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Miscarriage/pregnancy loss

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Original poster

7th miscarriage looming..........

180 replies

oinker · 28/02/2008 11:28

I had a scan yesterday which confirmed my worst fears.
Beanies HB slow and not correct size for gestation. This has happened so many times know.
I already take heparin and two baby aspirin.
Hospital refuse to put me on steroids because of my BMI.
I have alresdy lost so much weight to rule out my weight being an issue. I lost over 5st bringing me down to 13st.
I don't know what else to do.
I want to call it day and get my head around the fact I will never be a mum.
I really can't be bothered to go through this again. Nothing bloody works. The recurrent m/c clinic would quite happily just have me going through this time and time again. They are not actually doing anything to help. They have nothing more to offer me. What is the point on carrying on just for more failure?
I am at the clinic run by Lesley REAGAN in paddington. If they can't help no-one
can.
I can't keep doing this.....

OP posts:
Original poster
oinker · 29/02/2008 09:06

Where is LWK?

I am in west London. I have easy access by train to anywhere in the country.

OP posts:
Original poster
oinker · 29/02/2008 09:07

WHOOPS

I meant LWH

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Original poster
oinker · 29/02/2008 09:09

Had a brainwave......

Just googled LWH now realise its the Liverpool Womens hospital.

Is it near a railway station?

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OracleInaCoracle · 29/02/2008 11:10

its near lime street. and very easy to get to. ann maria the mc nurse is fab but you need a gp's referral. however i only had to wait 4w.

alittlebitshy · 29/02/2008 11:12

Lissie - you said you're going back to LWH. Have you decided to try again? Last I saw you'd decided to leave it all for a while and do your degree etc etc [nosy emoticon with a big hug]

OracleInaCoracle · 29/02/2008 11:18

we have discussed it and dh wants to try again. so if im not (successfully) pg by april then we are stopping for 2y. the last one hit him very hard.

PABLOP · 29/02/2008 11:27

So sorry oinker, I can't comprehend how hard this must be for you, I have had 2 mc and was a bad time for me. I think if you have been pregnant so many times you are destined to be a mum one day, sorry can't give any advice but am sending lots of good vibes

PABLOP · 29/02/2008 11:29

This goes for the rest of you ladies too who have had to go through this heart wrenching ordeal. Hope you get good news v soon

herbaceous · 29/02/2008 11:52

Hi Oinker

Just had a look at my remaining steroids, and the dose is 25mg.

Dr Shehata, who prescribed them to me, works on Harley Street, at the Miscarriage Clinic. He has a website, which is quite informative. He's a nice guy, and the clinic is very plush! Especially if you're used to grim London hospitals.

Me and DP had every blood test done there under the sun, including chromosone karyotyping, and it cost about £1000 for the two of us - the karyotyping was the most expensive bit by far.

Original poster
oinker · 29/02/2008 14:52

Herbaceous..
I have looked at the website. Was trying to log into the NKC page but you need a pass word. I suppose I will have to go there to get it. I was only after more info.

Tell me to mind my own business if you want but I just have a couple of questions...

How did they discover you had NKC? Do you have them, is that why the steroids were prescribed?

Was your weight normal b 4 starting and did it go up whilst taking them? I am 3 stone overweight (or thereabouts)
Were there aany side effects?

LL... Not sure if I would get a referral. I live in London.

Thank you all sooooooo much for your responses..
You have all been a great help

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Original poster
oinker · 29/02/2008 15:04

Was out shopping earlier and went into a book store. I was drawn towards the parenting section and a book titled BEYOND CHILDLESSNESS......OMG I was in tears...
I was going to buy it but just couldn't bring myself to doin it.
I HATE ALL OF THIS

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OracleInaCoracle · 29/02/2008 15:11

oh oinker

LardyMardyDaisyBoo · 29/02/2008 15:25

oh oinker . I wish you and lissie (sorry lissie, I missed that you'd MC'd again as I wasn't on-line for a few weeks ) all the very very best for the future and that you can get the steroids from somewhere.

Squiffy · 29/02/2008 15:25

Oh, Oinker {{{{{hugs}}}}}

Please try not to be so hard on yourself. People in our generation are so used to having control over every aspect of our lives that sometimes we forget that there are still elements beyond which things really are in the hands of the gods. Please don't get too disheartened.

