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Miscarriage/pregnancy loss

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Support thread for those experiencing or recently experienced a MC/MMC - Thread 6. ALL welcome!

1000 replies

Sunbird24 · 30/05/2022 17:36

If you’re going through this, you’re not alone. I’ll post some links to support organisations shortly, but feel free to post, or just read, whatever you need. Flowers

OP posts:
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11
Hopefulhoney6 · 30/12/2022 22:24

Oh and @LAURAPAX if you want to supplement - take CoQ10 and Omega 3 - they usually recommend these during IVF. Me and partner both taking both on top of prenatal x

tulipsunday · 31/12/2022 10:30

@LAURAPAX hope you managed to get seen in the end. I would echo trying not to beat yourself up about your age. I have had miscarriages at 33 and when I had just turned 34 so sadly can happen anytime. So horrible though x

Travellingislife · 31/12/2022 10:34

Hey ladies,
I’m here to just vent/ getting this off my chest. You never think it’ll happen to you. I guess I’m “old”, I’m 41 but still I just thought it would go well.
I’m currently going through a pregnancy loss. I’ve had a feeling it would end badly since I had an early scan at week 6 and they only saw an empty sac. I lost the pregnancy symptoms at week 6+5 and my fitness tracker showed a decrease in heart rate and increase in hrv. I didn’t feel pregnant anymore. In my previous pregnancy they didn’t get better like this so this worried me as well..
I’m nearly 8 weeks now and I’ve had light bleeding for 3 days, this is the 4th day and it’s starting to get heavy, passing clots and getting painful cramps.
I’m away in a remote place with work so I can’t get this checked until mid January. I decided to go to work since I wouldn’t have been able to change the outcome anyway and I didn’t want to tell anyone for this exact reason. That I would actually lose it 😭
I don’t know if I want to try again now, don’t want to go through this again but I so want another baby. Arghh hopefully it’ll all fall into place when I’ve put this behind me.
I just wanted to get this off my chest, thanks for creating this thread.

Sending hugs to everyone who has experienced a loss ❤️

clhiu · 31/12/2022 11:20

@LAURAPAX thank you ❤However I wouldn't ever wish to anybody needing to be on this thread, knowing one isn't alone in these feelings and experiences and there are people out there who understand really helps somewhat. Of course we would all much rather this group didn't have to exist in the first place and I do long for the day that not a single person will have to go through this ever again even just once.

It's much easier said tan done, especially once you start looking into things, but I repeat and agree with others, you really aren't that old yet and there are plenty of other things to explore before resorting to IVF, however it is a very personal choice and nobody but yourself and your instinct can tell you what feels best at this moment in time.
I would recommend exhausting all possible tests to understand if there is a different underlying issue that can be treated more easily than egg quality and exploring supplements, any additional lifestyle changes you might not have considered yet and luteal phase support on your next pregnancy as medication such as progesterone, blood thinners and high dose folic acid can make a difference to a lot of pregnancies. Fertility MOTs only go that far.

It's also very easy to say, but try your best not to beat yourself up about trying too late, it really isn't that late even though it may not feel like it to you, especially these days in age when I personally seem surrounded by women who have children in their 40s seemingly without issues. But more important than that, you might not have thought there were specific or important reasons to put this on hold when you were a bit younger, but the reality is that it wouldn't have been right for you and you would have done what felt right at the time. Until the age of about 37 I was completely adamant I didn't want children at all and at times of deep sadness I try rekindling with the person I was then and the reasons for it to understand how my feelings changed that much to the point I very quickly became obsessed. Also being with a younger partner who did not want children at all, by the time he changed his mind and accepted to start trying I was already almost 41 so it's easier to get caught up into negative guilty feelings and 'what ifs', resenting your partner even, but then I say to myself that the reality is that it wasn't right for us to start trying sooner and also I cannot possibly know for sure that by trying earlier I would have had a different outcome, nobody can. I don't know why I'm telling you all this, but basically try not having regrets because we do what we think it's right at the time and much as it's easier for me to get caught up by those thoughts, I still have no regrets and I'm trying my best to look forwards rather than backwards. I don't think I can deal with regret on top of all the other pain this brings.

Following 4 losses, 2 of which tested and confirmed to have chromosomes abnormalities, we decided to undergo IVF with PGT-A (PGS) testing, we just completed our first ever egg collection round and have a follow up consultation next week to discuss next steps. I will PM to give more details if you're considering this route.

