Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

GOODBYE

207 replies

2shoes · 30/01/2007 17:17

Last post on sn for me.
I asked for a thread to be deleted BEcause I care about the mums on sn.
I will not have this said to me or about me.

"You parents who asked this thread to be removed, you should be ashamed of yourselves. "
I will not apologise for caring about peoples feelings.

OP posts:
mom2asd · 01/02/2007 19:29

ahh thank you peachyclaire. So much to read on here I guess I overlooked that.

saintmaybe · 01/02/2007 21:25

So glad you're not going, 2shoes. you're someone whose posts I do look out for, and I'd have missed you.

2shoes · 01/02/2007 21:32

mum2asd what is hyperbaric oxygen treatment?
Hven't heard of that. (I posted this on the othere thread but put it on here in case you missed it,)

OP posts:
wotzsaname · 01/02/2007 21:36

hi 2shoes....yeahhhhhhhhhhhhh....yeahhhhhhhhhhhhh

wotzsaname · 01/02/2007 21:37

come on..... mexican wave ........yeahhhhhhhhhhh.......yeahhhhhhhhhhhh......
lost the plot.

Fubsy · 01/02/2007 21:43

DD has got a strange uncle with some strange hobbies - my brother

I do worry about these "causes" or links with various conditions. Like Martianbishop says, everybnody probably has varying degrees of sensitivity to things, common and rare. But (forgive my ignorance here) how would mercury sensitivity cause autism in a three year old who would not have fillings, and is unlikely to be eating vast amounts of fish?

Which I suppose brings us back to the vaccination thing again. But I dont hear people crying out against the albumin in vaccinations - which means that some kids whose parents do want them to be vaccinated, cant be because of egg allergy.

expatinscotland · 01/02/2007 21:47

Oh, dear!

I missed all this.

Too busy trying to figure out when DD1 will start her SALT.

Fubsy · 01/02/2007 21:48

Also - sorry to be a bit provocative here - there is a direct and well documented link between current advancements in neonatal care (ie enabling children to survive at very low birthweight)and subsequent SN - including CP, cognitive and perceptual difficulties, ADHD, language difficulties etc.

But I dont know anyone who wouldnt bust a gut to enable these babies to survive, its a chance to be taken.

Im starting to lose the plot here I think, Ill shut up and go away for a bit.

2shoes · 01/02/2007 21:58

Fubsy You are so right I KNOW there is a link,

OP posts:
Fubsy · 01/02/2007 22:39

{{{{Peers into computer to see if 2shoes fell off her chair}}}}

2shoes · 01/02/2007 22:44

why would I fall of my chair??

OP posts:
Fubsy · 01/02/2007 23:07

You stopped after a comma - I thought there was more to come!

misdee · 01/02/2007 23:16

WTF has been going on?

expatinscotland · 01/02/2007 23:22

I'm still trying to figure that out, too, misdee!

misdee · 01/02/2007 23:29

its bloody madness.

when& does dd1 start SALT? we have another week of intensive SALT soon.

expatinscotland · 01/02/2007 23:47

DD1 is in the process of being diagnosed with dyspraxia, which her father also has.

She got her letter for her first SALT appointment in March.

Just wondering what to expect.

She's been referred for occupational therapy, too.

Just wish there were some way to know how affected her learning will be in the future, but one step at a time, I guess.

She's 3.5 and potty training is a concept that has escaped her entirely. Her brain just doesn't even register when she's wet or soiled.

I've no doubt she'll get there in her own time, but EVERY one of her motor skills has been delayed - first spotted at her 8 month check up.

She doesn't seem to get it when you ask her questions, either. Or concepts like either/or.

misdee · 01/02/2007 23:49

dd2 first assessment was a very long session which took around an hour IIRC (about a year ago) they suspect she has had glue ear in the past as she missings off all the end sounds. her -reassessment last week took 30mins.

is she still in nappies? do you get them free in scotland?

misdee · 01/02/2007 23:50

we self referred to OT, and got dd2 assessed, she has a breezi chair for dining as she falls off normal ones, and bath steps as well. would like somethign to stop her falling off the loo onto her head when she attempts to wipe but that would mean peter cant use the toilet then.

expatinscotland · 01/02/2007 23:51

She's still in nappies. She knows all about pants and knickers. She just doesn't know when she's wet or soiled, so paed said to leave it a bit.

Get them free?

I've never heard of that.

She didn't walk till she was nearly 2 and has coordination problems already.

Doesn't help that she's flippin' 43inches tall already and her legs are loooonnngggg.

expatinscotland · 01/02/2007 23:52

Paed referred her for OT.

Isn't this fun?

misdee · 01/02/2007 23:59

this is whre dd2 runs (literally) into problems. she has low muscle tone, but walked at 10months. by 18months her walking gair hadnt improved, at 2.5years it still hadnt improved. at 4, it still isnt that great. she stil lfalls a lot, often knocking her sisters over, and is constantly walking into things and people. but because she walked early we dont get much help. she has seen the physio who discharged her after one session and gave us a list of exercises to do.

dd2 is also tall, same height of many kids in year 2 class (7year olds) she is 4yr old and at nursery still.