I had 7 M/cs and then two beautiful children. No 'cause' was ever found.

In terms of private vs NHS and seeing other specialists; there is no harm in this, but try to accept that there is a limit to what can be done. I switched consultants, and I went down the private route as well. To be honest the only two things I really found between NHS and private were (A) With Private they were more willing to immediately look at more esoteric explanations, so you had more of a range of tests (but I guess under Regan you would have had all of these anyway by now), and (B) They had the time to be far more sympathetic and caring.

Take heart that they haven't found an underlying cause, and try to focus on YOU and your life outside of pregnancies - you are healthy and there is so much life to be lived. If it is meant to be, it will be.

Original poster
oinker · 01/03/2008 18:45

This is soooooooooooo annoying...

I realise that symptoms normally stay for a while after m/c's or threatened ones but I am surprised mine have.
I don't normally get any symptoms at all.

i realize beanie was just hanging in there on wednesday but I can't beleive he still is. I am far too synacle to think it is still there. I have no bleeding nothing..All the other times I was cramping or gushing blood..
I was I had a sin. I want it to get a move on as I really don't want another D&C. A freind told me someone she knows waited 6 weeks to pass her beanie

OP posts:
Original poster
oinker · 01/03/2008 18:47

WHOOPS

No idea what the beginning of the last sentence means.... SORRY !!!!

Going nut,nut!!!

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OracleInaCoracle · 01/03/2008 18:57

oinker sweethear, i know its not looking good at the moment, but its not over yet. theres no harm in having a little hope x

justjules · 01/03/2008 19:22

This reply has been deleted

Message withdrawn at poster's request.

Dorasboots · 01/03/2008 19:40

I just wanted to say how very sorry I am and wanted to offer a message of hope, my friend has had 7mcs, then gave birth to her baby daughter last summer, who is now thriving and happy. She had been through all the tests, nothing conclusive about why it kept happening, her DH wanted to give up trying, but for some reason, this time it worked.

I hope so much your lucky bean is on it's way.

OracleInaCoracle · 01/03/2008 20:20

thats the doctor that heads up the NK cells tests jules, think that'll be our next step tbh.

justjules · 01/03/2008 21:36

This reply has been deleted

Message withdrawn at poster's request.

OracleInaCoracle · 01/03/2008 23:13

its still v much research. we are saving at the mo.

squilly · 01/03/2008 23:20

I'm so sorry for your losses Oinker. I can't imagine how you're feeling right now. I was determined that if my 4th pg was unsuccessful I'd pack it all in, but I suspect I would have carried on. I think you have to be happy (wrong word, but ykwim) in yourself that you've tried everything you can.

Don't let the weight situation get on top of you too much. You've done fantastically well to lose 5st and it can only help. I was 14st 10 when I had my dd and I don't think the weight really had much to do with the misses...I never found out what it was. My darling doctors advised me during my 5th pg that the treatment I'd had on my 4th was now a discontinued treatment...as it was deemed to be ineffective! Go figure!!!!

I only hope that you have success in the end. It would be grossly unjust if you didn't after all you've been through. Thinking about you...

herbaceous · 02/03/2008 12:03

Hi Oinker

I've got a feeling that this time it might be alright for you. Fingers crossed.

Anyway, to answer your questions:
How did they discover you had NKC? Do you have them, is that why the steroids were prescribed?
*They took a blood test. Though some say blood tests don't show them up as properly as a biopsy of the endometrium, but it's a start...

Was your weight normal b 4 starting and did it go up whilst taking them?

  • Normal weight - about 10 and a half stone. I didn't put on any weight while on it. Or none that couldn't be explained by a sudden desire for cake!

Were there aany side effects?
*No - I felt fine...

Original poster
oinker · 02/03/2008 16:53

Thanks for the answers.

I am still feeling shite....
Trying not to be to optimistic. Keeping my mouth shut though. Not said anything to DH.

I can't remember if I felt like this last time.
I used to keep a diary when pregnant but gave up a while ago.

Taking mum to fish and chip restaurant tonight..... Looking forward to it (naughty)

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