@Travellingislife I am so sorry to hear about what you're going through, being away and not being able to get support must be extra hard and worrying on top of the heartbreak and of course not knowing for sure. Sending 💐. I hope you can get some sort of confirmation and peace of mind soon and you can start trying again if that is the route you wish to go down to. I have a friend who had a loss and then successful pregnancy at 41 so there is hope.

xxx

ChloeN · 31/12/2022 12:06

@LAURAPAX I agree don’t beat yourself up about age, I had my mmc at 23 so being younger doesn’t stop it from happening! It’s just one of those shit things!

Travellingislife · 31/12/2022 12:23

clhiu · 31/12/2022 11:20

@LAURAPAX thank you ❤However I wouldn't ever wish to anybody needing to be on this thread, knowing one isn't alone in these feelings and experiences and there are people out there who understand really helps somewhat. Of course we would all much rather this group didn't have to exist in the first place and I do long for the day that not a single person will have to go through this ever again even just once.

It's much easier said tan done, especially once you start looking into things, but I repeat and agree with others, you really aren't that old yet and there are plenty of other things to explore before resorting to IVF, however it is a very personal choice and nobody but yourself and your instinct can tell you what feels best at this moment in time.
I would recommend exhausting all possible tests to understand if there is a different underlying issue that can be treated more easily than egg quality and exploring supplements, any additional lifestyle changes you might not have considered yet and luteal phase support on your next pregnancy as medication such as progesterone, blood thinners and high dose folic acid can make a difference to a lot of pregnancies. Fertility MOTs only go that far.

It's also very easy to say, but try your best not to beat yourself up about trying too late, it really isn't that late even though it may not feel like it to you, especially these days in age when I personally seem surrounded by women who have children in their 40s seemingly without issues. But more important than that, you might not have thought there were specific or important reasons to put this on hold when you were a bit younger, but the reality is that it wouldn't have been right for you and you would have done what felt right at the time. Until the age of about 37 I was completely adamant I didn't want children at all and at times of deep sadness I try rekindling with the person I was then and the reasons for it to understand how my feelings changed that much to the point I very quickly became obsessed. Also being with a younger partner who did not want children at all, by the time he changed his mind and accepted to start trying I was already almost 41 so it's easier to get caught up into negative guilty feelings and 'what ifs', resenting your partner even, but then I say to myself that the reality is that it wasn't right for us to start trying sooner and also I cannot possibly know for sure that by trying earlier I would have had a different outcome, nobody can. I don't know why I'm telling you all this, but basically try not having regrets because we do what we think it's right at the time and much as it's easier for me to get caught up by those thoughts, I still have no regrets and I'm trying my best to look forwards rather than backwards. I don't think I can deal with regret on top of all the other pain this brings.

Following 4 losses, 2 of which tested and confirmed to have chromosomes abnormalities, we decided to undergo IVF with PGT-A (PGS) testing, we just completed our first ever egg collection round and have a follow up consultation next week to discuss next steps. I will PM to give more details if you're considering this route.

@Travellingislife I am so sorry to hear about what you're going through, being away and not being able to get support must be extra hard and worrying on top of the heartbreak and of course not knowing for sure. Sending 💐. I hope you can get some sort of confirmation and peace of mind soon and you can start trying again if that is the route you wish to go down to. I have a friend who had a loss and then successful pregnancy at 41 so there is hope.

xxx

@clhiu Thank you for your kind words, that gives me hope.
So sorry to hear about the struggles you’re having. I really hope it will be your turn soon ❤️

I was the same as you, I didn’t want kids, I never thought I would have them, then when I was 37 my sister had her first, that changed my mind. I had our son when I was 38, he was conceived very quickly so we were super lucky. I thought I would be happy with one but when he was about 18-20 months I started to feel I wanted to give him a sibling, then I became totally obsessed, all I could think about was getting pregnant. It’s exhausting. Now I’m also thinking “what if I started 10 years ago, would it have changed things”. I know in my heart I wasn’t ready then but all these thoughts go through my head.

LAURAPAX · 05/01/2023 16:22

Thank you for all your replies and kind words ladies I appreciate it so much. A quick update - I finally got seen after 8 hours at the EPU last Friday and opted for surgical management but the earliest they could fit me in is this coming Monday the 9th. I thought I might miscarry naturally by then but nothing so far and I really don’t feel like I am going to. I also went for a follow up scan today hoping it was would all be a bad dream or mistake but it’s not. At least I feel like I have some closure now and waiting for the surgery on Monday. I’m scared of scarring from the surgery but I can’t wait any longer it will be nearly two weeks since the confirmation of MMC by the time I have the op.

@Hopefulhoney6 would you mind sharing the CoQ10 and Omega3 supplements you both take on top of Pregnacare? I’m not sure which ones to get as the pregnacare does include a lot of multivitamins.

I’ve also booked a follow up consultation with Kings in London next week to discuss next steps as I think IVF with embryo testing may be the best way to go considering my age, recurrent miscarriage and no live births. I will let you know how I get on.