Speak to your HV about nappies, or start a new thread, you may be entitled to free ones. do you get all the benefits etc? (DLA, again might be diufferent up there)

theheadgirl · 02/02/2007 00:00

Good luck with all this expat. My daughter has Downs and Asd. Whilst I obviously wish she hadn't got prolems, I sometimes think its easier to have a diagnosis, than go through the uncertainty of what you are facing, knowing that there are delays, but not knowing why. My DD was referred by special school nurse for free nappies, but I think HV can also do it for you

mom2asd · 02/02/2007 01:33

""how would mercury sensitivity cause autism in a three year old who would not have fillings, and is unlikely to be eating vast amounts of fish? ""
Fusby,
I think my post may have confused. I did not say there was a link in mercury toxicity in children from them having mercury fillings and eating fish.

Here is what I posted, I'll try to re word it so it's easier to understand. Sometimes I get caught up in what I'm trying to say and I don't make sense.

Ok here is goes.

Not only can mercury from vaccinations effect children's neurological system but they can also be effected by their mother in utero before they are born.

If a mother has mercury fillings you can bet she is mercury toxic. Just eating a hot meal releases mercury form the filling into her mouth and she breaths it breathing up to 1000 times the safe amount of mercury each time. Eventually the body stops being able to properly excreet the mercury and most women by that time start to have signs of depression, anxiety, menopause, and other issues. This is not limited to mercury fillings. It's also in the air from coal being burned, it's in fish, it's in light bulbs, it's in a lot of things.

When that mercury toxic mother becomes pregnant the mercury is mutated in the fetuses DNA becoming part of the babe's genetics. Meaning some children who are born with mercury toxicity as part of their DNA and will react negativly to mercury in vaccinations even the slightest amount. These kids may not had autistic like symptoms had they not been exposed to the vaccines because there wouldn't have been a trigger. That's what I was trying to say.

mom2asd · 02/02/2007 01:46

2shoes,

Hyperbaric Oxygen therapy is a chamber that one gets in and receives oxygen through a mask or hood. The chamber puts you anywhere from 11-25 feet under pressure, or under sea level. It's like scuba diving. Henry's Law says that gas under pressure turns into liquid. The gas is the oxygen, the pressure is going under pressure and the liquid is the oxygen going into the blood forcing more oxygen flow through out the body also promoting new capillary growth (blood vessel growth). Hyperbaric has been known to give CP kids the ability to hold items and use their hands when before they could not move them.

there is an organization called the international hyperbarics association that was very helpful for me but the best resource available is here/link{http://www.netnet.net/mums/} that's probably not going to work haha so here is the link again www.netnet.net/mums

Here is a bit of information that I have copied and pasted here for you to read:

Hyperbaric Therapy benefits your body by helping to increase your body's
ability to absorb oxygen. Oxygen is vital for health, it is the single most
important element your body needs. Oxygen is our primary source of
energy.
Not only does oxygen fuel the body, it supports the immune system by
destroying toxic substances. Anaerobic bacteria, fungi and viruses all have a
common intolerance for oxygen; they cannot survive in an oxygen rich
environment.
The body's vital functions are enhanced by increased availability of
oxygen. Increased pressure also stimulates blood flow and decreases
inflammation, and has a calming effect. Sleep is enhanced, absorption of
nutrients and digestion improved.
At the cellular level, oxygen is required for proper function.

Oxygen deficiency is often overlooked.
Some of the possible signs of low oxygen levels in the body include:

Premature aging
Unexplainable depression, anger or sadness
Memory loss/forgetfulness
Sleeping disorders, drowsiness, exhaustion
Digestive disorders, acid stomach
Excessive colds or infections
Inflamed, swollen or aching joints
Muscle or tendon aches
Headaches
Chronic fatigue
Difficulty breathing, breathlessness, shortness of breath

Certain environments and activities can contribute to low oxygen levels, including:

Regular, heavy exercise
Regular participation in sports activities
Working in a sealed building
Working excessive hours
High stress work environments
Living in city with high pollution
Traveling frequently in an airplane
Frequent travel across time zones
Smoking or being around smokers
Consuming alcohol on a regular basis
Driving in congested traffic more than 1 hour per day
Lack of exercise/sedentary lifestyle

Who uses mild Hyperbaric Therapy?
Conditions which may benefit from Hyperbaric Therapy include:

ADD/ADHD Arthritis * Autism
Asthma Allergies * Acute Mountain Sickness

Acne Brain Injury * Bell?s Palsy

Chronic Fatigue Cerebral Palsy * Crohn?s Disease

Fibromyalgia Frequent Air Travel * Hypoxia

Alzheimer's Parkinson?s Disease * Anti-Aging

Multiple Chemical Sensitivities Joint Pain

Loss of Limb Lupus * Immune deficiency

Multiple Sclerosis Sports Injury * Stroke

Surgery: Pre/Post Wound Healing * Diabetes

Circulation Problems Headaches * Acid Stomach

Candidiasis Body Detoxification * Skin Disorders

Sleeping disorders Cosmetic Surgery * Lyme Disease

Frequently asked questions:
Frequently Asked Questions:

