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207 replies

2shoes · 30/01/2007 17:17

Last post on sn for me.
I asked for a thread to be deleted BEcause I care about the mums on sn.
I will not have this said to me or about me.

"You parents who asked this thread to be removed, you should be ashamed of yourselves. "
I will not apologise for caring about peoples feelings.

OP posts:
wotzsaname · 31/01/2007 19:11

is this still going on? oh my
im going out tonight just thought id mention it.

oliveoil · 31/01/2007 20:40

ROFL at tweedledumber

MamazonAKAfatty · 01/02/2007 09:38

your dont pay much attention then do you mom2asd. if you haev lurked within SN for 6 months and yet you didn't realise that a very regular poster did indeed have a child with signifanct SN.

quite frankly i couldn't care lessif your genuine about who you are, your opinions are being shoved in peoples face and your posts arew agressive and rude.

you recently posted this -
THINK IT IS SAD THAT SOME PARENTS ARE IN SUCH DENIAL THAT THEY EITHER DONT THINK IT COULD HAPPEN TO THEIR CHILD OR THEY KNOW IT'S HAPPENING BUT LOOK THE OTHER WAY.

i am quite a placid person but if you were sat within a mile of me when i had read that i could have knocked your block off.
how bloody dare you! and dont tell me it wasn't aimed at me...it came 3 posts after mine explaining about the fact my son gets bullied daily and that i wouldn't wish to see a video of it.

Your a vile peice of work. i also find it rather sad that you name yourself the mother of ASD. i am a mother to a child that happens to have ASD. your name alone tells me that you consider his problems before you consider him....and you know what, i thought for two days ebforew saying that here but your attituide tells me that i really dont give a toss whether it upsets you or not.

as for the other one

i have seen a few posts by MMDDWW and if i am honest i think the onl;y peson in denial about ASD is her.
she does nothing but post trying to cause deabte over autism. this isn't a campaign site its a support forum. she seems to
think having an SN child is pne big pissing contest of "i have it worse than you"

your seem to be so consumed with finding a cure, or the latest treatment to try and make your son normal. msyb when you accept that your child has a condition that is no ones fault, you are nto to blam, the hospital is not to blame its just one of those things..maybe then you can come to a group like this and offer support rather than accusations of denial.

Oh and if "the Americans" are so great....piss off to their forum and annoy them

mom2asd · 01/02/2007 13:04

Yawn~ it's been a long night!

""if you haev lurked within SN for 6 months and yet you didn't realise that a very regular poster did indeed have a child with signifanct SN.""

No I only read threads that I am interested in and she has not been in very many of them, none of which she has spoken about having a sn child.

And no it was not geared toward you, you obviously know that already or you wouldn't have posted it. It was meant for the parent(s) who emailed MN asking the thread be removed. However, then it was explained as to why she asked, so I apolozige to HER, but the thread should have remained and the link taken off.

And don't worry about pissing me off. Seems I have done so to you though. I am very patient and accepting of my sons autistic symptoms but he was not born with autism.

Show me a study that PROVES autism is genetic in all asd kids. Prove to me that it is genetic in any asd kids. There is no proof, if you showed me proof I would definately send it to the high above as you would be creating history.

It has been PROVEN that mercury (from all sources not just vaccinations) causes neurological damage. It has been PROVEN that if a mercury toxic mother gives birth her fetus has mutated DNA and the mercury becomes part of the babes genetics. It has been PROVEN that mercury toxicity mimics autistic symptoms so many of these kids are not autistic to begin with.
pubs.acs.org/cgi-bin/abstract.cgi/j.../ja065552h.html

pubs.acs.org/cgi-bin/abstract.cgi/j.../ja056354d.html

pubs.acs.org/cgi-bin/abstract.cgi/a.../ac050727b.html

If you have a mercury filling in your mouth chances are you are mercury toxic.
www.iaomt.org/smokingtooth.cfm

So no, I accept love and cherish my dear son and he is accepted at every inch of his mind, body, and soul. He is Perfect in my eyes.

But when there are medical issues going on in a child you do not sit on your hand and let them happen. Chronic colds, ear infections, constipation, diarrhea, weak immune system, catching viruses every chance they come around, food allergies, gut issues, mineral absorbancy problems, metabollic disorders... these are all common in mant autistic children who are mercury poisoned.

Here is a lab in Paris that can do a test and tell you your exact metal body burdon. The exact level of metals in your body. 3 of my sons levels were sky high, off the charts, toxic levels. High enough to cause neurological damage.

It would be wise if all parents did this test with their children to rule metal toxicity out just to make sure. If you leave a child toxic it only does more damage to the brain.
www.labbio.net/pages/autismeenvir_intoxicationeng.htm
also this link www.labbio.net/pages/indexvheng.htm

So call acceptance what you want, but for many acceptance is not only loving, accepting your child for who they are, but accepting the fact that there could be medical problems in that child and getting the appropriate labs to confirm or deny.

