Making hay while the sun shines and always adoring Beatrice.

[cupofteaplease]

I have chosen the thread title this time, because current circumstances means the sun isn't always shining for Beatrice at the moment. Indeed, she is currently in hospital in a fair amount of discomfort. However, when the sun does shine, and we have bright and clear days, we pack in as much as we can.

When we brought Beatrice home from SCBU, we had the consultant's words ringing in our ears, 'Take her home and make some memories.' I feel confident and proud that we have made a treasure trove of memories, however long Beatrice's life may be. She continues to be surrounded by so much love and adoration from her family and I feel this love has helped her to thrive.

During the difficult days, such as these, we pray hard for peace and calm, and for a quick resolution so we can take our darling girl home and make even more precious memories with our beautiful Beatrice.

As with all other threads, same rules apply , read if you want to, post if you can, but above all, please spare some positive thoughts or prayers for Beatrice.

That is amazing Cup! While I was a student I went on several trips to Lourdes as a helper on holidays for disabled children (rather than their whole family). Their needs weren't as complex as Beatrice's, but looking back I am amazed their parents entrusted them to us - I hasten to add there were medical staff with us! We all had a fantastic time and the atmosphere was incredible - groups of children and helpers from all over the UK went for a week after Easter.

So now I shall be praying like mad that Beatrice gets her passport in time. I hope you'd tell us Cup if there is anything we can do beyond praying to help you get the passport in time - I know getting a passport quickly involves travel and expense. We'd want to sort that for you if you'd let us.

Fantastic, if they cant offer you an appnt just keep ringing & ringing, they do have cancellations.
We just turned up at Peterborough & were sorted as they could fit us in. Was a while ago though

Keeping evrything crossed for you Cup, you deserve it so much.

A friend of mine volunteers every year, it sounds amazing.

I live in Peterborough. Pm me if there is anything I can do to help if you are coming to the passport office.

ooooh fingers crossed!

Oooh lovely. Praying for the passport xxx

How exciting! Bea joins the jet set! Fingers crossed that passport people make it easy for you.

how lovely! there is a thead about passports and lots on there have had good help.

you could always do a mnet shout out, someone on here must work at tge passport office to make sure it can be done speedily!

The passport should take about three or four weeks to come through. If you really can't wait to travel, there's a one week fast track service costing £96.50, or a one day premium service costs £109.50. You need to make an appointment for these by calling the Passport Adviceline on 0300 222 0000.

found this online re passports think its still valid

:) Meant to be I'd say.

I'm not religious but I'm really hope with all my heart that you get the passport in time to go, especially after how you've been feeling recently. Many people have said it but I'll say it again, I'm in awe of you, you are a very special person and so perhaps it isn't so surprising that Bea is so very special too (as I'm sure are your other girls). I know you don't feel strong but I really think you are, and I'm sure that's where Bea gets her strength from too. I'm thankful that I'm lucky enough to get to read your updates and listen to Bea's progress. both she and you inspire me and make me appreciate things in my own life more. Thank you for that x

Oh Cup!! How exciting - praying really hard that you get your passport in time! They used to be able to do it for you there and then if you went up to the office, but last time I tried that it still took 3 days to process (Backlog, postal strike, BH monday type of stuff).

That is such good news - life couldn't be cruel enough to deny you it because of a lack of passport.

Everything crossed for Bea's passport.

fingers crossed

That is such fabulous news - please to whatever powers that be that you manage to get Bea's passport in time.

Fingers crossed. Passport is dOable in 2 days.

Wow! I read your post out to my mum yesterday and we both prayed for you. I was racking my brains to think of a way to get you out here (France) and put you all up in my 1 bed gite without you spending any money. Funnily enough I didn't come up with an answer but it seems that God had his own plans. I'm so happy for you.

Fingers crossed for your passport. xxx

We have an emergency appointment at 8am on Wednesday at the passport office- looks like we're going! Exciting!!

yay!!! fabulous news, enjoy your little holiday :) cant wait to see pics! and i cannot believe how big Bea is getting, had a nose at your pics yesterday and she is a lovely chunky monkey, so gorgeous

have a lovely time with your girls xx

Brilliant news! Fingers crossed! X

oh, what lovely news!

Don't know if you have been to Lourdes before - if there is anything you want to know, do ask (have been a few times, both with and without children) and I can try to dredge up memories

It is an extraordinary place - both incredibly busy and yet somehow tranquil. Very hilly though!

Oh cup, I'm so excited for all of you. Fingers crossed for Wednesday morning x

Praying all goes smoothly. I have a friend who is a nurse and volunteers on this type of trip.

:)