  1. What is Mild Hyperbaric Therapy?
nMild Hyperbaric Therapy (HBT) is a safe method of delivering more oxygen to the body at the cellular level. nHBT provides the optimal environment for the body to carry out vital cell processes, thereby increasing the capacity for the body to heal itself.n HBT utilizes filtered pressurized ambient air to dissolve oxygen directly into the plasma, cerebral and spinal fluids, flooding tissues and vital organs with oxygen. nMild Hyperbaric Therapy allows for healing at the cellular level, which is critical for changes to be made which in turn affect healthy tissue formation, making it possible for healthier organs and ultimately a healthier body overall.
  1. Is it Safe?
YES! nThe hyperbaric chamber uses filtered ambient air, so there is no risk of oxygen toxicity to the body even with regular use.n The chamber can be depressurized and opened from the inside.n Once inside the chamber, both visual and verbal communication is possible with the outside, and there is also a buzzer for help. nMost people report a comfortable, relaxing experience and emerge from the chamber feeling refreshed. nThis therapy is non-invasive, non-pharmaceutical, and there are no dangerous side effectsThis treatment is non-invasive, non-pharmaceutical, and there are no dangerous side effects reported.
  1. How does it work?
nThe mild hyperbaric chamber is filled with compressed ambient air from 2 to 4.5 pounds per square inch. (1.3 ATA max) This is the equivalent of 11 feet below sea level. nThe increased pressure allows the blood plasma and other liquids of the body to absorb additional oxygen thus greatly increasing oxygen uptake by the cells, tissues, glands, organs, brain, and fluids of the body. nThe resulting uptake of oxygen allows for increased circulation to areas with swelling or inflammation. At the same time, the increased pressure decreases swelling and inflammation. nOxygen is then utilized by the body for vital cell functions, healthier cells equals healthier tissues, and organs. nThe human body is capable of healing itself when it has what it needs. There is NOTHING the human body needs more than OXYGEN.
  1. Why does it work?
Henry's Law of Physics:

nAn increase in atmospheric pressure allows for more gas to be dissolved into any given liquid.
nOxygen, the 8th element on the Periodic Table, exists as a gas at room temperature.
nThe human body is composed almost completely of water.
n Gas ? under pressure ? dissolves in water

  1. Are there any side effects?
No dangerous side effects have been reported with Mild Hyperbaric Therapy. However, there are a few things to keep in mind when preparing for your first session in a chamber:

n 1. Some people experience a mild discomfort to the ears when pressurizing the chamber, not unlike during the ascending part of an airplane ride.
n 2. Some people following their first few sessions experience slight fatigue as the body sweeps itself clear of toxic debris that has built up in the body. This is safe and necessary.
n 3. It is advisable that you wear comfortable, loose clothing. (Pantyhose and other tight garments may contribute to feelings of claustrophobia.)
nBring something to read, as the sessions last about 60 minutes. You may want to bring a favorite cd, dvd player, portable game, etc.
n 4. Do not drink large amounts of fluids before entering the chamber.
5. Do not wear perfume or cologne when you are coming for your session.

  1. What can I expect to happen during my session?
The chamber will seem smaller when deflated than it is when fully pressurized. Within one minute the chamber will inflate completely, allowing enough room for an adult to sit upright or lie fully extended.

After the chamber inflates, it will begin to pressurize. This is the time when you may experience pressure in your ears. The easiest way to relieve any discomfort this may cause is to equalize your ears using one or more of the following methods:

  1. Close your mouth and firmly clamp your nose shut with your fingers and thumb. Blow, as if you were blowing your nose, but keep nose and mouth closed. You will feel the air come out through your ears when you have done this procedure correctly, and this should relieve the pressure.

  2. Yawn. Stretching your mouth as wide as possible, even stretching your tongue out. This will cause the sinus passages surrounding your ears to drain and relieve the pressure.

  3. If you are the parent of a small child who is having trouble with their ears during pressurization, try massaging the area just below the ears and right behind the jaw. A baby still on the bottle or pacifier should be given either of these, but if your child is likely to spill drinks in the chamber please try to monitor them with liquids.

  4. Sit upright. Turn your head completely to the right, then completely to the left. Repeat earlier steps until the ears are cleared.

  1. How long does a session last?
The sessions last around 60 minutes.
  1. What can I do during my hyperbaric session?
1. Listen to music, (we have CD players and a selection of music, or you may bring your own)
  1. Talk on your cell phone.

  2. Play handheld games.

  3. Watch movies on portable DVD player.

  4. Work on laptop computer.

  5. Read books or magazines.

  1. Are there any reasons a person should NOT go into the chamber?

Yes. You should NOT go into the chamber if you are inebriated (drunk), if you have ear canal problems or an ear infection, if you are experiencing flu or cold symptoms, or if you are wearing perfume or cologne.

FioFio · 02/02/2007 07:36

This reply has been deleted

Message withdrawn