Making hay while the sun shines and always adoring Beatrice.

[cupofteaplease]

I have chosen the thread title this time, because current circumstances means the sun isn't always shining for Beatrice at the moment. Indeed, she is currently in hospital in a fair amount of discomfort. However, when the sun does shine, and we have bright and clear days, we pack in as much as we can.

When we brought Beatrice home from SCBU, we had the consultant's words ringing in our ears, 'Take her home and make some memories.' I feel confident and proud that we have made a treasure trove of memories, however long Beatrice's life may be. She continues to be surrounded by so much love and adoration from her family and I feel this love has helped her to thrive.

During the difficult days, such as these, we pray hard for peace and calm, and for a quick resolution so we can take our darling girl home and make even more precious memories with our beautiful Beatrice.

As with all other threads, same rules apply , read if you want to, post if you can, but above all, please spare some positive thoughts or prayers for Beatrice.

Hurrah!! Really hope they process it immediately for you and you're all sorted - fantastic!

Hurrah from me too. Can't wait to hear all about it. DH's brother is a Catholic priest and goes to Lourdes every year. He has taken his older nieces and nephews with him in previous years and I am hoping he will take DD with him when she is older.

Fingers crossed they sort it for you tomorrow.

Hope this morning goes well and can't wait to see little Beatrice's passport pic!

Your girls are adorable cup - your eldest is one of the most beautiful children I have ever seen! And hasn't Bea grown (goodness I sound like my mother).

I've just been catching up on all your posts and trying to find something to say to make it easier. We all want to wish Beatrice the best first birthday ever so if there is ANYTHING you need to help you make it perfect, please say and we can organize it like the others say!

And I agree that you should visit your GP (or another GP) and talk about some extra help, you are doing so well but you need to be able to offload everything to someone and not burden it all yourself.

I think this holiday is just what you need - hopefully you can get some rest time too!

We got the passport! It was emotional as the guy processing her application burst into tears faced with details of her disabilities and life expectancy. I felt awful for him. But the good news is, we're off to Lourdes in the morning!

We also saw Dr Doom this morning. She imparted her wisdom that Beatrice will have a very difficult winter and spend much of it in hospital. I just looked at her and she added, 'I may just be pessimistic, of course'. No shit Sherlock She did acknowledge that it's nearly Bea's birthday and asked if we'd planned a party. I said we are currently just happy to celebrate her defying all the odds.

Her new community paediatrician was there too. He explained about Beatrice being on a 5 year plan once she hits her first birthday. So he mentioned portage and the special school we already attend, as well as music therapy. He was very surprised that Beatrice is already accessing all of these things- I didn't mention all the tiger mums on MN who have been advising, encouraging and coercing me into finding things out for months! Next step will be a 2 day assessment at the CDC to see if all the appropriate services are being provided for Beatrice based on her needs.

Anyway, alarm is set for 4.45am, so I'd better get some shut eye.

I hope you all have a wonderful time and look forward to seeing pictures

Cup, have a truly wonderful trip to Lourdes. Sending love to Bea and all the family, wishing you all a safe, happy and peaceful trip xx

Oh my goodness, what a wonderful update to hear. I hope you have a great time. Looking forward to hearing all about the teaset adventures when you get back.

Have an amazing time, thinking of you this weekend.

Fantastic news! Have a wonderful trip, what an amazing opportunity for you xx

Squeee - how exciting. And bless the chap in the passport office.

I wish you all a safe journey and an amazing time in Lourdes - I trust that it will bring strength to all of you.

yay! so glad the passport got sorted and you are off to lourdes! have a fantastic time xxxxx

Hurrah! Have a lovely time.

Brilliant! I hope you have a fantastic time

Wishing you all the most wonderful time.

Fantastic! A trip to Lourdes - what a brilliant early birthday present for Bea and such a great experience for you and your other DDs. Hope you have a fab time! xxx

Whheeeeeeeeeeeeeeeee!!! So pleased to hear that you got the passport straight off and are going!

Bless the man in the passport office - the Power of Bea never ceases to amaze (except stupid ol' Dr Doom of course)

Have a fantastic time in Lourdes, all of you. xxx

I'm praising God for His mercies for you all and especially for Beatrice

Hope you have arrived and all is well :)

Have a fantastic trip, so glad you got to go and nice to know the passport guy was so touched by Bea's obvious wonderfulness.

Well done you for chasing up all the opportunities Bea has to enrich every part of her life, and for having the energy to stand between her and the doomsayers.

You are not unrealistic at all. You are just living all your lives to the full.

Hope all is going well with the trip. Poor passport chap - Beatrice has such an impact you see

Dr Doom - pessimistic? Who'd have thought it?

What will be, will be. Come what may this autumn and winter Cup we'll pray you through it.

So pleased for you! Have a lovely week. (lurker on thread here).

Have a fantastic time!!!

Can't wait to read about Bea's trip. Cup you write so beautifully that I know we will all feel as though we were there too

Hope your having a lovely time :)