afternoon all! missed loads again not caught up, i have been on mns not not for long.
ill update, dd hips first they leaving for an other 6 months to see if they go back, as she postures putting her in cast can make her worse. our nero thinks they know whats up wi dd, but am not sure weather its cos they have no idea whats wrong, but they say she as a very rare and unusal dx, she still as sezures to they now sending her to a develment nurse, and getting us a family some thing nurse too to see if they can help, shes still on 24 hour care. we also went to dietion last week, they took bloods to see if shes alergic to gluten, wheat, eggs good alsorts, her eczma as a really bad effect to, they want us to get her to have an other 8oz soya milk a day, if not will put her on fatterning milk as shes now been classed as failer to thrive.
shes not sitting or wanting to dispite phyiso, but shes is now rolling a little, no teeth either. so as you can see not much change here only us getting more stressed each day.
hope you all ok