I hope you are all holding up ok. I’ve been signed off work so trying to just get through one day at a time. It is savage and I really pray none of us ever have to go through this again.

sending love x

kookyelephant · 05/01/2023 21:44

Hi Ladies 💕

Today I got the news I have had another miscarried, this is my third in the last year and my second MMC.

I have another scan booked for Monday, although I know nothing will have changed, I think for my own sanity and peace of mind it will be better I go, from there if I haven't already miscarried I will get the choice to take the tablets or op, I think I'll take the tablets though. Although the previous experience of passing naturally was quite a traumatic experience, I think I'd rather just be at home with my partner.

I know I can now go and see a specialist miscarriage unit but is anyone else in the same boat?

Sending lots of love to you all xx

Sunbird24 · 05/01/2023 21:49

@kookyelephant im so sorry Flowers You should be able to ask about a recurrent miscarriage clinic - I got seen by a consultant after my third who did all sorts of extra blood tests and scans, and prescribed steroids for the next attempt (all but my first were following ivf) but sadly I never got a reason for all my MCs or a happy ending. Will keep things crossed for you

OP posts:
tulipsunday · 06/01/2023 17:00

So sorry for your losses @kookyelephant I had my second miscarriage last month it is rubbish isn't it. Hope you are ok and that the physical part is over soon xx

Hopefulhoney6 · 06/01/2023 19:01

Hi @LAURAPAX … good luck with the surgery, I’m sure you’ll be fine. I had to wait 3 weeks for mine after finding out about the MMC and then it all went well. Just had my first period post surgery so hoping to try again.
tbh I just get the supplements from Amazon: Omega 3 Fish Oil 1000mg - 365... www.amazon.co.uk/dp/B01BFIHWDS?ref=ppx_pop_mob_ap_share

and Powerful CoQ10 Complex - 300mg... www.amazon.co.uk/dp/B095STZGW1?ref=ppx_pop_mob_ap_share

My friends IVF consultant recommended the CoQ10 for her and her husband so I would recommend your partner takes it too!

@kookyelephant I’m so so sorry to hear that…. My friend has had three MMCs and is now doing everything privately after NK Cell testing etc and seeing someone in central London. I’m sure the specialist miscarriage unit will be able to give you guidance on next steps.

Sending my thoughts to everyone 💐

tulipsunday · 09/01/2023 15:41

Hope your surgery went well @LAURAPAX and you are ok @kookyelephant after your appointment today. I am back to TTC after second miscarriage. In my first two week wait 😬

Hopefulhoney6 · 10/01/2023 13:33

Yes @LAURAPAX hope it went well!

Good luck @tulipsunday . I’m on Cd9 - first time trying the advanced clear blues and so far it’s a low, so just waiting…. I normally ovulate on CD18 so a bit of time to go!

Travellingislife · 10/01/2023 14:24

Does anyone check their cervix? I’m the Queen of tracking everything so of course I check my cervix too 😂

During my fertile window it’s high, soft and open and when your period is due it’s lower and harder. It takes time to learn how it feels but if you try it for a cycle you will be able to notice a difference. That combined with my cervical mucus and temperature very accurately pinpoint my ovulation. When I got pregnant I noticed that my cervix never got lower and harder after ovulation like it normally did.
Did any of you notice a change in your cervix after your loss? Mine seems to indicate that I’m in my fertile window now ( my cm does indicate it too but I only stopped spotting 4 days ago and my bleeding started on NYE), but I don’t know if that’s because I’m fertile or because I recently experienced a loss.

tulipsunday · 10/01/2023 16:06

@Travellingislife no I haven't done that but your post is interesting!

@Hopefulhoney6 Those sticks are good. Shame they are so expensive isn't it. I am using the easy at home ones with the pre mom app which seem to be quite good but I may end up back on the smileys. All the best for this cycle.

Sophiey11 · 10/01/2023 16:38

Best of luck @tulipsunday ive got everything crossed for you. I had my bfp this weekend (sorry if it’s insensitive to post this) and I got pregnant on cycle 3 after my MMC in September.

@Travellingislife I didn’t track my cervix or cervical mucus but I did start using the LH strips and I even tried the clear blue ovulation kit. Good job I did as my last cycle I actually had positive ovulation tests sooner than what my Apps predicted. I also tried BBT every morning but in all honesty I found that way too confusing, and my ‘charts’ never really confirmed ovulation.

