Hi all, hope everyone is battling on!
I've had a very busy few days but sort of productive. I've been fed up, disheartened and very overwhelmed and tearful at times but I'm just trying to put my big girl pants on and get on with it.
Draft ehcp was sent to a local advocate who has given me some advice, I've been asking lots of questions on Facebook groups and I'm working through it with the help of various webinars etc. he's a friend and is an assistant principal at a mainstream but did work in sen, has Sen children and is the senco, plus does EHCP work. I'd rather not spend loads on it currently so I can save for appeal. He said it seems written to suggest specialist so far, which she won't attend anyway, but he felt if they got that EHCP at his mainstream, they would have to say they couldn't meet need.
I know it doesn't mean the LA won't name her current school anyway but I'll just have to deal with it as it happens. I'm resigned to appeal now and paying for private reports, no idea if DD could manage to engage with them but it's worth a try. I've got time to find the right people.
Have made comprehensive notes and asked for a meeting with the caseworker.
Main issues are, there's no provision for progression into adulthood on the EHCP at all. Can I ask the EP to add an addendum to state what these provisions would be?
They didn't let me consult or ask for the input of SALT, even though the ep report does suggest communication and language issues. I'll tell them it's clear they should have asked for that, so I'm requesting it. However I know they don't and I wouldn't want to expose DD to a useless SALT assessment anyway, I'll get my own.
There's no provision in health, but she has a diagnosis and fatigue and pain are huge issues which are a barrier to education. Physically and mentally. I've no idea why there isn't anything there.
They ignored my letter from a consultant diagnosing her HSD and stating the difficulties.
The provision isn't taken from needs in the report, just copied from the provision bits the EP stated , but there's lots more need in the LA EP report that has no provision in the EHCP.
Caseworker tried saying it's only a precis of needs and provisions, not everything will be included...I disagree, otherwise what is the actual point of it being in the reports? And it's a legal document, surely it needs to have all the provision otherwise it's not enforceable? Not sure if anyone with more knowledge can tell me where I'd find that to state to the caseworker?
Also lots of stupid statements about needed provisions like canine assisted therapy...devised by a qualified teacher and delivered by a TA. Bollocks to that. She needs a trained therapist, which the EP report states!
Also the senco at her current school said they definitely can't meet need, even with the very poor draft. So if I can get it to be more specific then I'll go back and say there's no point naming a school, it's a waste of time and resources. I've put together a personal budget, added lots of things to it, thank you @BrightYellowTrain for suggestions.
Going in with no shit taken attitude and I'll see what happens.
Fully expecting a shitty draft to turn into a shitty final, but that's ok, I'll get straight on with appealing.
In the meantime, final EHCP day is also the first day back after the holiday, so no schools will be consulted... meeting with the LA arranged by school to tell them I'll be pushing for section 19 again if they don't sort the EHCP and once that's in place they have to adhere to it, if she's not in school what is the position then? It's a separate meeting, the third we will have had, where they keep saying she can't have anything but a local medical needs school. I've been told off the record there's a lot of self harming behaviour and the kids are escorted to the toilets to make sure they don't do it there.. no way am I sending her into that, she's got history of falling in with the crowd and copying behaviour along with self harm. Not happening.
I'm going to email the head of children's services to say I want someone with decision making ability there at the meeting, and my caseworker. I'm not taking any more shite. They've offered a reintegration to school outreach, with a 6 week limit, at a school that also can't meet her needs and it's not full time or suitable education, so I'll be telling them they need to sort that out.
They are well over the 20 week deadline and they changed dates on the paperwork too, by over a month to pretend it was a later parent request.
I have after discussion with various people and lots of reading decided that I'd rather just send amendments and get the final EHCP even if they've not added them and then just push them to give her some provision whilst I wait for appeal.
I hope I'm doing the right thing but I feel relieved slightly that I've just made a decision. The caseworker is either very clever at delaying and being useless to waste my time, or monumentally stupid, I don't know which, so I'd rather just crack on with the next level as it were. It's inevitable they're going to try to name a school which won't work, so they can try if they want. I won't be sending her and I won't be putting her through it not working out with them trying to integrate her, not unless it were perfect and she wanted to.
If it comes to it I will try getting her some English and maths resources from the online school we liked to get her to try and will just try to keep her ticking over, whist she's starting to get bored, but the wait won't do any harm, she's still recovering and her dad told her at the weekend that he's moving away in the summer, so she needs time to get used to that too. Plus we have ongoing health issues to get to grips with. Animal crossing and baking are enough for now, plus I've found a local dog owner who we are going to help out with dog sitting one day a week and the odd walk, which is therapeutic in itself, for both of us.
Tits out and chin up I guess. Grr! 😂 I'll probably be having a sob on the way to work in the morning again but for now I'm angry