PeachyClair · 01/02/2007 13:14

No, there's no need for me to do a metal test on ds1- I know why he has the damage that causes autism (At least I think I have the answers)- a combination of bgenetics- Aspies on all sides in my family- and a very bad birth. DS3 regressed, but I don't think its to do with metals again- he was born very, very passive and I think his regression ties with dietary things.

Even if it is the metals soesn't mean genetics arent in there: isnt the current idea is that it si a genetic something triggered by an environmental insult- such as metals, gluten or casein, traumatic births, pollution.

If it was just the metals, there would have to be something different between your child and the ones that don't develop ASD.

It may be the case you didnt remember 2shoes, although she really is very well known. However, it is still possible to be friendly. As a rule Sn threads are extremely welcoming, but when someone comes in apaprently angry then its quite threatening. Generally we introduce ourselves, build relationships and so forth.

I'm sorry your son has ASd and I know how horrid it is- I have a ds1 with AS and DS2 has severe language issues and Paeditrics have told us he ahs severe ASD (although we were told by school he doesnt yesterday- so more than a bit angry).

In all honetly, if you really want to be part of the SN community here, I would suggest changing your name and coming back with an introduction.

theheadgirl · 01/02/2007 13:52

I agree Peachy, not been part of MN long myself, but find it a supportive community of people who know what I'm going through. Given your provocative, strident tone mom2asd, what ARE you getting out of posting here?

Fubsy · 01/02/2007 14:00

Does this metal toxicity means that some children are born asd but some have it because of the nasty heavy metals, (which lets be honest, are pretty damn difficult to avoid in the 21st century)-

does this mean we are going to have different levels of asd - ie mines better than yours because he wasnt born with it?

This thread is getting pretty ridiculous. Mom2asd - in medicine, nothing is proven without doubt or exception.

PeachyClair · 01/02/2007 14:11

There's a good section on the metal toxicity thing in Autism for Dummies (amazon). I think its quite big in America? (jimJams will know).

Agree with the my son wasnt birn with it bit..... in all cases a child being disabled is sad. there's no ranking, otherwise us AS parents should get off and make way fro the ASD parents, who might consider deferring to the CP parents whose kids can't walk....

Does the phrase sisterhood mean anything?

Blu · 01/02/2007 14:14

I interpreted / understood M2asd to be saying not 'i'm better than you' but 'it was aquired rather than innate', i.e there may be ways of prevention in future.

Lay the arguing to rest and return to dicussion and debate?

coppertop · 01/02/2007 14:24

I think in the case of my 2 boys that autism is genetic as there seem to be a history of it in the family. Ds1 also reacted badly to the DTP imms and I suspect that the mercury didn't do him any favours. The problem with looking at autism is that there are very few things where you can say "All children with autism do/are XYZ". There are just too many variations, IMHO.

Tiggiwinkle · 01/02/2007 14:27

Very clearly genetic in my family-2 of my 5 boys dx AS, another 2 with lots of traits but undiagnosed. Also in extended family.

Blandmum · 01/02/2007 14:32

ASD is such a broad spectrum, with a range of affects. I would have thought it would be fairly reasonable to suppose that there are a range of causal factors. A friend of mine has a clear genetic 'cause' of the ASD his children have. It also wouldn't be too outragious to sugest that there could be a genetic redisposition to a sensitivity to heave metal toxins. It could be one, or the other, or both, or neither, and could be caused by damage at birth, all sorts of things.

I think that looking for a cause of ASD would be rather like looking for a cause of cancer. There will be many causes and some of them will be interlinked.

blossomhill · 01/02/2007 14:39

peachy ~ what happened with ds2 at school? I know your ds1 and ds3 have had a dx?
Hope you are ok xx

2shoes · 01/02/2007 15:24

"No I only read threads that I am interested in and she has not been in very many of them, none of which she has spoken about having a sn child."

mum2asd kind of explains why you will not have seen me. you are obviously only reading threads concerning your topic. I post on numerous threads. But as I donot have a child with autism or asd I don't often venture on to those threads. although I do read them.
try clicking on the profile icon. It will tell you loads.

OP posts:
jenk1 · 01/02/2007 15:27

i disagree that people arent born with autism im sorry but i do.

I have Asperger Syndrome, so does my cousin, so does my dad and so does my son, its looking 99.9% that my daughter will be dx,d with an ASD soon and that she also has CP, so did my nanna.

I do agree that mercury/MMR can make the symptoms worse but i think IMO that the ASD is already there.

If you take my family for example, theres a clear genetic link running through it with ASD.

PeachyClair · 01/02/2007 16:39

Blossom, it was ds3 sorry (did I put ds3?). Ed Psych (oops no sorry educational advisory teacher ) sayt hat in fact he is much mroe with it than the average three year old , desopite the nursery saying he can't cope at MS school / CM saying he has an ability age of 18 month / Paed saying he cant cope at MS and that he is ASD.

