostly learning concerns and erratic emotions and clear refusal to do anything. His isn't really a badly behaved child until now where he is copying others bad behaviour in his class

I got straight through on the phone line at 9am exactly. It's with the decision maker (scanned 9 March). 😬

I called, scan date 23rd march, it's in overtime pile? Lol not sure on meaning of that but she said decision should be in next 2 weeks

I am the same day a you. I'm.really not hiding out much hope on my claim.being successful mind