a chance for the SN community to tell you how it really is and to tell you the horrid stuff they have to deal with

[2shoes]

all the time..
after the horror of the other thread, I think it would be good for the sn community on mn to tell their stories, when they have been harassed/assaulted/ and abused by the nt world.
night help to put a couple of minor incidents that someone in the nt world has had to put up with for a very short space of time.

so I will start ....
we were subjected ot haye crime for 5 years....why because my ds fell out with them when they called my dd a spaz.
we can't go out without the staring...small children blocking out way in the shop, whilst mummy/daddy does nothing, just so their child can stare at dd, who is shock horror in a wheelchair.
my son was bullied at school by nt kids who took delight in calling dd a spaz.

mie are minor compared with most.

right again hecate,
even if mn hq don't look at this thread, at least hopefully a few people from the nt world will have.
but seeing as since I started this there has been another silly thread started about wheelchair user this time. it didn't really work.

What thread 2shoes?

My DS has high functioning asd, I've had my friend at Uni asking me if I knew when I was pregnant about it would I have aborted him, and everyone else finding this an acceptable question to ask.

Ive had my family say I'm lying, my mother posting all over fb in a very nasty manner about how I'm making it all up and my DS's aunts etc agreeing with her and debating about how horrid I am for making up his asd.

DS's dad (we are not together) calling social services and reporting me for traumatising DS by explaining autism to him and his dad and other family telling my DS I am a liar and he has no SN.

Countless professionals, salt, EP, school, senco, paediatrician, camhs all agreeing with me and telling me DS is a textbook autism case...

in order to send this to someone in Parliament you need to find your MP on this list
Click on thier name and it brings up a page with their contact details click on their e-mail address from this and then it will open your e-mail programme.

you need to just copy the bit on the address bar on this page ie www.mumsnet.com/Talk/_chat/1451879-a-chance-for-the-SN-community-to-tell-you-how-it-really-is-and-to-tell-you-the-horrid-stuff-they-have-to-deal-with?reverse=1 and paste it into your e-mail asking the MP to read it and ....Whatever it is you want them to do when they have read it.
I would be happy to contact my MP.

Perhaps others could too and point out the realities of having a SN and ask why they think that cutting DLA/education budgets for SN/ training for staff etc etc will help.

That is just friends and familys attitudes too, at school DS is left to sit in class with no support and then gets all of his work sent home on a daily basis as he didn't complete it even though he had no help. He's always being sent home when school can't deal with him, he's been physically restrained when he was 4 years old for shouting at a girl who kicked his ball away, and the school refuses to report all these exclusions too, most probably because it would look bad on them.

Ive heard parents discuss other children with SN at the school, one boy the other parents said his parents must be junkies (heroin users) for him to have such behaviour, he has SN and his parents didn't cause it nor are they 'junkies'.

Dotty I linked to it down the thread, but it is the one about a rude wheelchair user in AIBU

Sockpuppet anyway of getting him into another school I removed my DS at6 from a special unit for being pinned down by 2 adults.

Ok sorry didn't realise been sleeping today was shattered.

The OP said that it had been reported, 2shoes. Not sure who it was.

If you want to make a noise, then I would suggest you get on Social Media - and FB and Twitter the hell out of this thread. If you could get a few bloggers interested - there a few influential disability rights bloggers out there.

That is how the rape campaign started, iirc. With a thread of people telling their stories which then got passed around Twitter.

In fact, it was the informal poll that kicked it off. If anyone wanted to put a poll on SurveyMoney asking posters with SN to say if they, or their child, has ever been abused or discriminated against.

I think the OP of that thread reported it herself because she said she was tired when she wrote it and did not word it well.

please do not share this thread on twitter or fb
wtf? are you serious, this is a thread where people have posted some pretty private stuff, even my op is not stuff I want on twitter.
you want to do that then I will have to ask that all my post are deleted.
this thread was to show mn and the people who post crap stuff what it is like, nothing to do with FB or twittwe

I agree with 2shoes I for one don't want my comments posted here there and everywhere, have you seen some of the things that idiots post about the disabled on FB don't know about Twitter I'm not on it.

Unfortunately though once we post stuff here then we do rather lose control over it. Not saying we shouldn't be able to share private stuff but just that we need to be aware this is a public forum which anyone can read and/or share.

I personally wish we didn't have the FB/Twitter thing on MN.

'I did my best for that child. Was it good enough? Probably not no. It was my NQT year and I knew absolutely nothing. But I did my best.
We appreciate it when people do their best: after all what more can anyone do?

And I bet compared to most you were fab.

A few examples from my kid's primary- a SENCO who told us that she had applied for a statement and been refused (after ds1's dx with AS)- when we contacted LEA he wasn't even on SEN Register. Went to see a charity specialising in SN education and they put Head on speakerphone so we could hear her tell him that everyone knew ASD was just bad parenting.

SENCO never managed to get ds2's referral to SLT in (he was largely incomprehensible until 6/7) either. And she refused to apply for a statement for ds3 'until April' (as anyone will know the process takes a minimum 6 months even before you can think about hiring).... and she exp[ected a child with no speech or continence to start school FT without support (we started him half time at Christmas once the others were settled in, by then he ahd 16 hrs per week help, then FT after Easter- a term later he went to SN School as he was not coping)

dotty, he is at a mainstream school, after he was restrained I told the head teacher I felt the school couldn't cope with him and I'd like to try and have him moved to a school close by that has an autistic spectrum base so would have better experience in coping with his specific difficulties and the HT then argued that they could cope with him but his behaviour isn't triggered by anything (even though I explained the triggers for several of the incidents that had happened) and the other school was hard to get into anyway.

We're moving house this weekend next to the school with the asd base and he's starting after the summer.

And no I agree with 2shoes

Please don't share: some of us are unique enough to be easily identified. ON MN I accept that but not so much on Twitter which i use more professionally.

I agree - please don't share this thread. Peachy said it better than I could - some people might be identifiable.

I just remember what happened with Riven when the media got involved she had a really difficult time.

Mme I posted on the rape thread and was OK with that

The difference is MY info and my boys info.

i haven't said much on here, but do not want my posts shared either, thanks

like Peachy I too shared on the DV/Rape threads, but that is about me, not my DC

I am worried that posters are so concerned about being identified, I think you need to pull your posts, there is a huge amount of media interest in Mumsnet, and a thread like this is going to catch someones attention, sooner rather than later and your posts could end up in the national press.

My DS is an adult.

It wouldn't be right for his experiences to be shared all over twitter without his consent.

If this was shared on FB or Twitter I would have to ask for the posts I made to be removed.

Sorry, was cooking dinner and didn't see this.

I had no intention of sharing this thread - but you were talking about how you could change things, change perceptions. I was merely giving you suggestions on how you could make a campaign out of this, if you wanted to.

I know better than to share a thread like this on Twitter or FB, we have seen what happens when people do that too hastily.

I am sorry if I caused upset or worry to any of you.

At the same time - you must all know that anything you share on here is in the public domain. It is not just MNetters but politicians, journalists, bloggers, activists - all sorts of people read these threads.

Journos cause they trawl MN for stories.

You could get MNHQ to move this to OTBT so that a casual search would not turn it up.

And then perhaps start a more anonymous, general thread IF you want to do any campaigning.

If you want support to run a campaign or get one going, then I am happy to help but it needs to come from you lot.

but if it was moved there no on would see it.
I do realise that what you post on mn becomes "public" but I just saw red at the suggestion this thread be shared like that.
if you want to do that with a thread fine, but please start another one an warn people first.

this isn't a campaign thread
it was started to show people on mn how hard the nt world makes it for people with sn and their families.