Aaaaargggghhhhhhhh

Well, THAT Headteacher was in a meeting with DS3 before hand.

Rather amusingly (though not for my poor baby) they said he doesn't need nappies so I cant send him in any- wet twice in 2.5 hrs at nursery. Serves em right.

Actually just spoke to NAS and if he's not dry in a fortnight, he's going abck in nappies- we agreed its abusive and humiliating for the lad.

Almost funny though! This kid can't say if he's a boy or a girl, can't complete any task unaided, cant string together 3 words on a regular basis- but apparently if you complete a complex activity such as making a snowman, instruct him in appropriate colours, then take him away for another activity he can return and sibgle handedly prepare and complete said snowman in colours instructed.

No he can't. he can just about scribble on a good day.

So here we go again LOL! Back to BIBIC (for reports), although CM helpingt his time and she has a child on the spectrum too, she's compiling reports / diary etc.

problem is DX is provisional until SALT and fake- ed psych is sending reports to Paed as well. Furtunately this is an exact duplicate of what they tried with ds1 (though nobody has yet told us to lock DS3 in a room and leave him there yet...) and its the same Paed who over ruled them last time.

Dinosaur · 01/02/2007 16:41

2shoes, I'm very glad you're not going .

PeachyClair · 01/02/2007 16:41

sorry, THAT head was in a meeting with behaviour lady; she ahs never said 2 words to DS3 that I am aware of, certainy not with my permission.

Aloha · 01/02/2007 16:47

It is genetic in our family too. There are historical figures which almost certainly had ASD long before mercury fillings. I am not saying that there are no insults to the growing brain that can cause austism, I am sure there are, but it's not the whole story IMO. Agree there may be several routes to the condition.

Jimjams2 · 01/02/2007 17:06

mom2asd- please can you post the details of the Paris lab. Keep meaning to check out ds1, have some details of a lab in the States somewhere. Do they do that counting thing, or a straight reading. Do they use blood or hair?

Re genetics. Personally think there's 2 types 'Pure" genetic - runs on the family- imo more common with AS/HFA.

Then I think there's genetic predisposition to environmental damage. In our family I think ds1 and ds3 definitely have that. DS1 autistic (he had the environmental damage) ds3 not (he didn't meet the environmental triggers). They're very similar in lots of ways though, especially once you start testing biomedically.

Jimjams2 · 01/02/2007 17:07

There's no autism in our families btw. Not even a strange uncle with a weird hobby. Nothing. Lots of autoimmunity though which seems to go with the regressive/triggered form.

When I say ds1 and ds3 are similar I mean biomedically rather than behaviourally.

mom2asd · 01/02/2007 17:30

Not sure why I would have come across as my child is better than anyone elses. I was giving our experience and connection with my sons autism explaining the claim that I do not accept my son because of a screen name. Simply explaining that my son is very much accepted but that his autism was not something he was born with. anyway

Jimjams2:
I'm sorry the links I posted were not working for come reason. I went back and tried them and didn't work. Try this:
www.labbio.net/pages/index_vh_eng.htm
click on autism, then click on
?Intoxication with Heavy Metals - Urinary Porphyrin Profile

That explains the test. It is a urine test. Not screening the metals coming out but the metals that are in your body and tissues according to the porphyrins. It's a very useful test. Retested my son after one year of chelation and his levels are down but still very high. It takes years to get these toxins out of the body but with this we saw gains.

Incase that link doesnt work here is what it says:

""Urinary Porphyrin Profile
Porphyrins are formed as intermediates in the biosynthesis of heme. In humans and other mammals, porphyrins with eight, seven, six, five, and four carboxyl groups are excreted in the urine in a well-established pattern.

Porphyrins Urinary Measurement allows us to confirm the break down of an intoxication.

Its profile offers an etiologic orientation (heavy metals, organic compounds).

CLINICAL INDICATION :
Effect of overloaded toxic elements on organism, Mercury Body Burden evaluation, Intoxication to heavy metals (Pb Hg As Al), Impact of the dental alloys, Surveillance of chelating therapy.

Research toxic compounds in :
Chronic fatigue Syndrome, Chemical Hypersensitivity, Fibromyalgia, Neurological , Cognition, Learning troubles, Immune Deficit.

7 metabolites evaluated :

  • Uroporphyrins I & III
  • 7-Carboxyporphyrin
  • 6-Carboxyporphyrin
  • 5-Carboxyporphyrin
  • Precoproporphyrins
  • Coproporphyrins I & III ""
PeachyClair · 01/02/2007 18:33

mom2asd, if you look at the side panel with all the etc, therr's stuff there on how to do links- its a skill n this siyte LOL!

Oh and I warn you now thatv you'll have to excuse my typing, my visio insnt as it should be.

Jimjams2 · 01/02/2007 19:22

thank you!

Greensleeves · 01/02/2007 19:28

lol at "Not even a strange uncle with a weird hobby"