ChloeN · 10/01/2023 16:52

@Sophiey11 oh I’m so pleased to read your update lovely was hoping you’d get your bfp☺️💕 it was 3rd cycle lucky for me too xx

Sophiey11 · 10/01/2023 16:58

Thank you so much @ChloeN i honestly thought it was never going to happen again. Thank you for your advise with the ovulation tracking, I think that’s what made the difference this cycle. I am now riddled with the obvious anxiety about what could happen. But trying my best to stay positive xx

ChloeN · 10/01/2023 18:27

@Sophiey11 no worries lovely💕 if you ever want anyone to talk to direct message me on here we probably feel exactly the same!

tulipsunday · 10/01/2023 18:37

Congratulations @Sophiey11 that is fantastic news! How are you doing @ChloeN? Hope the pregnancy is going smoothly. Had a good chat with my GP today who is happy to do a full blood count to check for any iron/vitamin/thyroid issues so hopefully I can get that booked in soon.

ChloeN · 10/01/2023 19:01

@tulipsunday thanks lovely, had my 10 week scan on Sunday, was an absolute mess before I couldn’t stop crying, but luckily the baby was perfect and wriggling around! Honestly never dared to believe I’d ever get to this point so it was amazing🥹 good news on your gp helping, how have you been feeling? Are you trying again yet or planning to have a break? X

UnluckyCat23 · 10/01/2023 21:22

Hello everyone, hope you don’t mind me joining. I’m having an awful time atm. IVF pregnancy, low/slow rising bHCG (ended up having blood tests every other day for the two weeks around Christmas). 6 week scan - small, no heartbeat. 7 week scan (today) - small, very weak/slow heartbeat. The nurse has told me to expect the worst but because there was a flicker of a heartbeat I need to wait another week to confirm. I can’t face another week of waiting for the inevitable. I haven’t got my hopes up at all and have been expecting this since the initial blood results but I just can’t face another week of this limbo. I feel awful because I feel like I’m wishing the pregnancy will end, I just can’t cope with it anymore and a loss seems like such a certainty.

Sunbird24 · 10/01/2023 21:30

@UnluckyCat23 we get it, the limbo is really hard to deal with, and if it’s not going to work you kind of want to know for sure sooner rather than later as it allows you to start dealing with it, and then you can try again. Fingers crossed for good news next week for you Flowers

OP posts:
somethingluscious · 11/01/2023 14:40

@ChloeN I am really glad your scan went well. I know you were really nervous about it. That is a great milestone to get to 10 weeks.

@UnluckyCat23 The waiting and hoping is so difficult. It feels like the toss of a coin to me a bit, but where you can't quite let go until you know it's not going to happen.

I've been trying to stay off boards and social media for the last little while, so I don't drive myself crazy ruminating.

I have to go in for medical management again tomorrow and then be admitted on Saturday. The only real difference with this and my MMC in September was the hcg started lower and was slower to grow, so the development was slower, but it stopped at about the same time shortly after the 6w3d scan where we saw a heartbeat. They gave me progesterone this time and the last test I'd done had been 60 nmol/L which is actually much better for me. A week after taking cyclogest progesterone was almost up at 1500. The doctor at EPU agreed to prescribe progesterone making clear there was no evidence it would make any difference. She said the September MMC had been genetically abnormal over the phone, but I didn't go into that as was just glad she was willing to give me cyclogest. I just said that nobody had told me this. I don't really know what to do going forward as I'm 44 and I'd sort of given myself to 45 in April as my rough cut-off date.

The EPU rescanned at 8w2d today, so at least it didn't leave me waiting longer as last time was after 9 weeks. I asked about the genetic testing from September and the midwife said they would need a doctor to explain this and didn't want to give me the results otherwise so they would refer this again through the recurrent miscarriage consultant. That just feels really messy as the doctor there wouldn't see me before, citing my age and bmi, plus the fact my previous losses were before a successful pregnancy. She said to lose weight, which I have been doing.

I am sure I do have PCOS as my AMH and FSH are good / high for my age, testosterone, prolactin and cortisol raised and I have low SHBG. All the blood tests I did privately were to get a picture of what was going on. It seems like it keeps coming back to age and egg quality, but it is just frustrating when my cycles have never been so good and regular. I'd been taking supplements recommended in it starts with the egg, but I don't know if that was really for long enough or how much difference they would make. My folate was high, vit B and D had increased, but could still go up further. I was taking vitex as well to combat the prolactin and try to push progesterone up as there still seem to be issues with cycle competence, but I don't know how much that impacts egg quality too. Once my cycles regulate they tend to keep improving.

tulipsunday · 11/01/2023 18:17

Best of luck with medical management @somethingluscious the waiting is awful isn't it @UnluckyCat23 I had that recently with my second miscarriage. Hope it turns out better than you fear and if not we are all here for support.

So so delighted for you @ChloeN. Yep we are straight back to trying - as scary as it is to face another loss we didn't want to wait.

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